Reclast Infusions: Side-effects & Recovery time

Posted by cindydee @cindydee, Mar 20, 2018

I just had a reclast infusion last week and have had serious side effects. I had the worst flue like aching for 5 days then my lefty arm became full of inflammation in the wrist, elbow and shoulder which caused extreme pain and I lost the ability to straighten my elbow. Ultrasound showed huge amounts of fluid throughout the arm. The right arm is now starting to have the same symptoms. The pain is excruciating. Has anyone else experienced anything like this? Neither the ER doctor nor the Dr. who prescribed the procedure knew what to do to ease the symptoms. Both arms from fingertips to shoulder are swollen and neither elbow will straighten. Anyone else have adverse reactions to the reclast infusion? If yes, how long did it last?

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It's been several months since I first commented here. I have been looking for help and information and still find this the best site for that and I want to say thank you all.

This has all been so helpful. At 81, I have recently been diagnosed with osteopenia in spine and neck and osteoporosis in my right hip. Infusion was suggested by my doctor which I initially refused as I wanted to find out more. I received so much help from this web site for an autoimmune illness (Polymyalgia rheumatica) over the past few years, so I looked for more information here on infusion from people who have experienced it. After 5 years of pain from PMR I am not in the mood for any more pain of any kind, and at 81 I don't want anything ele that makes my life more difficult. The helpful information I have read here has directed me to look for alternative methods of treatment. Infusion sounds so invasive and, as I also have Chronic Kidney Disease to take into consideration I am definitely not going to do anything that upsets that.

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Profile picture for jackson78 @jackson78

What did they do to stop the pain. I am experiencing the same pain and my doctor put me on prednisone and it has done nothing. I have taken a gabapentin, two Advil and a tramadol and it is still horrible pain.

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My rheumatologist put me on prednisone and just finished my course of treatment and…..well, I really do not feel any better. I do find myself pushing myself on activities that I partake in and the more I do, the better that day they feel. If I have a low key day I can hardly move my arm the next day and my left foot seems to hurt all the time as does my lower back on my right side. Waiting for follow-up with my rheumatologist!

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Profile picture for dannyandebbie @dannyandebbie

My rheumatologist put me on prednisone and just finished my course of treatment and…..well, I really do not feel any better. I do find myself pushing myself on activities that I partake in and the more I do, the better that day they feel. If I have a low key day I can hardly move my arm the next day and my left foot seems to hurt all the time as does my lower back on my right side. Waiting for follow-up with my rheumatologist!

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Thank you for input. I took prednisone for ten days and it did nothing. If something comes up I will let you know.

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Profile picture for jaynedanco @jaynedanco

I'm new and I'm not sure if my response here we'll go in as a comment to the other individual with problems with the recIastdefinitely have had my own. I had my first request infusion nearly two weeks ago. The first couple days were so tough I was so sick, throwing up pretty high fever achy headache, etc. After a couple days the fever broke and I was no longer throwing up. But I still had achiness, tiredness, and quite a bit of pain in my lower back on my left side as well as swollen ankles, but no other swelling in my legs just in my ankles which my doctor thought was very weird. Then pain in my lower back which my doctor calls and my pelvic area but I say the left side of my lower back has not gone away and is quite intense, I did not have that before the infusion. The doctor called it bone pain and said it would go away but it hasn't. I don't plan in the future in getting another reclast infusion. This has been a very unpleasant experience.

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It is 11 weeks a d my back continues to swell and have pain.
I tried everything and finally I decided to govto a really good acupuncturist. I have had three treatments, the first two did little. After the third treatment which was monday, i had a lot of relief. He said my back was swollen e everytime I was there. Mine is all in my right side. My hands still hurt some.my knees hurt too. He is just working on my back. When I told my dr. I had all these pains he said it was not the reclast..,HA they don’t believe us. I fired him. Starte with fever the night of the shot. Pain so bad I wound up in emergency room. I guess I am lucky though. I heard from two different people who knew people who had this who wound up in bed for a year. At least I’m able to get around and just be really uncomfortable.

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Profile picture for kaybollinger79 @kaybollinger79

It is 11 weeks a d my back continues to swell and have pain.
I tried everything and finally I decided to govto a really good acupuncturist. I have had three treatments, the first two did little. After the third treatment which was monday, i had a lot of relief. He said my back was swollen e everytime I was there. Mine is all in my right side. My hands still hurt some.my knees hurt too. He is just working on my back. When I told my dr. I had all these pains he said it was not the reclast..,HA they don’t believe us. I fired him. Starte with fever the night of the shot. Pain so bad I wound up in emergency room. I guess I am lucky though. I heard from two different people who knew people who had this who wound up in bed for a year. At least I’m able to get around and just be really uncomfortable.

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It has been 15 months and I’m still feeling the results from my Reclast infusion; some nights my shoulders wake me out of a sound sleep and often hurt like the dickens. I find the more active that I am at the moment the less they hurt but hours later I pay the price. I go to physical therapy bi-weekly, not sure it really helps but feel I have to try something outside another infusion!

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Profile picture for dannyandebbie @dannyandebbie

It has been 15 months and I’m still feeling the results from my Reclast infusion; some nights my shoulders wake me out of a sound sleep and often hurt like the dickens. I find the more active that I am at the moment the less they hurt but hours later I pay the price. I go to physical therapy bi-weekly, not sure it really helps but feel I have to try something outside another infusion!

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@dannyandebbietry
Try a. Upuncture…takes awhile
.

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Profile picture for kaybollinger79 @kaybollinger79

@dannyandebbietry
Try a. Upuncture…takes awhile
.

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@kaybollinger79 acupuncture

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I had Reclast last November and in April I started with awful pain and lack of usage of left arm, which was arm for the infusion. I saw my rheumatologist yesterday for my annual visit and I told her of my discomfort, even though now the pain is not as bad and my use of my arm has improved, even though I still can not raise it straight over my head. She said probably my pain was due to the injection itself in the muscle and not the Reclast. Regardless I am not taking the Reclast again and she is putting me on Fosamax. I am hoping for no side effects from this but I will be asking the group their opinions. Hopefully your pain will subside after a few months.

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Profile picture for ladybugnc @ladybugnc

I had Reclast last November and in April I started with awful pain and lack of usage of left arm, which was arm for the infusion. I saw my rheumatologist yesterday for my annual visit and I told her of my discomfort, even though now the pain is not as bad and my use of my arm has improved, even though I still can not raise it straight over my head. She said probably my pain was due to the injection itself in the muscle and not the Reclast. Regardless I am not taking the Reclast again and she is putting me on Fosamax. I am hoping for no side effects from this but I will be asking the group their opinions. Hopefully your pain will subside after a few months.

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@ladybugnc
I am puzzled as ReClast is given by infusion into a vein and not by intramuscular injection.

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Profile picture for dannyandebbie @dannyandebbie

It has been 15 months and I’m still feeling the results from my Reclast infusion; some nights my shoulders wake me out of a sound sleep and often hurt like the dickens. I find the more active that I am at the moment the less they hurt but hours later I pay the price. I go to physical therapy bi-weekly, not sure it really helps but feel I have to try something outside another infusion!

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@dannyandebbie

I had same experience. My bones hurt for 12 months. Now feeling better and it’s time for another Reclast infusion and i am putting it off. I didn’t have side effects at the time of infusion, but bone pain in hips legs and shoulders, tired & drained after vacuuming, depressed. Doctors don’t really believe it’s the Reclast, but I know it changed how i felt.

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