Scoliosis - Introduce yourself and meet others
Let's talk about living with scoliosis.
As a community moderator of the Bones, Joints & Muscles and Spine Health groups, I've noticed several members talking about scoliosis, but those discussions were scattered throughout the community. I thought I would start this discussion to bring us all together in one place.
Get comfortable in your favorite spot, grab a beverage of your choice, and let's chat. Why not start by introducing yourself?
Interested in more discussions like this? Go to the Spine Health Support Group.
Lollypop,
Thank you for the advice. Will try the walk one more minute and see if I can do better than 900 steps. Have gotten several ideas to try from this group. I felt so alone this summer. Leslie324
Jo54,
Thank you for your support. I am 75 but have been told I am in good physical shape except for bone and joint issues. I have 2 replaced knees and can do anything I want now involving knees It's just the back that's slowing me down. Will try several ideas from this discussion group. Leslie324
I have that same 5lb swing.. eat nothing and up it goes. I hogged into a bag of licorice allsorts the other day and stood on the scales to find I had actually lost another 2 lb.. [dont worry it will find me] And knowing that there are others with twisting silly spines, I attacked the fallen branches out in my farmlet and had a good burn up.. Oh gosh it was past grumpy last night could hardly walk to get the last hot drink for the night, and getting out of bed this morning was a sight to behold. !! But I feel good,for the achievment, just going to walk a little funnily for the first part of the day.
It is tough on the muscle structure as they need balance, and when the foundation of the skeleton isnt straight, they have to carry that stress of forcing it. to move in a semblance of balance
You are so right! Our bodies are lopsided. You also raise a major point we need to remember. A sense of humor is a huge coping tool! Thanks for reminding me. Licorice allsorts aren't bad either! Hope that 2 lbs never finds you. Leslie
I have the sciatica and the spinal stenosis, but not the scoliosis; therefore, I'm not sure my comment will help. I'm 78 and in the last four months, the pain increased to the point where I could barely walk and could only sleep in one position on my left side. My physical theorists forbid any unnecessary walking, but encouraged me to ride a bike, which has truly been a lifesaver!! Don't know if scoliosis prevents bike-riding, but note no one mentions it.
My husband just had surgery for sciatic, stenosis and bulging disc's. It's been 7 months since surgery and he is finally feeling better. I have scoliosis. I broke my tailbone dilivering both of my children- therefore, riding a bike is painful for me. Yet, I would think that would be a good way to excercize. Thanks for sharing @trishanna.
@JustinMcClanahan thanks for starting this group. I'm lillgrizz and you will see me all throughout this site. I'm so glad I found it. I suffer from so many health issues it really gets me down. but I'm already seeing that by discussing things that others can relate to is going to be therapeutic. Wish I would have found this site a long time ago. I was first diagnosed with scoliosis in 2nd grade and was put into a brace that I wore 20 hours a day. It was called a Milwaukee brace and it had a chin rest on it and pads on the back to hold my head straight up. it had a steal rod in front and 2 in back that all lead down to a very not at all flexible girdle that came to the top of my thighs. I remember the other kids use to call me Frankenstein. So in 2nd grade my scoliosis was so severe I only got out of it long enough to go to swim team practice and shower. And being called Frankenstein sent me home crying a lot of days after school. I wore the brace till I was in 6th grade until they got it down to a 12 degree curve. I remember feeling so free when I got to throw that brace away. and now I am back in one at 50 but luckily it is only for 6 months due to 2 back surgeries. boy I guess I just don't know when to shut up. have a lot more to say but will save some for later, hello to everyone and I look forward to making some new friends and hearing your stories.
I. Had surgery. In. The. 70s. I'm 56 I. Can't. Do. Anything normal. Without. Having. Pain. I'm. My. Right leg. And. My. Back. Feels. Stiff. And. Heavy. My. Harrington. Rod. Is. Broken midsection. And. Hooks seen. At. L4-5and T9-10 I. Am. So. Scared. To. Have. Surgery. Or. Do. Anything. But. I'm. Living. In. Pain. Every. .3. Hours. Or. Do. And. I. Can't. Straighten. Up. Did. Anyone. Have. This. Problem. Please. Let. Me. Know
Sorry to read that you are one of those that have major problems after surgery.
I am presuming you have been offered further surgery to try and replace or fix the broken Harrington rod.
you must be in so much pain that really it would be hard to refuse surgery.
Wishing you all the best
Thank. U. I. Will. Ho. Back. To. The. Dr. Next. Week. I. Have. Been. Putting. Off. Going. Back. To. The. Dr. But. I. Got. To go. Just. Afraid. If. These. Things.