Rare scalp Autoimmune disease… lichen planopilaris

I have lichen planopilaris where my hair is falling out. From what I understand you lose your hair and it will not grow back. Was diagnosed by having a scalp plug taken out and diagnosed I would like to know if anyone else has this disease and has had any success with any medication’s or shampoos that have helped prevent hair loss. I used to have beautiful thick hair and it’s very depressing I can finding fallen hair everywhere. When I shampoo my hair is the most depressing to see the handful of hair that has come out.