Reclast infusion long term side effects

Thank you for your detailed regimen.
I feel either way if I take a medication recommendation the risks are similar as if you don’t take it. Meaning risk of a fracture , cancer or other side effects.
As for the strontium supplement, many different types.
Is the citrate the best for bone density or ranelate,lactate,carbonate or chloride.
Have you seen a natural path? Wondering if this is something to look into.
Also I do not take a calcium supplement. Never felt good taking calcium also nothing changes when I did take it
Thank you for your advice and opinion

@aberg Not sure what doctors one might be seeing. I just had a consultation with the chief of endocrinology at HSS (Hospital for Special Surgery) NYC. He spent and hour with me after having gone over my bone density and blood work. It was a very detailed consultation and I decided on Evenity for two months before a reverse shoulder replacement. Yes, there are problems in the system with amount of time spent because of how little medicare pays doctors. We need to be active in our behalf. Ex, I saw two physiatrists before I settle on the one I continue to see because he is smart, skilled, kind and I never feel rushed. I understand that it is frustrating but we need to be with doctors who are the best.

@sstopalian
You’re lucky!
Please send his/hers info?
I am in NY and my endocrinologist is not a bad Dr. but she swears my Reclast infusion was a good thing, even now with my terrible side effects. I’m about to see her in 2 weeks, I’ll try to argue once again in my behalf that this was a bad decision. But we only have so much time together!

@tiza
Sorry, you said it was a He.
Thank you!

@sstopalian, that is a great idea, 2 months of Evenity before a shoulder replacement! I will do that if I ever need orthopedic surgery. Thanks for posting.

@drsuefowler It will have to continue for 12 months, After which recast once a year, I beleive for 3.

@tiza
That is not a surprise.
Doctors rarely tell you that a medication prescribed by them was a mistake, or a possible mistake, or might have had an adverse effect.
They prescribe based on ‘guidelines,’ which are based on research done by pharmaceutical companies.
So, they - and we - are trusting that the bottom line ($) of pharmaceutical companies was not a factor in the results of that research. Hmmm.
The patient is often told - before and after taking the medication - that hardly anyone has an adverse reaction. That information is based on statistics from those pharmaceutical companies. Hmmm.

I had the ReClast infusion 4 weeks ago. Since then, I have been very fatigued, unsteady and have some brain fog. My PCP said getting over the side effects from the infusion could take another six weeks. I have had some back pain but most concerning, the fatigue and being unsteady. Have others had similar side effects? I regret deeply having had the infusion,

@claunch
Following my Reclast infusion I contemplated not doing it again. I felt awful and kept a diary of my experience. I did post that in this forum. Maybe you can search by my name.

Anyway, the point is that by week four I was feeling back to normal. Now that I know what I'm in for ; > I will repeat the treatment in February. I'm told the side effects should lessen after the first time. Also, I will take Aleve and claritan and hydrate before and after as a few ladies have suggested.
Perhaps someone on this forum can tell us if the side effects lessen with the second Reclast treatment??

@claunch
It is common to have this reaction for a few days. Sometimes the negative response to the medication is extended by the initial cytokine reaction becoming self sustaining. You might ask for a Medol 4mg dose pack. No one wants to prescribe, or take, steroids with osteoporosis, but it can interrupt the inflammatory process which is also hard on the bones. I've read that the inflammation is harder on the bones than the brief steroid.
The gentleman who conducted the clinical trials of Reclast rarely gives the second year dose. You might ask for bone markers at the end of the first year and earn a year free of bone medications.
Fatigue plus unsteadiness isn't a safe combination.
Lesliesara gives us hope.