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Raynaud's Syndrome: Anyone want to talk about Raynaud’s?

Posted by Terri Martin, Volunteer Mentor @windwalker, Apr 27, 2018

Anyone want to talk about Raynaud's Syndrome? My daughter has a severe case of it. I would like to start a support group here on Connect to find others, share our stories, treatments and managing daily life.

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

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livininthestix | @livininthestix | 2 days ago

Question for those dealing with Raynaud's. Do your toes and hands stay cold all the time even in the summer? I wear wool socks in the summer to try and keep them somewhat warm. I am a mechanic and I work outside a lot. The Northwoods of Wisconsin can be a little chilly lol. Hope everyone is doing as well as they can!!!

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sunshine67 | @sunshine67 | 2 days ago
In reply to @ellyfeb "@sunshine67 Thank you so much for your suggestions. I changed to the ankle compression socks. So..." + (show)
Profile picture for ellyfeb @ellyfeb

@sunshine67 Thank you so much for your suggestions. I changed to the ankle compression socks. So much better. My Primary Care doctor has stepped up as she has Raynauds also. Bloodwork states no RA! So glad about that but no answers as to what brought this on. Have changed to nifedipine which has helped more than the amlodipine. The cramping has reduced and the number of episodes of pain and cramping has greatly reduced. Thank you so much! My hubby and I feel so much more supported. The key for me is this blog and help given here!

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@ellyfeb
So happy to hear you are feeling better, the ankle compression socks are working well, your dr has stepped up for you and no RA diagnosis.
Autoimmune diseases are complexed, and masked deceivers, this is why important to notify dr of any changes of symptoms or new symptoms because flares can happened at anytime. You are doing great…so keep up the great work, and please do not hesitate to ask for help. 😊

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Mentor
Becky, Volunteer Mentor | @becsbuddy | 2 days ago
In reply to @csmirat "Where would I find dis Russian about raynauds" + (show)
Profile picture for csmirat @csmirat

Where would I find dis Russian about raynauds

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@csmirat
https://my.clevelandclinic.org/health/diseases/9849-raynauds-phenomenon. If Russian language is best for you and your computer uses the Russian language, you could try to type site title into your computer and see if it can be translated. You can also just search for ‘Raynaud’s Syndrome’ and see what comes up in Russian. Only look for reputable information like that from major hospitals.
Do you think this is possible?

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Mort | @kuma | 1 day ago

I have Systemic Lupus Erythematotus. I had my first Raynaud Syndrome experience this year. This morning I had my second experience. Is there any pain medication I can use?

Thank you 😊

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sunshine67 | @sunshine67 | 9 hours ago
In reply to @kuma "I have Systemic Lupus Erythematotus. I had my first Raynaud Syndrome experience this year. This morning..." + (show)
Profile picture for Mort @kuma

I have Systemic Lupus Erythematotus. I had my first Raynaud Syndrome experience this year. This morning I had my second experience. Is there any pain medication I can use?

Thank you 😊

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@kuma
My dr never prescribed pain medication for Raynaud’s but a vasodilator to increase blood flow. Personally, did not work for me but upon research, I found extremity exercises along with Magnesium Glycinate supplement, beneficial for both my Raynaud’s and SLE. Wish you well.

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