Has anybody had throat cancer with radiation damaged can neck and head with them tightness and pain in neck.? Especially neck spasms and nerve pain in head.
I have , seven months after my radiation ended , my neck is stiff and has limited range of motion , and I cannot swallow , not even spit , whjich means I carry a cup all day in which to spit .
And yes there is pain and stiffness, and my head is starting to droop forward .
I am working with physical therapy a speech therapist .
Best of luck to you .
Forgot to mention I am NED from stage 4 upper esophageal cancer , due mostly I think to on - going keytruda treatments.
My bf had neck/throat cancer about 8 years ago. After major surgery to the throat, neck, and jaw, as well as radiation, he now has a persistent cough that won’t go away and sometimes has trouble with aspiration when eating certain foods. Anyone else suffer with this and what has helped if so?
I have , seven months after my radiation ended , my neck is stiff and has limited range of motion , and I cannot swallow , not even spit , whjich means I carry a cup all day in which to spit .
And yes there is pain and stiffness, and my head is starting to droop forward .
I am working with physical therapy a speech therapist .
Best of luck to you .
Forgot to mention I am NED from stage 4 upper esophageal cancer , due mostly I think to on - going keytruda treatments.
Hi, I had Larynx Cancer, had Hypofractional Rad, twice daily. Was it Rough , Yes, finished Radiation 3/22/22..all looks good but still dealing with Side Effects, now 2 weeks ago my voice totally went Hoarse . Bad..I still have Mucus & A Dry throat..No recurrence as of October 18th, next CT Scan in January 2023, has anyone else had vocal problems, post radiation..I was fine for 4 months , it could be Late effects ..
As for a Feeding tube, I declined it, I did loose 40lbs, but drank alot of Protein..I really should of gotten it, because I spoke to people and they were thankful they got it, infact they were sorry when they took it out..Despite the ups & downs & the treatment being sometimes unbearable, we pull through..and for that I am so grateful..
My bf had neck/throat cancer about 8 years ago. After major surgery to the throat, neck, and jaw, as well as radiation, he now has a persistent cough that won’t go away and sometimes has trouble with aspiration when eating certain foods. Anyone else suffer with this and what has helped if so?
I had cancer twice. 1st was of my left vocal chord, tge 2nd was bade of the tongue and left tonsil. I can't drink anything which causes severe dryness in my throat. I have horrible coughing spells. The ONLY thing that helps me is Mucinex DM which has a green/white label. After taking it, my cough immediately goes away. Amazing medicine. Have your b/f try it. Also, Delsum cold/cough medicine might help. Try those.
Hi, I had radiation on the left side of my throat for HPV+16 Cancer between 23 Jan to 25 March,2017. It has been over 5 years and I continue to have 6 month checkups. They say a year but I said no, every 6 months. Each time
they go down my throat they comment about the PERMANENT SCARRING that I will have. My UW-Madison WI medical team have never suggested nor offered any type of scar removal treatment and trust me, I have plenty. I lost all my lower left teeth from the radiation spray so eating remains a daily routine of eating mushy stuff.
Bottomline, I have learn to live with what I have knowing nothing can be done about it. But I am alive so I
accept the trade off. Good Luck and God Bless
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I have , seven months after my radiation ended , my neck is stiff and has limited range of motion , and I cannot swallow , not even spit , whjich means I carry a cup all day in which to spit .
And yes there is pain and stiffness, and my head is starting to droop forward .
I am working with physical therapy a speech therapist .
Best of luck to you .
Forgot to mention I am NED from stage 4 upper esophageal cancer , due mostly I think to on - going keytruda treatments.
My bf had neck/throat cancer about 8 years ago. After major surgery to the throat, neck, and jaw, as well as radiation, he now has a persistent cough that won’t go away and sometimes has trouble with aspiration when eating certain foods. Anyone else suffer with this and what has helped if so?
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1 ReactionA nasal spray has helped me and also being more aware when I am eating. Talking while eating causes most of my aspirations.
@kecm What type of nasal spray has helped you?
Any of them really. I ran out of my first one and now I am using Flonase.
How long have you had Immunotherapy (Keytruda)?
@kecm thank you so much!!
Hi, I had Larynx Cancer, had Hypofractional Rad, twice daily. Was it Rough , Yes, finished Radiation 3/22/22..all looks good but still dealing with Side Effects, now 2 weeks ago my voice totally went Hoarse . Bad..I still have Mucus & A Dry throat..No recurrence as of October 18th, next CT Scan in January 2023, has anyone else had vocal problems, post radiation..I was fine for 4 months , it could be Late effects ..
As for a Feeding tube, I declined it, I did loose 40lbs, but drank alot of Protein..I really should of gotten it, because I spoke to people and they were thankful they got it, infact they were sorry when they took it out..Despite the ups & downs & the treatment being sometimes unbearable, we pull through..and for that I am so grateful..
-
Like -
Helpful -
Hug
2 ReactionsI had cancer twice. 1st was of my left vocal chord, tge 2nd was bade of the tongue and left tonsil. I can't drink anything which causes severe dryness in my throat. I have horrible coughing spells. The ONLY thing that helps me is Mucinex DM which has a green/white label. After taking it, my cough immediately goes away. Amazing medicine. Have your b/f try it. Also, Delsum cold/cough medicine might help. Try those.
-
Like -
Helpful -
Hug
1 ReactionHi, I had radiation on the left side of my throat for HPV+16 Cancer between 23 Jan to 25 March,2017. It has been over 5 years and I continue to have 6 month checkups. They say a year but I said no, every 6 months. Each time
they go down my throat they comment about the PERMANENT SCARRING that I will have. My UW-Madison WI medical team have never suggested nor offered any type of scar removal treatment and trust me, I have plenty. I lost all my lower left teeth from the radiation spray so eating remains a daily routine of eating mushy stuff.
Bottomline, I have learn to live with what I have knowing nothing can be done about it. But I am alive so I
accept the trade off. Good Luck and God Bless
-
Like -
Helpful -
Hug
1 Reaction