Raynaud's Syndrome: Anyone want to talk about Raynaud’s?

@rutgersmom123
I carry fingerless gloves and a hat everywhere, in the house I wear mittens.
Summer a/c blowing on me is a trigger. Thermostat goes up, not down.
This may be helpful if I catch it early. A hat prevents heat escaping and feeling the cold air.
Best wishes to all💕

Mine is mild in comparison with many descriptions. Had icy hands since childhood and am 86 now. Diagnosis maybe 10 years ago. I keep my house at 70 degrees. Wear sheepskin gloves in the winter and use the “HoHands” and toe warmers. Wear sheepskin boots and thick woolen socks. Calcium channel blockers for migraines turned my fingers white Had to be. a bit forceful in persuading MD to change.
Do others also find their arms are always cold?

I now live in Southwest Florida....when it is over 70 degrees, my body controls the Raynaud's. When it is less than 70 degrees, the pain...the function....the color....of both my hands and feet are so difficult to control....I have had this my whole life.

@altabiznet

I also got Raynaud's post Pfizer COVID-19 Vaccine in 2021. Is Raynaud's your only autoimmune symptom post vaccine?

I also got scleroderma - autoimmune skin thickening - at the same time.

Reynards……. Almost a 67 year old male. My mother had lupus or slow derma (1922-1969) passed away at 46. I had just turned eleven. Ever since I’ve been 20 I’ve had MS like symptoms many other issues but in 2020 finally had Reynards showing up and scleroderma . It’s affected my hands and genital area. 20 mg of Cialis daily has helped me. Cialis has kept my hands fingers and thumbs from black discoloration and my genital area from getting ulcers on the gland..

I have Reynaud's for about 40 years. My first clear encounter with it was in my late 30's in the winter because my finger tips split. Sometimes it bled but they always hurt terribly. My doctor at the time told me to dry my hands more thoroughly when I got through washing them. ?? When the weather moderated to 40's and 50's the cracking stopped. Much later I got a doctor that prescribed Nitro-Bid. I use it about 6-8 months a year. I have had my fingers blanch for no reason at all. I have also had bruises form sometimes in the finger tip joint and sometimes on the finger joint nest in from the finger tip. These can be painful. I don't have active disease in my toes; I must keep them warm or they start hurting. What is the long-term prognosis for REynaud's? Mine has gotten worse over the years.

@wcf369 Welcome to Mayo Clinic Connect! I’m so sorry about your mother. Did she die from the complications of an autoimmune disease ? And how difficult for you, an 11 yr old child. I’d like to welcome you and hope that you will participate in the discussions here.

It was very difficult…
I didn’t cry, I wailed.
She had multiple health issues.
My oldest sister had scleroderma and Reynards, she is the one that thought my mother had lupus, just speculation on her behalf.
Myself I’ve had several muscles that have come apart and have been reattached. Gerd , I’ve had surgery on my esophagus. Back in neck surgery.
Weird skin discoloration, like white scarring under the surface of my skin.
Huge dimples on my shoulders that were never there before. Arthritis everywhere. Multiple tarlov cist, early on osteoporosis .
………I’m at a loss with what to say

@gailmarienewton I can relate! I’m from Chicago and have lived in San Antonio for several years. My heart goes out to Northerners living with Raynauds. ❤️ Monitoring the daily/weekly weather forecast helps me adapt and plan my life. When making plans with friends I’m a definite maybe. It took them awhile to understand because for over 40 years I was always super hot and sweat like crazy. Now I’m an icicle and do not sweat. Confusing flip-flop.
Last February I started infusions and fortunately this reduced my symptoms. I’m off to a good start, thankful for the relief and feel hopeful.

@angus100 I have gloves all the time with me because if I go into a pla.ce with air conditioning high in summer my hands will turn blue and I call them "dead hands". I also this winter bought hand warmers from amazon and small enough to put in purse. There are small and can hold in your hands. I love them they go everywhere with me. Ned to have tools in your toolbox for keeping them warm