Sorry for the late response!
I first started seeing mayo in phoenix in Dec!
I was told or diagnosed with HCM with severe LVOTO
I was told by dr Alsidawi that a lot of facilities say they can do septal myectomy but do not believe them! there are only a few surgeons in the world that can do this surgery effectively and 2 of those surgeons are in Rochester!
He put me on camzyos to get me feeling better while awaiting surgery!
My surgery is being planned for early summer!
The Camzyos has definitely made a difference for me but i still have provoked obstruction
After going into my 3rd month of camzyos.
Initial gradient was 122mmHg
After 3 weeks of camzyos it is and has maintained 38mmHg
Hope this helps
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Welcome to Mayo Connect @anonymousanonymous , I like your online name.
How are you doing after you septal myectomy in PA? How is your HCM?
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1 ReactionSorry for the late response!
I first started seeing mayo in phoenix in Dec!
I was told or diagnosed with HCM with severe LVOTO
I was told by dr Alsidawi that a lot of facilities say they can do septal myectomy but do not believe them! there are only a few surgeons in the world that can do this surgery effectively and 2 of those surgeons are in Rochester!
He put me on camzyos to get me feeling better while awaiting surgery!
My surgery is being planned for early summer!
The Camzyos has definitely made a difference for me but i still have provoked obstruction
After going into my 3rd month of camzyos.
Initial gradient was 122mmHg
After 3 weeks of camzyos it is and has maintained 38mmHg
Hope this helps