Reclast infusion side effects?
I had the Reclast infusion 5 months ago in my left arm. I have started having pain in that arm now, with loss of strength. Has this happened to anyone else?
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Hope you are feeling better in a couple weeks. Side effects from My 1st and last ReClast lasted months. Very tired, depressed and body aches for at least 10 months. There was no way I was going to have a second infusion and start that over again. The symptoms I had were blamed on other things. Doctors don’t want to admit the side effects last longer that a couple weeks. The asked “Were you hydrated and did you take Tylenol before infusion”? Yes i did but symptoms shouldn’t last 9 months. Not again.
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6 ReactionsReclast infusion landed me in the hospital as he drug caused Giant Cell Arteritis. I have permanent partial vision loss. There are ongoing studies linking Reclast to Arteritis. Never again
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9 Reactions@serahjane I'm curious how you are feeling now and whether the weakness in your legs and the bone pain have resolved since you posted this in February. I had my first Reclast injection in February and I've never felt worse. Like you, my legs feel so weak and I have severe bone pain. I've also developed sciatica which may be because my spine is so compressed. I have a T score of -4.1 in my spine and was talked into Reclast after failing both Prolia and Fosomax. Severe bone pain with Prolia as well but was told it was rare with Reclast. I am done with these injections. I was feeling fine until I started these treatments. I hiked, biked, rode my horse and was good until I was told my T scores were so low I needed a "fix." I am 66 and I've never had a fracture. My life has been hell ever since the Prolia and Reclast injections. I keep praying these side effects will wear off at some point. I hope yours have!
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5 ReactionsCarole59, it is probably a good thing to wait those horseriding and biking activities until your lumbar spin is stronger. I'd wish you started with an anabolic drug, but once you were on Prolia the Reclast sequence was unavoidable.
When February rolls 27 around you might ask about Forteo or Tymlos.
Are you using bone markers?
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2 ReactionsOh, some people get relief from a short course of steroid. But they aren't the best for our bones.
@carole59
I didn't have any joint luckily. The pain was from the neck up, mainly the head. I was diagnosed in early April so all of this is new to me. Now weaning from prednisone. I actually feel quite well.
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2 Reactions@carole59 not to sound discouraging but it has been a little over two years for me and still have symptoms. Started in my shoulders and left foot; they continue to feel extremely lame and weak. Then it went into my hips, groin and vision areas. I am 69 years old and had none of these symptoms before the damn infusion; retirement was going to be fun they say. Well, I was talked into this infusion but Never again. I go in September to review my new scores, not sure why because I’ll never have another infusion. Dr says my symptoms are not from the infusion yet Rheumatology and neurologist find no reason for the on going discomfort. My personal opinion is that the FDA should band this medication unless it is shared All the potential side effects before administration of the medication. Once one receives the medication there are no quick ways ( no treatment that I’ve read) to reverse the side effects .
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3 Reactions@dannyandebbie
Im sorry you’re having to deal with these continuing discomfort.
Same here, after 1 year+ I’m still struggling with pain on my rib cage and stomach.
This drug should be banned and we compensated for the trauma and troubles.
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3 Reactions@dannyandebbie
What drug(s) did you start with before Reclast/Prolia …Forteo…Tymlos?
If you never had this pain before why are the doctors denying that it’s ?
What improvements if any did you have?
@dannyandebbie
That definitely is discouraging and I am so sorry you continue to deal with those side effects after all this time, although I guess it's comforting to know this is not all in my head. I am with you 100% on Never Again! I am going to try to get a referral to a pain management specialist. I initially had so much pain in my hip I thought my hip replacement had failed, but imaging showed it was fine. The most upsetting thing is that I did this to myself. I had terrible DEXA numbers, but I felt good and I think my active lifestyle was the reason that despite those terrible numbers, I never had a fracture. But the endocronologist insisted I needed to do something and painted such a bleak picture of my future that I agreed. Now I'm so weak and in so much pain I can't do much of anything, which obviously is not helpful. Complete and total insanity!
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