Reclast infusion side effects?

Posted by ladybugnc @ladybugnc, May 26 2:38pm

I had the Reclast infusion 5 months ago in my left arm. I have started having pain in that arm now, with loss of strength. Has this happened to anyone else?

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Sorry to hear this! I too have had issues since having my Reclast infusion! And still experiencing it 11 months later!
There is a lot of information online on Reclast side effects- drugs.com, the FDA and Pfizer's own drug insert: https://labeling.pfizer.com/ShowLabeling.aspx?format=PDF&id=4676
In addition to the brief info below, Pfizer has a thorough chart with every side effect and frequency reported. Not sure why doctors don't look at this.

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I’ve been in here a million times describing the horrible side effects I’ve had from Reclast. It’s been six months and still having problems.
I did see my Endocrinologist and all she would say is how sorry she was that this happened to me and that this is a very strong drug and she would not have me do it again. As if I would even consider it!
So she did not specifically admit this drug caused me all these issues. But she didn’t deny it either.

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The document that you have a link to describes patients with cancer metases to bone side effects. Don't know if it makes any difference.

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@annar

I’ve been in here a million times describing the horrible side effects I’ve had from Reclast. It’s been six months and still having problems.
I did see my Endocrinologist and all she would say is how sorry she was that this happened to me and that this is a very strong drug and she would not have me do it again. As if I would even consider it!
So she did not specifically admit this drug caused me all these issues. But she didn’t deny it either.

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If you feel that you are suffering from these medications long term to report that to FDA.
For on-line reporting to FDA: https://www.fda.gov/safety/medwatch-fda-safety-information-and-adverse-event-reporting-program
For phone reporting: 1-800-FDA-1088.

There is a lot of information online on Reclast side effects- drugs.com, the FDA and Pfizer's own drug insert: https://labeling.pfizer.com/ShowLabeling.aspx?format=PDF&id=4676
In addition to the brief info below, Pfizer has a thorough chart with every side effect and frequency reported. Not sure why doctors don't look at this.

REPLY
@dannyandebbie

If you feel that you are suffering from these medications long term to report that to FDA.
For on-line reporting to FDA: https://www.fda.gov/safety/medwatch-fda-safety-information-and-adverse-event-reporting-program
For phone reporting: 1-800-FDA-1088.

There is a lot of information online on Reclast side effects- drugs.com, the FDA and Pfizer's own drug insert: https://labeling.pfizer.com/ShowLabeling.aspx?format=PDF&id=4676
In addition to the brief info below, Pfizer has a thorough chart with every side effect and frequency reported. Not sure why doctors don't look at this.

Jump to this post

I have already reported my experience to the FDA. If more of us who have had these awful experiences file a report, hopefully they will listen.

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@annar

I’ve been in here a million times describing the horrible side effects I’ve had from Reclast. It’s been six months and still having problems.
I did see my Endocrinologist and all she would say is how sorry she was that this happened to me and that this is a very strong drug and she would not have me do it again. As if I would even consider it!
So she did not specifically admit this drug caused me all these issues. But she didn’t deny it either.

Jump to this post

What side effects have you had? I had the infusion in my left arm and after 4 months I started having pain in my left arm. Unable to move arm high or backwards to put on coat. I have been taking Motrin which I think has helped. I have put ice pack on it for a while a few days.
I am sorry you are going thru this, like myself. We trust our doctors that these meds will work for us and not against us.

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@ladybugnc

What side effects have you had? I had the infusion in my left arm and after 4 months I started having pain in my left arm. Unable to move arm high or backwards to put on coat. I have been taking Motrin which I think has helped. I have put ice pack on it for a while a few days.
I am sorry you are going thru this, like myself. We trust our doctors that these meds will work for us and not against us.

Jump to this post

I had a severe autoimmune response to this drug. It started out with the quote normal flu like symptoms and then 48 hrs after I fainted and ended up having to call myself an ambulance. Thank God I woke up and was able to do so
My. Potassium Levi’s dropped so low ( hence the losing consciousness) I had to be treated twice. Severe esophagitis, acute Colitis
Couldn’t eat so I lost 10 pounds in two weeks. I only weighed 109 to begin with
I was unable to work for 6 weeks. My heart rate is all over the place still and I have been lightheaded for almost 7 months. What a nightmare.
And I know it was the Reclast because I was perfectly fine up until that shot.
Luckily no muscle pain.
I’m sorry you are suffering
I’m so angry for all of us

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@ladybugnc

What side effects have you had? I had the infusion in my left arm and after 4 months I started having pain in my left arm. Unable to move arm high or backwards to put on coat. I have been taking Motrin which I think has helped. I have put ice pack on it for a while a few days.
I am sorry you are going thru this, like myself. We trust our doctors that these meds will work for us and not against us.

Jump to this post

I'm definitely not a doctor, but have had a frozen shoulder (completely unrelated to osteoporosis). It's very painful and seriously impacts range of motion. Could that be the cause of your pain/immobility in your left arm? In fact, I had frozen shoulders in both shoulders, though at different times.

After unsuccessful physical therapy (PT) on my right shoulder, I had a "surgical release". That is a bit of a misnomer. There is no cutting involved. The orthopedic surgeon manipulated my shoulder under anestheia to release (rip) the adhesions. I woke up with a pain pump that remained for some period of time (3 days? It was a long time ago, so I don't remember exactly.) I then returned for additional PT.

Sometime later my left shoulder froze. Between the two events I had read a research article that said there was no significant difference in outcome between patients who chose a surgical release and those who simply waited for the shoulder to unfreeze. (Sorry, again, it was a long time ago, so I don't have the reference.) I am right handed, so waiting for the left shoulder to simply unfreeze was painful, but didn't interfere as much with my daily activities.

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