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Reclast infusion side effects?
I had the Reclast infusion 5 months ago in my left arm. I have started having pain in that arm now, with loss of strength. Has this happened to anyone else?
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@sstopalian, that is a great idea, 2 months of Evenity before a shoulder replacement! I will do that if I ever need orthopedic surgery. Thanks for posting.
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1 Reaction@drsuefowler It will have to continue for 12 months, After which recast once a year, I beleive for 3.
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1 Reaction@tiza
That is not a surprise.
Doctors rarely tell you that a medication prescribed by them was a mistake, or a possible mistake, or might have had an adverse effect.
They prescribe based on ‘guidelines,’ which are based on research done by pharmaceutical companies.
So, they - and we - are trusting that the bottom line ($) of pharmaceutical companies was not a factor in the results of that research. Hmmm.
The patient is often told - before and after taking the medication - that hardly anyone has an adverse reaction. That information is based on statistics from those pharmaceutical companies. Hmmm.
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3 ReactionsI had the ReClast infusion 4 weeks ago. Since then, I have been very fatigued, unsteady and have some brain fog. My PCP said getting over the side effects from the infusion could take another six weeks. I have had some back pain but most concerning, the fatigue and being unsteady. Have others had similar side effects? I regret deeply having had the infusion,
@claunch
Following my Reclast infusion I contemplated not doing it again. I felt awful and kept a diary of my experience. I did post that in this forum. Maybe you can search by my name.
Anyway, the point is that by week four I was feeling back to normal. Now that I know what I'm in for ; > I will repeat the treatment in February. I'm told the side effects should lessen after the first time. Also, I will take Aleve and claritan and hydrate before and after as a few ladies have suggested.
Perhaps someone on this forum can tell us if the side effects lessen with the second Reclast treatment??
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1 Reaction@claunch
It is common to have this reaction for a few days. Sometimes the negative response to the medication is extended by the initial cytokine reaction becoming self sustaining. You might ask for a Medol 4mg dose pack. No one wants to prescribe, or take, steroids with osteoporosis, but it can interrupt the inflammatory process which is also hard on the bones. I've read that the inflammation is harder on the bones than the brief steroid.
The gentleman who conducted the clinical trials of Reclast rarely gives the second year dose. You might ask for bone markers at the end of the first year and earn a year free of bone medications.
Fatigue plus unsteadiness isn't a safe combination.
Lesliesara gives us hope.
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1 Reaction@lesliesara
My side effects were zero after my second Reclast last October! Bad 2 weeks after first but I insisted doctor order 45 min drip and I took pre infusion Tylenol for 2 days prior. I was shocked at the minimal problems after some bad ones the first infusion!
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3 Reactions@fjeldbar
Thank you for the great advice!
I will definitely be asking for a longer infusion time too.
Great help!
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2 Reactions@fjeldbar how were your results after your first infusion?!
My first infusion was bad. I was in bed two days (Which is very unusual for me, even when ill or after a surgery, I never stay still as a rule) with horrible hip ache and nausea, chills and night sweats (I am way past menopause). I took the Tylenol as directed, which had NO effect on me, so then took Aleve and Tramadol, which I use for low back issues about twice a year. I felt like I had hair loss through the year, not huge, and maybe it was my body clock shedding as does happen? I was also extremely tired, but still exercised after a couple weeks. I generally just felt off. I was about to decline a second Reclast treatment when I got my DEXA scan telling me my hip numbers were better and I was now in one aspect of osteopenia instead of osteoporosis mode!
I really had to balance whether these problems were because of Reclast or the fact that I was now 70, prediabetic, and have MGUS... and with age comes various problems. I generally am in good everyday health and have a good exercise schedule, good weight, no extremely bad habits (Sugar!), so these bumps in the road were not usual for me.
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