Reclast infusion side effects?

Posted by ladybugnc @ladybugnc, May 26 2:38pm

I had the Reclast infusion 5 months ago in my left arm. I have started having pain in that arm now, with loss of strength. Has this happened to anyone else?

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Profile picture for annar @annar

I’ve been in here a million times describing the horrible side effects I’ve had from Reclast. It’s been six months and still having problems.
I did see my Endocrinologist and all she would say is how sorry she was that this happened to me and that this is a very strong drug and she would not have me do it again. As if I would even consider it!
So she did not specifically admit this drug caused me all these issues. But she didn’t deny it either.

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@annar
I too am facing so many painful side effects, such as all of my joints and bone pain, the list can go on, after 2 month and all my doctor says is sorry and just take pain killer and wait.

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anahitaesmaili, two months is a long time to be suffering like that. I've heard that exercising actually helps the pain. If it prevents you from moving, it can be easy to become deconditioned. Some doctors are prescribing a five day steroid pack. Steroids are bad news for the bones, but I've read that it is less of a burden than continuing inflammation. Some Reclast users have been hospitalized where they are given IV steroids, which are understood to be more effective than the oral meds. Your doctor is right that you can't get the medication out of your system. Sorry you are experiencing this.

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Has anyone gained a lot of weight from Reclast? I think I have asked before. On my 7 month after infusion and so far 10 pounds heavier. I think it’s going to get worse. I was 125 and 5 feet in February and now 140! I work out all of the time and now I do not want to go to the gym because how I look. I have given up. My doctors say there is nothing to do.

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Profile picture for lwidstrand @lwidstrand

Has anyone gained a lot of weight from Reclast? I think I have asked before. On my 7 month after infusion and so far 10 pounds heavier. I think it’s going to get worse. I was 125 and 5 feet in February and now 140! I work out all of the time and now I do not want to go to the gym because how I look. I have given up. My doctors say there is nothing to do.

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I have also gained 10 lbs and I am trying to get back to my usual weight and it is not easy. I am now 145 lbs 5’5” and have been 135 for a very very long time. I am eating less, drinking more water and exercise and walking more.

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Thank you all for your comments, it's very helpful to know that others are going through the same thing. I have been experiencing almost all of the side effects others are talking about, and I received my IV 2 month ago, I was hoping the symptoms will go away eventually, but reading your comments, it seems like this could go on longer, so sad. I will report this to FDA also.

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