← Return to Rituximab Questions

Discussion
cicimee2 avatar

Rituximab Questions

Autoimmune Diseases | Last Active: May 19 9:50pm | Replies (11)

Comment receiving replies
Profile picture for texasblooms @texasblooms

@altabiznet Definitely relief in joint pain, stiffness, and swelling. After the infusion I felt a lot better within a couple of weeks. I had energy, color in my lips and face, didn’t feel fragile, could easily get out of bed, and lifting was easier. I felt amazing.
Before the shot I found it hard to understand and describe my AI symptoms, the body pain clouded my thoughts. I feel I have more clarity.
My mobility is a much better. I can walk barefoot on the tile floor! Pre-Rituxin I had to wear shoes with thick gummy soles.
Today my pain and stiffness are mild and it’s okay if it worsens. I felt better than I did in years and know I can feel that way again.
I wish I could give you a better answer on mobility but my secondary diseases affect how I walk. The pain, stiffness and swelling is better. I’m very careful and sometimes use a cane.
Practicing self love and respect everyday. Wishing everyone a sense of community and togetherness.

Jump to this post


Replies to "@altabiznet Definitely relief in joint pain, stiffness, and swelling. After the infusion I felt a lot..."

@texasblooms
Thank you for the encouragement.You sound like a strong and courageous person.These tests we go through certainly can bring out qualities\nThat stretch us. My diagnosis of pamphygus vulgaris Has manifested mostly in the mucosa of my mouth . I have been dealing with it for years and was only diagnosed in february. The three month protocol Myfortic Has only brought partial benefit.That is why the doctor is thinking of the infusion. One of my main concerns is that I also have a blood disorder called thalassemia intermedia.\n And the myfortic has lowered my hemoglobin, so I need to get that managed before I can move forward.Otherwise , I don't think I will be able to leave the house and I have lost a lot of life to this already. I am so happy to hear you have had good results from that infusion.Thank you again for writing.

@texasblooms
I am glad you are seeing some improvements in your symptoms with Rituximab. I have similar symptoms of stiffness, need to walk on soft soles, and limited overall mobility. Currently I am on Humira, which is making it a little better, but improvements are gradual - it is an injection every 2 weeks. It takes 12 weeks to see more of a response. I am considering switching to Rituximab in hope for better results.