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Does anyone have a solution to help manage Reclast side effects?

Posted by dingus @dingus, Aug 15, 2024

Does anyone have a solution to combat Reclast side effects. I had the infusion a year and a half ago and the side effects started shortly after I had the infusion. I still have weak legs, swelling in feet, pain in bones, dizziness (serious dizziness), cold sweats, tired all the time and nervous twitching in bones. Any suggestions?

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daisy17 | @daisy17 | 4 hours ago
In reply to @peonies65 "I had my first infusion on 6/15/26, late afternoon. They symptoms woke me up at 2:30..." + (show)
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I had my first infusion on 6/15/26, late afternoon. They symptoms woke me up at 2:30 a.m. on 6/16/26. I could not believe how much it felt like my body was under attack. (relevant info- I've had SLE for 46 years so I am no stranger to medical discomfort/pain and have a very high tolerance).

All of my bones hurt and I started dry heaving. I was that way all day, until about 10:00 p.m., roughly. Tylenol would help a bit, but not nearly enough. I was utterly miserable.

On 6/17/26 I was tired, but only had slight pain. It was over. I will have two more doses 2027 and 2028.

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@peonies65 What did your doctor say about your side effects, which sound pretty severe to me?

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daisy17 | @daisy17 | 3 hours ago
In reply to @jcl75 "@gravity3 Yes. I was perfectly healthy three days before and the symptoms started. Reclast did not..." + (show)
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@gravity3
Yes. I was perfectly healthy three days before and the symptoms started. Reclast
did not cause an autoimmune disease. It caused the inflammation of the arteries, which is an auto immune disease. There are some legitimate studies going on which connects RECLAST and giant cell arteritis

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@jcl75 A few years ago, my doctor suspected I had Giant Cell Arteritis because I was having headaches only on one side of my head. I had an artery biopsy which showed I did not have that disease (it turned out to be fibromyalgia).

Anyway, I was told the treatment for GCA is predinsone, which sometimes must be taken for a year. Sadly, that steroid can worsen osteoporosis. Did you have to go on prednisone?

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