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Sarcoidosis: Kidney Failure because of

Posted by JuneAnn @454june3736, Feb 17, 2024

Has anyone else had kidney failure due to Sarcoidosis?

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JuneAnn | @454june3736 | Jan 12 7:23pm

How nice of you to ask!! I am doing well. Yes, my GFR is now 34% as of Nov. 2024.
No changes in the status of the sarcoidosis.

Thank you again for checkin in on me.

REPLY
1 reply
my44 | @my44 | Jan 12 7:39pm
In reply to @454june3736 "How nice of you to ask!! I am doing well. Yes, my GFR is now 34%..." + (show)
@454june3736

How nice of you to ask!! I am doing well. Yes, my GFR is now 34% as of Nov. 2024.
No changes in the status of the sarcoidosis.

Thank you again for checkin in on me.

Jump to this post

Oh, @454june3736, that's great! I'm so happy for you and the improvement in your GFR. Best wishes and continued good health to you! 💕

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1 reply
JuneAnn | @454june3736 | Jan 12 7:44pm
In reply to @my44 "Oh, @454june3736, that's great! I'm so happy for you and the improvement in your GFR. Best..." + (show)
@my44

Oh, @454june3736, that's great! I'm so happy for you and the improvement in your GFR. Best wishes and continued good health to you! 💕

Jump to this post

Thank you so much!!

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1 reply
my44 | @my44 | Jan 13 5:41am
In reply to @454june3736 "Thank you so much!!" + (show)
@454june3736

Thank you so much!!

Jump to this post

You're welcome. 💕

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JuneAnn | @454june3736 | May 21 1:49pm
In reply to @gingerw "@JuneAnn Here is what Mayo Clinic has to say about sarcoidosis https://www.mayoclinic.org/diseases-conditions/sarcoidosis/symptoms-causes/syc-20350358 As you will read,..." + (show)
@gingerw

@juneann Here is what Mayo Clinic has to say about sarcoidosis https://www.mayoclinic.org/diseases-conditions/sarcoidosis/symptoms-causes/syc-20350358

As you will read, a complication of this disorder can sometimes be abnormal calcium levels, that can lead kidney stones [and progress to kidney issues and/or kidney failure]. Is this something you are dealing with yourself? Are you under treatment for the sarcoidosis? If so, what medications are you taking?
Ginger

Jump to this post

I was diagnosed with sarcoidosis 3 years ago. I had kidney failure due to Sarcoidosis. I just found out that my Sarcoidosis is active again. Tomorrow I will find out the plan is moving forward.

I haven’t been on any medication for it for a years and a half now.
It scares me because I don’t want to go on prednisone again.

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