Debra, Volunteer Mentor | @karukgirl | Feb 21 9:49am
https://www.mayoclinic.org/biographies/barrus-bryan-m-d/bio-20566304
Hi @mbi, I was able to find the above cardiac surgeon on the Mayo Clinic site who practices in Arizona, and lists septal myectomy as an area of focus among many others.
I have always been led to believe that Mayo Rochester is the COE (Center of Excellence) for septal myectomies.
Have you had contact with Mayo Arizona? Is this where you have been referred?
https://www.mayoclinic.org/biographies/barrus-bryan-m-d/bio-20566304
Hi @mbi, I was able to find the above cardiac surgeon on the Mayo Clinic site who practices in Arizona, and lists septal myectomy as an area of focus among many others.
I have always been led to believe that Mayo Rochester is the COE (Center of Excellence) for septal myectomies.
Have you had contact with Mayo Arizona? Is this where you have been referred?
Thank you for responding.
I went to Mayo Phoenix for my tests and the Dr I saw at Mayo Phoenix recommended that I go to Mayo in Minnesota. I have my final follow up appointment on Tuesday. When I had my angiogram Jan 17th, the Dr asked me why I would go to Minnesota when they had a HCM department in Phoenix.
Thank you for responding.
I went to Mayo Phoenix for my tests and the Dr I saw at Mayo Phoenix recommended that I go to Mayo in Minnesota. I have my final follow up appointment on Tuesday. When I had my angiogram Jan 17th, the Dr asked me why I would go to Minnesota when they had a HCM department in Phoenix.
I believe Rochester does more septal myectomies than any other facility. I am glad you were sent to Rochester! Come back and let us know how your appointment goes on Tuesday.
A septal myectomy is such a precise surgery and the hands performing it need skill and experience.
Lots of experience!
The open heart surgery portion is pretty routine for any heart surgery, it is the septal myectomy that counts in this open heart surgery.
I am so grateful I listened to my inner voice. I was referred to our local heart surgeon for what my cardiologist believed I had. A rare condition called Sub-Aortic Membrane. If it is so rare, I wondered, how much experience did the local guy have? I asked to be referred to two top places. One in California where I live and the Mayo Clinic. I chose the Mayo, even though it was across the Country because I knew they knew what they were doing! And I didn't have the rare condition...I had HOCM! So glad I listened!!
I believe Rochester does more septal myectomies than any other facility. I am glad you were sent to Rochester! Come back and let us know how your appointment goes on Tuesday.
A septal myectomy is such a precise surgery and the hands performing it need skill and experience.
Lots of experience!
The open heart surgery portion is pretty routine for any heart surgery, it is the septal myectomy that counts in this open heart surgery.
I am so grateful I listened to my inner voice. I was referred to our local heart surgeon for what my cardiologist believed I had. A rare condition called Sub-Aortic Membrane. If it is so rare, I wondered, how much experience did the local guy have? I asked to be referred to two top places. One in California where I live and the Mayo Clinic. I chose the Mayo, even though it was across the Country because I knew they knew what they were doing! And I didn't have the rare condition...I had HOCM! So glad I listened!!
I was discharged after five days in-house, and was cleared to fly the next day. I chose to stay a few days longer because I was afraid to leave. I was fine...just needed a little extra hand-holding. Arizona would DEFINITELY be a long drive!!!
This information may be helpful:
Thank you for the information. We will definitely be flying, but wasn’t sure if I had to do rehab following a septal myectomy.
Did you need to do rehab? If so, how long?
Thank you for the information. We will definitely be flying, but wasn’t sure if I had to do rehab following a septal myectomy.
Did you need to do rehab? If so, how long?
Mbi, I ditto Debra's words. My cardiologist suggested Mass Gen and Mayo, I picked Mayo hands down. I live in Upstate NY, we drove, 2 days, there happened to be many flight problems at that time, worried about missing the preop appointments. We left for home the morning after discharge (5 nights in hospital), home a week after surgery (we were amazed). As Debra wrote, the concierge services are great, used their list to find a hotel a short walk from St Mary's, the place you will be. I did not know at the time that they helped with flights. Rehab starts the day after surgery with walking and sitting in a chair. I had always been an active person, so I was walking outside the day after we got home. Cardio rehab started 6 weeks after - lack of available appointments, doctor wanted me there at the 2 week mark. Went to my gym, the owners had worked in cardio rehab. By the time I did go to the official place, I did not need to continue there. Everyone is different, you will be well cared for and guided every step of the way.
I believe Rochester does more septal myectomies than any other facility. I am glad you were sent to Rochester! Come back and let us know how your appointment goes on Tuesday.
A septal myectomy is such a precise surgery and the hands performing it need skill and experience.
Lots of experience!
The open heart surgery portion is pretty routine for any heart surgery, it is the septal myectomy that counts in this open heart surgery.
I am so grateful I listened to my inner voice. I was referred to our local heart surgeon for what my cardiologist believed I had. A rare condition called Sub-Aortic Membrane. If it is so rare, I wondered, how much experience did the local guy have? I asked to be referred to two top places. One in California where I live and the Mayo Clinic. I chose the Mayo, even though it was across the Country because I knew they knew what they were doing! And I didn't have the rare condition...I had HOCM! So glad I listened!!
A thought: I wonder if the doctor in Phoenix who asked why go to Rochester was fully aware of the actual surgeries performed in Phoenix. There are many cardiologists well versed in septal myectomies but do not perform surgeries.
A thought: I wonder if the doctor in Phoenix who asked why go to Rochester was fully aware of the actual surgeries performed in Phoenix. There are many cardiologists well versed in septal myectomies but do not perform surgeries.
Connect
Connect
Like
Helpful
Hug
https://www.mayoclinic.org/biographies/barrus-bryan-m-d/bio-20566304
Hi @mbi, I was able to find the above cardiac surgeon on the Mayo Clinic site who practices in Arizona, and lists septal myectomy as an area of focus among many others.
I have always been led to believe that Mayo Rochester is the COE (Center of Excellence) for septal myectomies.
Have you had contact with Mayo Arizona? Is this where you have been referred?
Thank you for responding.
I went to Mayo Phoenix for my tests and the Dr I saw at Mayo Phoenix recommended that I go to Mayo in Minnesota. I have my final follow up appointment on Tuesday. When I had my angiogram Jan 17th, the Dr asked me why I would go to Minnesota when they had a HCM department in Phoenix.
-
Like -
Helpful -
Hug
1 ReactionI believe Rochester does more septal myectomies than any other facility. I am glad you were sent to Rochester! Come back and let us know how your appointment goes on Tuesday.
A septal myectomy is such a precise surgery and the hands performing it need skill and experience.
Lots of experience!
The open heart surgery portion is pretty routine for any heart surgery, it is the septal myectomy that counts in this open heart surgery.
I am so grateful I listened to my inner voice. I was referred to our local heart surgeon for what my cardiologist believed I had. A rare condition called Sub-Aortic Membrane. If it is so rare, I wondered, how much experience did the local guy have? I asked to be referred to two top places. One in California where I live and the Mayo Clinic. I chose the Mayo, even though it was across the Country because I knew they knew what they were doing! And I didn't have the rare condition...I had HOCM! So glad I listened!!
-
Like -
Helpful -
Hug
3 ReactionsHow long did you need to stay there before you could fly home?
I live in Arizona, so too far to drive.
I was discharged after five days in-house, and was cleared to fly the next day. I chose to stay a few days longer because I was afraid to leave. I was fine...just needed a little extra hand-holding. Arizona would DEFINITELY be a long drive!!!
This information may be helpful:
Mayo Clinic Concierge Services https://www.mayoclinic.org/patient-visitor-guide/minnesota/concierge-services
Concierge services are complimentary and available in person or by phone, live chat, email or online form.
In person:
Concierge Services desk
Mayo Building (lobby level, in the International Center)
Monday-Friday: 8 a.m. to 5 p.m.
No appointment necessary
By phone 7 a.m. to 6 p.m., Monday-Friday: 507-538-8438
Email: concierge@mayo.edu
Online form: http://cdforms.mayoforms.org/mayocliniccom-ahbyn/pages/c9d36544cef4e41180d800155dcfc10f.html
Thank you for the information. We will definitely be flying, but wasn’t sure if I had to do rehab following a septal myectomy.
Did you need to do rehab? If so, how long?
-
Like -
Helpful -
Hug
1 ReactionMbi, I ditto Debra's words. My cardiologist suggested Mass Gen and Mayo, I picked Mayo hands down. I live in Upstate NY, we drove, 2 days, there happened to be many flight problems at that time, worried about missing the preop appointments. We left for home the morning after discharge (5 nights in hospital), home a week after surgery (we were amazed). As Debra wrote, the concierge services are great, used their list to find a hotel a short walk from St Mary's, the place you will be. I did not know at the time that they helped with flights. Rehab starts the day after surgery with walking and sitting in a chair. I had always been an active person, so I was walking outside the day after we got home. Cardio rehab started 6 weeks after - lack of available appointments, doctor wanted me there at the 2 week mark. Went to my gym, the owners had worked in cardio rehab. By the time I did go to the official place, I did not need to continue there. Everyone is different, you will be well cared for and guided every step of the way.
A thought: I wonder if the doctor in Phoenix who asked why go to Rochester was fully aware of the actual surgeries performed in Phoenix. There are many cardiologists well versed in septal myectomies but do not perform surgeries.
-
Like -
Helpful -
Hug
1 ReactionThank you for replying.
I hope to have more information on Tuesday.
-
Like -
Helpful -
Hug
2 ReactionsNope, but I had one in Allentown, Pa. The LVHN facility in June of 2019...