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Terri Martin, Volunteer Mentor avatar

Raynaud's Syndrome: Anyone want to talk about Raynaud’s?

Autoimmune Diseases | Last Active: Apr 30 11:34am | Replies (400)
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Profile picture for gailmarienewton @gailmarienewton

I now live in Southwest Florida....when it is over 70 degrees, my body controls the Raynaud's. When it is less than 70 degrees, the pain...the function....the color....of both my hands and feet are so difficult to control....I have had this my whole life.

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Replies to "I now live in Southwest Florida....when it is over 70 degrees, my body controls the Raynaud's...."
texasblooms | @texasblooms | Apr 30 6:58am

@gailmarienewton I can relate! I’m from Chicago and have lived in San Antonio for several years. My heart goes out to Northerners living with Raynauds. ❤️ Monitoring the daily/weekly weather forecast helps me adapt and plan my life. When making plans with friends I’m a definite maybe. It took them awhile to understand because for over 40 years I was always super hot and sweat like crazy. Now I’m an icicle and do not sweat. Confusing flip-flop.
Last February I started infusions and fortunately this reduced my symptoms. I’m off to a good start, thankful for the relief and feel hopeful.

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