I have had Reynard for years..until i.mentioned it to my arthritis doctor nothing was ever done about it. I also have RA which they say is associated with reynauds. I read up.on it all the time….Air conditioning when I'm out in a store brings it on to the point that I have to bring a heavy sweater and or leave the store. Finally I found that if you keep your core ( which is your chest) warm in AC it helps immensely. I take nothing to control it. My extremities turn pure white and painful. I have fallen thru the cracks with my Arthritis doctor.In today's world you have to be in charge of your own health and the doctor gets paid for your time.in doing so…Something wrong with this picture.

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I can sleep in a room with the AC on 69 or 70 degrees with no problem. My problem is I am a preschool teacher; and we do a lot of water play. Myself and the kids get soaked from head to toe. Then comes the fun part; transitioning into the building! As soon as I enter the building, it feels like someone threw acid on me. Same is true with going to the beach and having to get into the car. Any ideas anyone? As I am heading to Hilton Head today. Everyone enjoy your weekend!!!!!

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I can sleep in a room with the AC on 69 or 70 degrees with no problem. My problem is I am a preschool teacher; and we do a lot of water play. Myself and the kids get soaked from head to toe. Then comes the fun part; transitioning into the building! As soon as I enter the building, it feels like someone threw acid on me. Same is true with going to the beach and having to get into the car. Any ideas anyone? As I am heading to Hilton Head today. Everyone enjoy your weekend!!!!!

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I have had Reynard for years..until i.mentioned it to my arthritis doctor nothing was ever done about it. I also have RA which they say is associated with reynauds. I read up.on it all the time….Air conditioning when I'm out in a store brings it on to the point that I have to bring a heavy sweater and or leave the store. Finally I found that if you keep your core ( which is your chest) warm in AC it helps immensely. I take nothing to control it. My extremities turn pure white and painful. I have fallen thru the cracks with my Arthritis doctor.In today's world you have to be in charge of your own health and the doctor gets paid for your time.in doing so…Something wrong with this picture.

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I have had Reynard for years..until i.mentioned it to my arthritis doctor nothing was ever done about it. I also have RA which they say is associated with reynauds. I read up.on it all the time….Air conditioning when I'm out in a store brings it on to the point that I have to bring a heavy sweater and or leave the store. Finally I found that if you keep your core ( which is your chest) warm in AC it helps immensely. I take nothing to control it. My extremities turn pure white and painful. I have fallen thru the cracks with my Arthritis doctor.In today's world you have to be in charge of your own health and the doctor gets paid for your time.in doing so…Something wrong with this picture.

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Heat locker socks from walgreens helped me. Massaged lotion on my feet, then immediately put the socks on my feet. I also folded a blanket in half and laid it over the bottom 1/3 of my bed. Good luck!

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Hi Windwalker. I don't know which one I had first; lupus or Reynaurds, but now I know it is secondary since I have both. I didn't realize Heather's is soo bad.

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I have been diagnosed with raynauds and was given cialis to take to help blood circulation. Though the cialis did help slightly it gave me bad chest pains like something was sitting on my chest. So now I just thaw out in warm water every evening and sometimes during the day if I'm able to. I try to always have a blanket, jacket whenever I go somewhere that might be cold. I also wear a beanie almost everyday. My raynauds seems to be worse when I take my meds for a prolactinoma.

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Being raised in a zone 9 I never even realized I had raynaud's until I took my first trip to the mountains in my 20's. My fingers and toes first turn red then pure white. The pain I can describe as having nails driven through your fingernails. I learned that snow skiing is not for me! Even good gloves won't keep me pain below 40! Even when active. Now at age 69 and living in a region with colder winters it is no worse but am always prepared. Like many I carry a pair of gloves and always bring a jacket (others mentioned keeping the core warm) to movie theaters and restaurants even in the summer if air conditioning is too cold. I have a pair of flexible soft leather gloves with rabbit hair lining which feel heavenly and I put on when shopping in produce isles. Water does trigger the loss of hand temp and wet produce can quickly turn my fingers white in a cool grocery. Then what can I do, basically nothing except hope the bathroom has warm water to run over my fingers. A surprisingly helpful way to warm up white toes, besides layers of blankets(which are surprisingly unhelpful once feet are white) or a heating pad is to wear a warm hat! Your body wants to keep the circulation in your brain #1 and if it has good blood flow it will send blood out to other areas. Also because I love to garden and stay out past my outdoor temp trigger points the fastest way to recover I have found is to put a washcloths in a microwave, heat till very warm, not scalding and wrap around fingers. This will get the blood flowing, first fingers will return from white to bright red and hurt like heck, then in a few minutes can return to flesh color and stop hurting.
I have read that those of us born with it have a genetic predisposition to having it and although painful and inconvenient it is not normally a significant health issue. For those who develop this later in life it is a signal that something else may be going on in your body like RA.

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