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Rituximab Questions

Autoimmune Diseases | Last Active: 2 hours ago | Replies (7)

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Profile picture for Becky, Volunteer Mentor @becsbuddy

@cicimee2 Hi, I’ve been on Rituxan for about 2 years. No side effects(that I remember) and felt super great after the infusion. I will probably be on it for life, unless someone comes up with a cure for my AI. I got Clippers in 2018 and tried everything until I was stable with no signs of disease. (Clippers== chronic lymphocytic inflammation with pontine perivascular enhancement responsive to steroids). No sign of disease means just that. There are no lesions on my brain and I’m stable. If I quit rituxan, the disease will come roaring back, and I don’t want that. I plan to live longer without Clippers! Becky

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Replies to "@cicimee2 Hi, I’ve been on Rituxan for about 2 years. No side effects(that I remember) and..."

@becsbuddy
Thank you for writing that is incredibly encouraging. It is not always a good thing to read. The side effects from medications because one never knows if they will be part of your journey or not. And yet, you want to be prepared as if that were even possible.. I'm so glad you have had a good experience.And thank you again for sharing with me.I wish you all the best to continue