Scoliosis - Introduce yourself and meet others

Posted by Justin McClanahan @JustinMcClanahan, Apr 25, 2017

Let’s talk about living with scoliosis.
As a community moderator of the Bones, Joints & Muscles and Spine Health groups, I’ve noticed several members talking about scoliosis, but those discussions were scattered throughout the community. I thought I would start this discussion to bring us all together in one place.

Get comfortable in your favorite spot, grab a beverage of your choice, and let’s chat. Why not start by introducing yourself?

I was born with a number of health issues, including scoliosis, hip dysplasia, deformed left leg, and hole in my heart. I have functioned quite well but the last two years have much more pain ftom hips and back. I turned 60 this summer. I have weekly massage and physio, as well as chiropractor treatments every two or three weeks.

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Oh dear it's rotten getting older!
You sound like you have the right attitude towards keeping yourself in the hands of the experts….I haven't any magic answer but keep talking to us as it always helps to talk to people that suffer themselves and understand……Beryl

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Hi, I am Polly. I am 55 and have been dealing with scoliosis for the past 6 years, although my doc feels I have probably had it since I was a child. I have a severe S curve in the lumbar spine along with a twist at the L3-4 junction. In addition, I have arthritis throughout, disc degeneration and bulging discs at all lumbar levels. Previous to my career as a teacher, I worked as an active electrician in construction for many years. I have thus far avoided surgery by doing PT and staying as active as possible. I have done back injections but they help very little and my doctor is starting to push me to consider surgery since my pain levels have begun to increase. My biggest issue is I work FT and am a caregiver to my husband who has stage 4 cancer. It is really not a viable option for me at this time to have the time to take off for a long recovery. I have done a little research that perhaps yoga would help. I thought perhaps if someone knows a good video on yoga that would be safe for me to do without damaging my back further and would allow me to do it at home. I work about 50-60 hours/week and need to be home with my husband the rest of the time. Any thoughts?

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@polly38

Hi, I am Polly. I am 55 and have been dealing with scoliosis for the past 6 years, although my doc feels I have probably had it since I was a child. I have a severe S curve in the lumbar spine along with a twist at the L3-4 junction. In addition, I have arthritis throughout, disc degeneration and bulging discs at all lumbar levels. Previous to my career as a teacher, I worked as an active electrician in construction for many years. I have thus far avoided surgery by doing PT and staying as active as possible. I have done back injections but they help very little and my doctor is starting to push me to consider surgery since my pain levels have begun to increase. My biggest issue is I work FT and am a caregiver to my husband who has stage 4 cancer. It is really not a viable option for me at this time to have the time to take off for a long recovery. I have done a little research that perhaps yoga would help. I thought perhaps if someone knows a good video on yoga that would be safe for me to do without damaging my back further and would allow me to do it at home. I work about 50-60 hours/week and need to be home with my husband the rest of the time. Any thoughts?

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Hi Polly-
I too have scoliosis.i was diagnosed in 2006 and today I’m 66. I’ve had 2 lumbar surgeries & returned to work in 6 weeks post surgery. It was difficult. I was told yoga was not a good choice but Pilates is. Lots of stretching. It helps me.
I wish you & your husband the best.

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@polly38

Hi, I am Polly. I am 55 and have been dealing with scoliosis for the past 6 years, although my doc feels I have probably had it since I was a child. I have a severe S curve in the lumbar spine along with a twist at the L3-4 junction. In addition, I have arthritis throughout, disc degeneration and bulging discs at all lumbar levels. Previous to my career as a teacher, I worked as an active electrician in construction for many years. I have thus far avoided surgery by doing PT and staying as active as possible. I have done back injections but they help very little and my doctor is starting to push me to consider surgery since my pain levels have begun to increase. My biggest issue is I work FT and am a caregiver to my husband who has stage 4 cancer. It is really not a viable option for me at this time to have the time to take off for a long recovery. I have done a little research that perhaps yoga would help. I thought perhaps if someone knows a good video on yoga that would be safe for me to do without damaging my back further and would allow me to do it at home. I work about 50-60 hours/week and need to be home with my husband the rest of the time. Any thoughts?

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Hi Polly,
I am 61 and have had scoliosis since I was 16. What works for me is Taoist Tai Chi, which I have bee doing regularly for 10 years. I am now virtually pain free.

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@jax0673

Hello. I’m Jackie… live in Canada. Finding in my “old”age now: more and more back issues…. trying to determine if it’s from my scoliosis: or if it’s other causes etc…. and looking for ideas or proactive solutions from others going through similar experiences

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Tai Chi!

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Hello @spinalstenosis @jax0673 @pennylg @polly38 and @palgravecharlie,

I'm delighted to welcome you all to Connect. For a start, I'm tagging Mentor @gailb who recently wrote about Hatha Yoga in the Chronic Pain group; you can view her post here:
https://connect.mayoclinic.org/discussion/welcome-please-introduce-yourself-welcome-to-the-new-chronic-pain-group-im/
I also found a recently published study that might interest you; the study discusses the benefits of practicing Tai Chi as therapy for many chronic pain conditions, including severe scoliosis: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4850460/

I was wondering if anybody had some thoughts on other complimentary therapies, such as acupuncture, for scoliosis?

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@kanaazpereira

Hello @spinalstenosis @jax0673 @pennylg @polly38 and @palgravecharlie,

I'm delighted to welcome you all to Connect. For a start, I'm tagging Mentor @gailb who recently wrote about Hatha Yoga in the Chronic Pain group; you can view her post here:
https://connect.mayoclinic.org/discussion/welcome-please-introduce-yourself-welcome-to-the-new-chronic-pain-group-im/
I also found a recently published study that might interest you; the study discusses the benefits of practicing Tai Chi as therapy for many chronic pain conditions, including severe scoliosis: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4850460/

I was wondering if anybody had some thoughts on other complimentary therapies, such as acupuncture, for scoliosis?

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I want to say thank you to those of those giving input on Scoliosis. I asked a specialist about suggestions and was discharged as at my age (67) there is nothing can be done. I have not posted here as I know so very little myself. I do some Tai Chi, some Yoga. I have tried to find some type of support group or groups teaching what I mentioned. I also have fibromyalgia and do share there at times.
I have become discouraged trying to motivate myself and the feeling of not going any where other than further into pain…not meaning to sound pathetic.

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@parus

I want to say thank you to those of those giving input on Scoliosis. I asked a specialist about suggestions and was discharged as at my age (67) there is nothing can be done. I have not posted here as I know so very little myself. I do some Tai Chi, some Yoga. I have tried to find some type of support group or groups teaching what I mentioned. I also have fibromyalgia and do share there at times.
I have become discouraged trying to motivate myself and the feeling of not going any where other than further into pain…not meaning to sound pathetic.

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Parus your not pathetic we all feel like we are the on ly ones having this pain it is hard to find a sympathetic ear sometimes but we are here for you to vent . Scoliosis is hard for older people All you can do is keep trying to be the best person you can be We all love your pictures you paint .Just keep on ,keeping on thats all we can do What did St Francis say change what you can,accept what you cant and know the difference I think accepting is the difficult to do .

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Netta, 76 yrs of age. Scoliosis diagnosed at 60yrs of age. Since the diagnosis, Pilates 1 or 2x’s wk has been very helpful. So far, no pain meds except naproxen. Hoping I can keep surgery at bay for my life time.

Liked by lioness

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Hello everyone,

It’s time to open a new group dedicated to Spine Health. All discussions related to spine health, such as back pain, brachial plexus, disc degeneration, scoliosis, spondylolysis, stenosis, spondylopathy and more can now be found in the Spine Health here, https://connect.mayoclinic.org/group/spine-health/.

+Follow the Spine Health group and continue to connect with others and share your experiences, ask questions and encourage each other on your health journey.

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@oliviab

I am a 75 year old female with untreated lumbar scoliosis. I am told my curvature is 37
degrees. At present I am taking medication for pain which enables me to still take care of my yard, garden and dogs. The worst pain (right sided ribs and lower lumbar) stays about 3-8 on the pain scale. I would love to connect to others with this condition.

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I am 64 with idiopathic scoliosis that wasn’t discovered until 3 years ago. I have an S curve with a 22 degree curve in the thoracic spine and a 33 degree curve in the lumbar spine. I rely on a small TENS unit, ice, and core exercises to manage the pain.

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@ldawn

I am 64 with idiopathic scoliosis that wasn’t discovered until 3 years ago. I have an S curve with a 22 degree curve in the thoracic spine and a 33 degree curve in the lumbar spine. I rely on a small TENS unit, ice, and core exercises to manage the pain.

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ldawn, the exercises helped me for a while and I was able to continue riding and caring for my horse. As it progressed to 37 degrees I had to give up that life long passion. That was devistating to me and worse to handle than the pain.

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@oliviab

ldawn, the exercises helped me for a while and I was able to continue riding and caring for my horse. As it progressed to 37 degrees I had to give up that life long passion. That was devistating to me and worse to handle than the pain.

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I understand; giving up what we love to do is hard. Can you be involved with horses in another way, like a 4 H program? Have your doctors suggested anything besides medication?

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I am a 75 year old female with untreated lumbar scoliosis. I am told my curvature is 37
degrees. At present I am taking medication for pain which enables me to still take care of my yard, garden and dogs. The worst pain (right sided ribs and lower lumbar) stays about 3-8 on the pain scale. I would love to connect to others with this condition.

REPLY
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