Anyone want to talk about Raynaud’s Syndrome? My daughter has a severe case of it. I would like to start a support group here on Connect to find others, share our stories, treatments and managing daily life.
My understanding is it's when your skin gets cold but if you live in Texas I don't think you have to worry. I could be wrong but that's my understanding
Liked by Terri Martin, Volunteer Mentor
I don't find that to be true…in my case anyway..When I am in Florida and go to an air conditioned store I have a flair up. Resolved..wear a sweater or a jacket and keep the core of your body warm..
Liked by Terri Martin, Volunteer Mentor, lioness
From what you,be said has she seen a endocrinologist? He will look at her hormones. To @windwalker
Liked by Terri Martin, Volunteer Mentor
I live in Florida. One would think that it's the ideal climate for raynauds. But, it isn't. Going in an out of air conditioned building and cars are problematic. I keep gloves everywhere and wear long sleeve sweaters no matter what the temperature is. Heat locker gloves from Walgreens were wonderful during the winter. Also, moisturizing my hands seems to help. Apply a dab of Coconut oil first then layer it with lotion. Good luck!
Liked by Terri Martin, Volunteer Mentor
I’m in. A quick read of the posts puts me right into this group. I’m in Texas and carry a sweater and often gloves everywhere I go. People think I’m nuts. Good thing I’m 73 and some eccentricity is expected. Stores and even church cause my hands to go frozen and burn because they are so cold. I’ve also got Parkinson’s and a few other things and no idea yet if any of them are related. I’ll ask at my next Dr visit but I would assume not or it would have been mentioned before.
Has anyone noticed the different things we have found to relieve us some of our pain is old time remedies ,gloves,pickle juice making a cozy place for us ,baking soda,Epsom salts,vinegar just a plain hot shower all things we have known about all through our lives because we have grown in our knowledge ,that has made us strong women ,since we all have been nurtures to our kids,husband's ,sick people ,etc. We are at the end ready to go home but we have this devil ,pain, don't let it take us we can overcome ,we are all strong ,God fearing women He will get us through Bless us all.
Well i am heading back to MCV tomorrow morning. I normally go every 3 months for bloodwork for my lupus. I went as scheduled last month and they called me back in. That cant be good. This will be a long night.
Liked by Terri Martin, Volunteer Mentor
@lauren123 Hi Lauren. Yes, there are two kinds of Raynaud's. There is PRIMARY which is only Raynaud's, which is a circulatory disorder; and then there is SECONDARY which means that there is another disease(s) that commonly co-exist with Raynaud's. The other common diseases than can accompany Raynaud's are Lupus and Scleroderma. These are autoimmune diseases and can also include RA (arthritis) and Sjogren's Syndrome. Others may jump in and speak of their experiences with SECONDARY Raynaud's, but you can Google lots of info also.
@lioness My daughter's hands, feet and knees turn white to purple every day no matter the weather. For some odd reason; every day at precisely 4:00 p.m. her ears turn bright red and burn horribly; also, her chest and throat break out in big red welts. Along with that, her arms look like scalding water had been poured on her. We have lots of photos of it. It is so bizaar.
@lioness
Alot of people here in Calif at our building Sr apt. Where gloves and sweat suits with Reyneards?
Liked by John, Volunteer Mentor