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Reclast Infusions: Side-effects & Recovery time
I just had a reclast infusion last week and have had serious side effects. I had the worst flue like aching for 5 days then my lefty arm became full of inflammation in the wrist, elbow and shoulder which caused extreme pain and I lost the ability to straighten my elbow. Ultrasound showed huge amounts of fluid throughout the arm. The right arm is now starting to have the same symptoms. The pain is excruciating. Has anyone else experienced anything like this? Neither the ER doctor nor the Dr. who prescribed the procedure knew what to do to ease the symptoms. Both arms from fingertips to shoulder are swollen and neither elbow will straighten. Anyone else have adverse reactions to the reclast infusion? If yes, how long did it last?
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Here I am in July suffering headaches which I’ve never had (maybe one per year) and I’m wondering if caused by Re-Clast. I had infusion in early April and was sick two weeks with same type headaches. I have been having them reappear couple times a week. I also got sick like I felt after infusion in May for three days. Couldn’t eat, headaches, nausea and pain. My baby toe on foot is swollen and I’m worried about the 52 bones we have in our feet being affected. I don’t know. I’m sick of being sick. Went to ER yesterday they want me to do a brain scan. I said hell no I’m not doing that. Instead doing of ordering a D Dimer to see if maybe a clot somewhere, since I have history of blood clots. I’m really Leary of this bone medication. Prolia about killed me. Has anyone on here had headaches that lasted with the Re-clast Infusion? I can’t seem to get an appointment with my PC at Kaiser. She’s never available.
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2 ReactionsI have and am still having reclasp side effects. I think it triggered an autoimmune response. Try taking a medrall pack. Steroids. Someone online did that and it cured all side effects.
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1 ReactionI think this is an autoimmune rection…take steroids prescribed by. Dr.
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1 ReactionI'm new and I'm not sure if my response here we'll go in as a comment to the other individual with problems with the recIastdefinitely have had my own. I had my first request infusion nearly two weeks ago. The first couple days were so tough I was so sick, throwing up pretty high fever achy headache, etc. After a couple days the fever broke and I was no longer throwing up. But I still had achiness, tiredness, and quite a bit of pain in my lower back on my left side as well as swollen ankles, but no other swelling in my legs just in my ankles which my doctor thought was very weird. Then pain in my lower back which my doctor calls and my pelvic area but I say the left side of my lower back has not gone away and is quite intense, I did not have that before the infusion. The doctor called it bone pain and said it would go away but it hasn't. I don't plan in the future in getting another reclast infusion. This has been a very unpleasant experience.
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1 Reactionjaynedanco- go to the top of the page and enter reclast. Then you will get posts about that infusion. I have had infusions, but not that one.
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1 ReactionSorry to hear this and suggest you contact FDA!
If you feel that you are suffering from these medications long term to report that to FDA.
For on-line reporting to FDA: https://www.fda.gov/safety/medwatch-fda-safety-information-and-adverse-event-reporting-program
For phone reporting: 1-800-FDA-1088.
There is a lot of information online on Reclast side effects- drugs.com, the FDA and Pfizer's own drug insert: https://labeling.pfizer.com/ShowLabeling.aspx?format=PDF&id=4676
In addition to the brief info below, Pfizer has a thorough chart with every side effect and frequency reported. Not sure why doctors don't look at this.
@giovi - Hi - just read about Fosteum Plus while researching and found this post by you. Did you take it and did it help? Thanks!
@janeted - What is the very reasonable price? Very interested in this and have just gone down the rabbit hole researching.
I never took it. I wound up doing a 1/2 dose infusion of Reclast last September.
So I had my first Reclast infusion in 1-22. It took this long for me to try it again because I had a bad reaction. I recall feeling fine until I woke in the middle of the night with a 103 temp and severe joint pain. By morning I was also vomiting and couldn’t keep anything down. I spent a miserable wait in the ER during a Covid surge. I ended up being off work for 3 weeks due to joint pain and also recall my ankles and feet being very swollen. My PCP had never had anyone with this type of problem and consulted the Endocrinologist who told him that it wasn’t common but does happen sometimes.
Today I had my second infusion after consulting with the Endocrinologist and deciding this was still my best option. This time I’m on steroids for 3 days. I’m also planning on getting up every 2 to 3 hours throughout the night to hydrate and medicate. The infusion nurse mentioned that some people have reported that Zyrtec helps with the joint pain although they don’t know why. So I’m taking that too. I’ll update how it goes in a few days.
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