Rituximab Questions

What is your diagnosis for Rituximab infusions and your dose/schedule?
I did not have it myself, but other patients reported extreme fatigue post infusions, e.g. feeling "wiped out". I did not see comments for how long extreme fatigue may last post infusion, as it is given every 6 months.
Some patients with neurological conditions reported that fatigue was within tolerance limits, and they were willing to stay on the drug, as long as it worked. Quite a few patients reported that it was helpful in RA and in neurological demyelinating conditions.

Thank you for your response.I have been diagnosed with pemphygus vulgaris,
I've been on cellsept then Myfortic. Since february some benefit , but doctor is now considering the infusion. I also have thalassemia intermedia, And current treatment has lowered my hemoglobin considerably , so I am anxious about having something as strong as the infusions , because I am already completely wiped out. My entire treatment, If I Stay on course is only about a month to finish, so I hesitate to get deeper into side effects and fatigue and become anxious.I will not bounce back If I were to step up to the infusion.

@cicimee2 Hi, I’ve been on Rituxan for about 2 years. No side effects(that I remember) and felt super great after the infusion. I will probably be on it for life, unless someone comes up with a cure for my AI. I got Clippers in 2018 and tried everything until I was stable with no signs of disease. (Clippers== chronic lymphocytic inflammation with pontine perivascular enhancement responsive to steroids). No sign of disease means just that. There are no lesions on my brain and I’m stable. If I quit rituxan, the disease will come roaring back, and I don’t want that. I plan to live longer without Clippers! Becky

@becsbuddy
Thank you for writing that is incredibly encouraging. It is not always a good thing to read. The side effects from medications because one never knows if they will be part of your journey or not. And yet, you want to be prepared as if that were even possible.. I'm so glad you have had a good experience.And thank you again for sharing with me.I wish you all the best to continue