Severe heart palpitations

Posted by mikeyp @mikeyp, Nov 25, 2016

Hi Everyone, whew, where do I start ? I’ve been to 6 cardiologists, ( 2 were electrophysiologists ) over the last 11 months and basically I have them all scratching their heads on why I get REALLY bad heart palps, and I mean BAD ones to where it feels like someone punched you in the chest an hour ago, that’s how it feels if you can imagine having that happen to you and then I get light-headed and disorientated to where I just want to sit and not talk or move for an hour or more until I get back to normal, usually this takes a few hours. Yes I get them THAT bad. I’m hoping that this group can help me because I’m at the end of my rope. One electrophysiologist said what I described to him was ” impossible ” to be happening, I’m really starting to wonder if I was born on another planet, I can’t be the only person in the world with the heart palps that I have.

Mine basically come in two stages, I feel a pressure on the left side of my heart and then a strong thump in the heart itself, this happens within 2 seconds and then it’s gone until the next time, no it doesn’t happen all day, mine come as fast as they go but when them come it’s like a Mike Tyson punch. I usually get these about once or twice a day. I’ve done every test imaginable, Nuclear Stress Test, Treadmill Stress Test, 2 heart & neck angiograms, 2 twenty four hour Holter Monitors, Echocardiogram, and numerous EKG’s and blood tests and every single test comes back absolutely normal, so ( as one cardiologist put it ) ” If we can’t diagnose what’s wrong we can’t treat it ” That makes sense but I’m still going through this with no new info, no meds, no nothing, I have the same knowledge that I have of whats wrong with me that I did when this all started 11 months ago and that is NOTHING at all, no more knowledge, no meds, nothing.

Here’s more info on me, I ” had ” CLL, Chronic Lymphocytic Leukemia, (13q14 deletion ) they caught it fast and treated it with FCR chemo and within 3 months ( not 6 months which is standard ) I was in full remission, if you don’t understand what this means I’ll just put it this way, if you HAD to get leukemia then this is the one you want to get, it’s the most common and most treatable out of all the leukemia’s and as much as oncologists ” can’t ” say that I’m cured from this they pretty much say ( in your ear ) that you’re cured. Now with that said, every Dr, Oncologist and Cardioligist all agree that this is not the cause of my palps, could it be from the chemo ? Yes possibly but I was diagnosed with CLL in April 2016, the palps started in December 2015 and I did the chemo in May 2016 so you see it doesn’t match up.

The ONLY relief I get from the palps is when I take Magnesium Citrate, I tried Magnesium Taurate ( which they say is more for the heart ) but I’ve noticed that the Citrate works a lot better. Ok so you’re saying why are you on here then, just take the Mag.Citrate right ? Well there’s a problem, when you take Mag.Citrate on a regular basis you literally have to run to the restroom like 10 to 15 times a day, and when I say run I mean RUN !!!!! From what my last cardiologist said ” They give Mag Citrate to people who are about to have a colonoscopy to clean them out ” and trust me I believe him. So my question is does anyone know what else I can do to alleviate these palps without running to the restroom all day long ? My quality of life has sunk, I either have palps so bad that I can’t enjoy life or I’m running to the restroom every half hour, I don’t know which one is worse. I’ve also tried taking potassium and CoQ10, neither works or am I not taking the right dosage ?

Lastly, does anyone have any knowledge of the ” Vagus Nerve ” ? It’s a nerve that pretty much connects your heart to other parts of the body and I’m thinking when the bad palps hit me it’s ” short circuiting ” the Vagus Nerve and that’s what makes me light headed. Any help would be greatly appreciated folks. I’m thinking that with the right supplements I can live with this, but what are the right ones and the right dosage ?

Thanks

Mikey P

@martishka

Hi Mikeyp,
You say that the doctors cannot find anything wrong even though you have had several tests. I have a question about the two
24 hour Holter monitors that you had. I am assuming that when you were wearing the monitors you did not experience an “episode”
and that your heart was in normal sinus rhythm. I am wondering why you don’t try a two week monitor or month long monitor. I have had both
since my electrophysiologist could not “see” the problem I was describing since I didn’t experience it in the 24 hour period that I was
wearing the Holter Monitor. I had SVT all my life and in my 50’s I developed AF. I am now free of any rate or rhythm problems after a successful PVA (pulmonary vein ablation). I also had a standing order for an EKG so I could walk into a lab or hospital and have an EKG when I was experiencing symptoms. It sounds like your EKG showed no rhythm or rate disturbances. If you get these episodes once or twice a day, I am assuming that when you wore the monitor you could hit the “episode button” and then record your symptoms. Did this happen the two times you wore the monitor? If you were symptom free during those two times, it would seem to make sense to ask for a monitor that you can wear for a week or two to ensure that you can document the problem. What do you think?
Martishka

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Thanks JMS,

I agree, it’s all starting to make sense now, the only thing bothering me is how come out of all these tests that were done none of these Dr.’s came to the same conclusion ?

Liked by hjlucchi

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@elizamail

I haven’t had a chance to read all the emails. BUT – has your thyroid been checked and if you are drinking fluoride at all, it affects your thyroid.

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Yes my thyroid was checked, it’s normal too, everything is starting to point to my kidney stones that I’ve had for almost a year now that won’t pass, I believe they’re starting to affect my kidneys in not excreting potassium correctly.

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@martishka

Hi Mikeyp,
You say that the doctors cannot find anything wrong even though you have had several tests. I have a question about the two
24 hour Holter monitors that you had. I am assuming that when you were wearing the monitors you did not experience an “episode”
and that your heart was in normal sinus rhythm. I am wondering why you don’t try a two week monitor or month long monitor. I have had both
since my electrophysiologist could not “see” the problem I was describing since I didn’t experience it in the 24 hour period that I was
wearing the Holter Monitor. I had SVT all my life and in my 50’s I developed AF. I am now free of any rate or rhythm problems after a successful PVA (pulmonary vein ablation). I also had a standing order for an EKG so I could walk into a lab or hospital and have an EKG when I was experiencing symptoms. It sounds like your EKG showed no rhythm or rate disturbances. If you get these episodes once or twice a day, I am assuming that when you wore the monitor you could hit the “episode button” and then record your symptoms. Did this happen the two times you wore the monitor? If you were symptom free during those two times, it would seem to make sense to ask for a monitor that you can wear for a week or two to ensure that you can document the problem. What do you think?
Martishka

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I know! I was thinking about you this morning and how bizarre this all is. You really do have a great attitude. By now the Drs. Should be connecting dots and seeing the bigger picture, which involves your kidneys! I learned alot about nutrition and foods for healing from Linda Page’s “Healthy Healing,” and also the Balch book “Prescription for Nutritional Healing.” They may not give you specifics for your odd situation, but you will get great info re electrolytes, suppplements, what can correct imbalances. I refer to both books often. I also love Louise Hay’s book “You Can Heal Your Life.” Again, may not give you specifics, but she lists fascinating metaphysical causes for health “dis-ease” (get it? Lack of ease!). You seem to value good information, which is terrific! I’ve had kidney issues related to lung and heart damage, and really learned alot about foods and nutrients. It’s ALL connected! It would be great if you could get to someplace like the Mayo and see a top cardiologist, who would then make the right connections for you. : )

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I am an “old”RN and researched magnesium a couple of years ago. Magnesium Chloride is the best and comes in oral tablets but is hard to find and nasty to swallow if it stays on your tongue! I use a spray that is easy to make from Magnesium Chloride flakes that i order from Swanson. Most of us are deficient in Magnesium. Google Magnesium deficiency. It will be an interesting read. Hope this helps.

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@kareniowa

I am an “old”RN and researched magnesium a couple of years ago. Magnesium Chloride is the best and comes in oral tablets but is hard to find and nasty to swallow if it stays on your tongue! I use a spray that is easy to make from Magnesium Chloride flakes that i order from Swanson. Most of us are deficient in Magnesium. Google Magnesium deficiency. It will be an interesting read. Hope this helps.

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i think the citrate is better.

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Get them dissolved or try the Stone Buster whioch uses sound waves.The technical name is ?

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@ujeeniack

Get them dissolved or try the Stone Buster whioch uses sound waves.The technical name is ?

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Lithotripsy.

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@mikeyp, this discussion is a prime example of problem-solving with the community (jargon term is crowdsourcing). When is your next doctor’s appointment? And with which specialty?
I think we’ll all be interested if a) some of our thoughts and speculations are well founded and b) how you physician reacts to where you got your information. I hope you’ll report back.

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It also edifies the wonderful fact that we are all connected, and that by turning to others for support, one can simply receive it! : )

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My pleasure Colleen! Thank you for overseeing all of us LOL : )

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@predictable

@mikeyp, your magnesium deficiency suggests that you might have a kidney problem — or a dysfunctional hormone generator such as thyroid or adrenal gland. You might consider asking a nephrologist and an endocrinologist for their diagnoses. My problem was resolved in that way; I had potassium deficiency that cardiologists, internists, and another nephrologist decided was “essential” and of unknown cause or importance. My second nephrologist cared about finding both primary and secondary causes and enlisted an endocrinologist in the search. Together, they found an inherited kidney dysfunction (Liddle Syndrome) that let the potassium get away but gave lab results of a fake (“pseudo”) hormone condition. My mystery and yours seem familiar, and I hope you find the answer soon.

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Teresa: Thank you for the info. I’ll follow up with my cardiologist. The metoprolol makes me fatigued. I can’t take the Dltiaz ER either. It gives me higher BP and a pounding heart.

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@predictable

@mikeyp, your magnesium deficiency suggests that you might have a kidney problem — or a dysfunctional hormone generator such as thyroid or adrenal gland. You might consider asking a nephrologist and an endocrinologist for their diagnoses. My problem was resolved in that way; I had potassium deficiency that cardiologists, internists, and another nephrologist decided was “essential” and of unknown cause or importance. My second nephrologist cared about finding both primary and secondary causes and enlisted an endocrinologist in the search. Together, they found an inherited kidney dysfunction (Liddle Syndrome) that let the potassium get away but gave lab results of a fake (“pseudo”) hormone condition. My mystery and yours seem familiar, and I hope you find the answer soon.

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jiggle, No I take one am and one pm. At first there were a few other side affects. I’ve gotten past the others.

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@jms7

My pleasure Colleen! Thank you for overseeing all of us LOL : )

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When I first signed up for Mayo conversations
there were catagories of diseases and illnesses.  How do I bring
these up again so I can click on one that interests me? 
Thanks.  jojogorilla

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@colleenyoung

@mikeyp, this discussion is a prime example of problem-solving with the community (jargon term is crowdsourcing). When is your next doctor’s appointment? And with which specialty?
I think we’ll all be interested if a) some of our thoughts and speculations are well founded and b) how you physician reacts to where you got your information. I hope you’ll report back.

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Hi Colleen,

Believe it or not but I don’t have another cardiologist appointment at all, after meeting with the last one ( number 6 ) he said ” We can’t find anything wrong with you to why you get these ” so no more cardiologists I guess. I do have an appointment with my urologist on Friday to see what is this ” discomfort ” in my kidneys, I think I STILL have kidney stones, I had 5 in one and 6 in the other and to my knowledge they never passed. The urologist didn’t want to do lithotripsy because he said the y were too small and should pass on their own, I think I may have even more now.

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