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Does anyone have a solution to help manage Reclast side effects?

Posted by dingus @dingus, Aug 15, 2024

Does anyone have a solution to combat Reclast side effects. I had the infusion a year and a half ago and the side effects started shortly after I had the infusion. I still have weak legs, swelling in feet, pain in bones, dizziness (serious dizziness), cold sweats, tired all the time and nervous twitching in bones. Any suggestions?

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annar | @annar | 9 hours ago
In reply to @lwmarcrum "Hi - I had Reclast over a year ago and have had pain and fatigue ever..." + (show)
@lwmarcrum

Hi - I had Reclast over a year ago and have had pain and fatigue ever since, as well as occasional dizziness. My symptoms are being treated as fibromyalgia, as all neurological and rheumatologic tests came back negative. I’ve tried steroids and gabapentin for the pain and am now on Lyrica. Life as I knew it is over, unfortunately, as I’ve gone from being physically active and working to having to stop work and just managing pain and fatigue. I’ve done a round of TMS, which helped somewhat, and am about to try acupuncture.

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I understand what you’re going. I feel like different person too. Reclast is an awful poison.

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dannyandebbie | @dannyandebbie | 9 hours ago
In reply to @annar "4 months for me of awful side effects. Looks like it lasts a while" + (show)
@annar

4 months for me of awful side effects. Looks like it lasts a while

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Well, hopefully for you it don’t but like I said, 10 months and still hurts like the dickens at times. I try my best to try and not think about it but there are times that it takes control and tries to limit my activities. Not looking forward to having to mow my lawn with a push mower but will do my best! Good luck to you!

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dannyandebbie | @dannyandebbie | 8 hours ago
In reply to @annar "I understand what you are going through. I also had awful side effects from Reclast and..." + (show)
@annar

I understand what you are going through. I also had awful side effects from Reclast and it’s been 4 months and I still have problems. I thought I was going to die. How dare they be so dismissive of your feelings.
I truly don’t think there is anything that can be done unfortunately. I’m constantly lightheaded and have heart rate issues. It awful. I tried to file a complaint with the FDA and couldn’t find a send button
Stay strong. I know how awful it is

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It was suggested that everyone suffering from these medications long term to report that to FDA.
For on-line reporting to FDA: https://www.fda.gov/safety/medwatch-fda-safety-information-and-adverse-event-reporting-program
For phone reporting: 1-800-FDA-1088.

There is a lot of information online on Reclast side effects- drugs.com, the FDA and Pfizer's own drug insert: https://labeling.pfizer.com/ShowLabeling.aspx?format=PDF&id=4676
In addition to the brief info below, Pfizer has a thorough chart with every side effect and frequency reported. Not sure why doctors don't look at this.
You might have to type in the address, I just touched on the link, highlighted it and put it in my search area and filled out the necessary information

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dannyandebbie | @dannyandebbie | 8 hours ago

There is a 1-800 number listed as well!

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