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Is it advisable and safe for a transplant patient to get the new shingles vaccine, Shinglex?
@danab It's not measles that shingles is related to, it's chicken pox.
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Yes thanks I knew that I also had Chicken Pox. Not sure why I was thinking measles. I'll fix it
@azdan99, Thank you for bringing up the topic of shingles shot. It is a good reminder for all of us to keep our immunizations up to date. Have you had the opportunity to discuss it with your doctor yet?
@azdan99, I want to commend you for how well you have taken care of yourself and your heart transplant for 17 years. You are an expert by experience and I have a question for you. What advice do you have for someone who is starting out with a new transplanted organ?
I have an appointment in September. I will discuss at that time.
Is it too early to tell if the new vaccine being tested for Covid is safe for transplants?
I have no knowledge of any transplant patients contracting Covid-19. I have no plans of getting a vaccine for something that I have no knowledge of any of us contracting the virus to begin with. Just my personal opinion of course. Have a great rest of your day.
@jerrynord, I believe it is still too early for any safety decision about the COVID-19 vaccine. When I as at Mayo in June, (a long time ago by COVID-19 time) I asked my PA about the potential for a safe vaccine for us transplant recipients. Her reply was that the transplant doctors are watching it closely. I am completely confident that if/when a vaccine is approved and available, that we will will be able to turn to our transplant team for guidance.
Jerry, right now, I am thinking about the annual flu shot, and will get it when it is available in my area. Prevention is always our best defense, and as transplant recipients we are ahead of the general public because we already know the importance of hand washing, safe distancing, and not handshaking, etc.
Jerry, It is great talking to you. How are you spending your days while staying safe?
@tjgisewhite, Like you I have not known any transplant patients personally with COVID-19. When I asked at my annual evaluation appointment, I was told that have been transplant patients with COVID-19, and deaths. I hope that when some of these promising vaccines are approved, that each transplant center will give their patients the scientific information and guidance in making the best decision. I fully expect this to not be a 'one-size-fits-all' situation.
Have you been able to have your 4 month check-up since your new transplant? How did it go?
Hello all, I'm a little confused. The COVID 9 vaccine is not the the Shingles vaccine. At my heart transplant, I was told we could not have the Shingles vaccine because at that time it was a live vaccine. Since Shingrix has arrived on the market, this has changed. I just contacted my nurse coordinator and was told that this vaccine is safe for me. I'm planning on getting it on Wednesday. Everyone's medical history is unique and our coordinators are able to offer the best medical counsel. I will await a COVID vaccine that makes sense for all of us with new organs. We'll see what happens!
Advice for new transplant patients:
1. Listen carefully to instructions from your Team. Take notes and ask questions. Get their instructions in writing.
2. Never hesitate to ask any question, no matter how simple. I always challenge my doctors. They are not perfect.
3. Take you meds religiously. I have alarms set on my phone. Make sure your support person knows your med schedule. Keep a copy of your med schedule inyour wallet.
4. If your health changes suddenly, talk with your Team ASAP. There should be someone on call 24/7 that is paid to answer your call. Share with your support person.
5. Stay positive!!! Rely on your faith for comfort.
There is probably more, but this is a good start.
Excellent. The only think I would add, and it’s an obvious, is stay hydrated!
@jerrynord Hi and the latest I heard from my Doctors is that for us transplant patients we can't get a live type vaccine so probably not for a while. But this is so new im sure we will be hearing more as time goes by.
Have a blessed day
I am sure we will.
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