Does anyone have a solution to help manage Reclast side effects?

@peonies65 What did your doctor say about your side effects, which sound pretty severe to me?

@jcl75 A few years ago, my doctor suspected I had Giant Cell Arteritis because I was having headaches only on one side of my head. I had an artery biopsy which showed I did not have that disease (it turned out to be fibromyalgia).

Anyway, I was told the treatment for GCA is predinsone, which sometimes must be taken for a year. Sadly, that steroid can worsen osteoporosis. Did you have to go on prednisone?

@oopsiedaisy please let us know how you continue to feel. Some of us have had bad experiences with this medication and I’m sure it would be nice to hear positive results!

I had my first of three Reclast infusions on June 21, 2026. I wish I'd never had it. A first I had flu like symptons for a week, that I could deal with. Then the joint pain started. At first it was my rt knee and left hip . but then it became all my joints. My shoulders, neck, knees, hips and feet. Now 6 weeks later I'm still in constant pain, sometimes very severe. So I'm wondering how long this will last? Does Reclast have any suggestions to relieve it. I can't seem to find any answers from my doctors. is there any way of getting an answer from the drug manufacturers. They seem to keep themselves hidden. I was fine, able to walk and do my daily routine, but now I can't. If I'm able to walk, it is very slowly because of the pain.

@carolgrandma I see that you expressed, “ first of three”. It is my suggestion that you decline any additional Reclast infusions unless your endocrinologist can provide you with the answer you seek! I am a 69 year old male who received his first and last infusion two plus years ago. Much like you, I was quite physical and had your normal aches and pains. After the infusion I too had flu like symptoms at first and after about a week, bang ‼️ shoulders, left foot, vision, lower back, hips, weak muscles and nausea to mention just a few. My Endocrinologist said, “ this is not from the infusion “ and suggested I see a rheumatologist, who suggested I see a Neurologist who suggested I see my Endocrinologist. No one can explain my symptoms! I’ve been going to physical therapy bi-weekly since my infusion. Three suggestions! Look up Reclast infusion and potential side effects, contact FDA to report your symptoms and take care of yourself! I apologize for not having better answers and should you find a solution I would truly appreciate your feed back!

@carolgrandma May I ask how you prepared for the infusion?

I’m about to start first reclast in about a mo. I just stopped Evenity for 12 mo. After reading most posts on here it has me very nervous to take. Has anyone had a good experience? I was told if I don’t continue treatment I will lose all that was gained this past year. I can’t take oral pills. Please help!!!!

@debafitz

May I ask how old you are?

@debafitz I just received my second Reclast infusion, and so far so good. I did very well last year after the first and attribute that to this website and the suggestions made here, as well as the info from my endocrinologist. I began hydrating well a few days before the infusion, day of, and a couple days after. I also started 650 mg of Tylenol after each meal a couple days before, day of, and the day after. In addition I took a Claritin the day before, day of, and day after. All of these help to minimize the chance of an acute phase reaction. The only "strange" thing I had happen within this past year is acute lower back and thigh pain out of the blue in May...10 months after the first infusion. It required steroids, muscle relaxants, and pain meds for 5 days. We still aren't sure if that was possibly a delayed reaction to the infusion. I may have over done it working with weights but honestly can't remember. It will be interesting to see if I experience anything like that again. I cannot take Forteo or Tymlos, and the endo won't suggest Prolia because my sister had a terrible reaction to it. So Reclast is it for me unless some new promising drug surfaces.

@carolgrandma I am experiencing similar effects that I can only attribute to Reclast - a week of flu like symptoms followed by constant pain in my joints from head to toe. Taking ibuprofen or acetaminophen has little to no effect. My doctor says this will subside over time, but I will refuse this drug in the future due to the negative impact it is having on the quality of my day to day life. I have also had increased hair loss well beyond what is normal for me. Had I known this would be my daily battle before agreeing to the infusion, I would have refused it. Best wishes for all who are experiencing negative effects.