Does anyone have a solution to help manage Reclast side effects?

Posted by dingus @dingus, Aug 15, 2024

Does anyone have a solution to combat Reclast side effects. I had the infusion a year and a half ago and the side effects started shortly after I had the infusion. I still have weak legs, swelling in feet, pain in bones, dizziness (serious dizziness), cold sweats, tired all the time and nervous twitching in bones. Any suggestions?

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Profile picture for cherio @cherio

@cathymal

just had my first reclast infusion 5 days ago - within 24 hours pain was also absolutely unbearable from toes to ears - nothing touched or relieved it! I was moved from T;ylmos to Fortero with significant side effects and was encouraged to do Reclast. My bad that I did not research - As of today 5 days after infusion am still in significan pain and can barely move my neck - grateful that body bone pain is gone but terrified it may return - I will not get this done again. If they they call this reaction flu like symptoms it is NOT and it appears enough of us have similar experience.
Share this with as many as possible before they get an infusion! I am 81 and no sissy with pain - just saying we are not being fully informed.

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@cherio Thank you for your post. I have read about so many people who have had such horrible side effects from taking the Reclast infusion and I totally agree with you regarding how we are not being fully informed. I am 75 years old and after being on Tymlos for 2 years, my doctor wants me to take the Reclast infusion next. After reading your post, I know for sure now that I will not get the Reclast infusion!!! This is my body and my decision.

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Profile picture for nana50 @nana50

@cherio Thank you for your post. I have read about so many people who have had such horrible side effects from taking the Reclast infusion and I totally agree with you regarding how we are not being fully informed. I am 75 years old and after being on Tymlos for 2 years, my doctor wants me to take the Reclast infusion next. After reading your post, I know for sure now that I will not get the Reclast infusion!!! This is my body and my decision.

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@nana50

Is it possible that fosomax/alendronate would work for you.?

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