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Scoliosis - Introduce yourself and meet others
Spine Health | Last Active: Jul 20, 2023 | Replies (433)Comment receiving replies
@mertie I agree on the inflammation. I tend to say aggravate but it’s definitely inflammation that becomes a brick on my back. And it feels like my left hip gets everything started if I stand more than 5 minutes. If I do anything I walk like a granny until it calms down. Of course not walking correctly or favoring one side causes other issues but how can you help it? It’s a constant pain but gets worse if I walk or stand. I take a lot of ibuprofen & use my tens unit. I also have a prescription cream for my back but it really doesn’t help me. The nerve meds didn’t help either. It’s just frustrating I can find the spot on my hip that’s hurting but I can’t push down far enough to reach it.
Replies to "@mertie I agree on the inflammation. I tend to say aggravate but it’s definitely inflammation that..."
I would suggest seeing Neurosurgeon, Dr. Jeremy Lee Fogelson at the Mayo Clinic. He is honest and accurately diagnosed me with failed back surgery syndrome. I do not advise rods. My scoliosis rod surgery took 23 hours and I had several complications. I now have radiculopathy, a painful coccyx, my back hurts, my left foot is purple and cold, I have costochondritis, I have ischial tuberosity pain . . . It has been 8 years.
Thank you for posting this. I am trying to decide about proceeding with spinal fusion (c6-7) as well as lumber fusion (L4-L5). Where did you have your back surgery done?
I have never had back surgery but still wound up with flat back syndrome. I’m sure it is from the scoliosis. From what I understand they will be taking a section of my spine out like a wedge to straighten up spine & the rods will help hold in place. I was thankful this doctor actually looked at my back. I have had 8 injections in 9 months & none have helped. Tired of being prodded with no result.
I had mine done at Walter Reed Army medical center in 1974. At that time is was primitive compared to today. The couldn't do anything for you after 18 years old because the spine was considered not flexible. As an adult I am forever grateful someone
could correct my back but as a 14 year old child I was scared, humilated, and ridiculed at school. Things today are some much easier. When I had it done there was only 3 hospitals that treated scoliosis. I wish you all the luck in the world. You will
be glad when it is all done
I'm sorry your ordeal has not been successful for you. I had mine done when I 14 in 1974. I have perfect posture and forget it is even I there. Yes, there are things I cannot do but as everyone with challenges you learn to know the extent of what you
can do and how to make it work for you. My rod is the total length of my spine and I can bend over and touch my toes which is amazing. I am truly sorry for your pain and it is a shame it didn't help you.
My back surgery was done by William J. Shaughnessy at The Mayo Clinic. T10 to L5 was fused. @bernese53
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I went to a neurosurgeon yesterday. He is the first doctor I’ve seen in the past years that ask to look at my back and within 5 minutes of meeting him. However he is the only neurosurgeon the other doctors I’ve seen were orthopedic surgeons. The other doctors only wanted to look at my MRI’s. My new doctor who had already looked at my images & then my back told me I have flatback syndrome. I have never had back surgery it just happened naturally. Having CT’s of neck & lumbar next week. Already know I need surgery but if it’s scoliosis flatback surgery I will need to go to Atlanta for the surgery. If it’s a bone turned up he said he could do that here at the local piedmont hospital but if I need rods he said they can’t do that kind of surgery locally. Any advise? I’m 52 female.