Qualifying for Zephyr valves for emphysema after lung cancer

Posted by 2cents @2cents, Jan 12 8:13am

I was told that Zephyr valves are not denied automatically because a person had cancer. I'm curious as to whether they have been approved for anyone who's experienced a VATs resection for 1a NSCLC, and also has Emphysema. I'm fortunate to be cancer free for four years now, and at 5 years will stop follow-up with my thoracic surgeon. Shortness of breath makes it difficult for me to engage in a conversation with others without sounding like I've run a marathon.

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Welcome @2cents. I'm bringing a few members like @merpreb @bridey @newota10 into this discussion who may have some thoughts for you. Also here is a related discussion that may interest you.

– Zephyr Valve Procedure at Mayo Jacksonville and/or Scottsdale https://connect.mayoclinic.org/discussion/zephyr-valve-procedure-at-mayo-jacksonville-andor-scottsdale/

As for your specific question regarding eligibility for Zephyr valves after having had video-assisted thoracoscopic surgery (VATS) for lung cancer, I don't know. Have you discussed this with a surgeon or your pulmonologist?

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@colleenyoung

Welcome @2cents. I'm bringing a few members like @merpreb @bridey @newota10 into this discussion who may have some thoughts for you. Also here is a related discussion that may interest you.

– Zephyr Valve Procedure at Mayo Jacksonville and/or Scottsdale https://connect.mayoclinic.org/discussion/zephyr-valve-procedure-at-mayo-jacksonville-andor-scottsdale/

As for your specific question regarding eligibility for Zephyr valves after having had video-assisted thoracoscopic surgery (VATS) for lung cancer, I don't know. Have you discussed this with a surgeon or your pulmonologist?

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My doctor checked requirements at his teaching facility, and cancer didn't rule out eligibility. It requires some testing, and forms for approval. I spoke to somebody who manufactures the valves, and was told cancer does not disqualify an applicant. It would be disappointing to be denied after going through the required approval procedure. I don't think you ever know, but I thought others might have had some similar experience. Thanks so much.

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@2cents

My doctor checked requirements at his teaching facility, and cancer didn't rule out eligibility. It requires some testing, and forms for approval. I spoke to somebody who manufactures the valves, and was told cancer does not disqualify an applicant. It would be disappointing to be denied after going through the required approval procedure. I don't think you ever know, but I thought others might have had some similar experience. Thanks so much.

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I was very interested in the zephyr valve. I was given a triage appointment. I was very excited as you would expect with level 4 COPD end of life. My wife and I entertained the triage appointment. And this gave me a little bit of Hope that things could maybe be better. As I had done some research on this zephyr valve. I was later giving a response of not being a likely candidate for a zephyr valve. To be honest I was somewhat crushed. So I inquired as far as the reasoning why I was not eligible. To this date I have never received a reason why I was not eligible.
So I guess all the more reason to put my trust fa ith and Hope into a mighty God that we serve. Wishing you all the best

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@ronap

I was very interested in the zephyr valve. I was given a triage appointment. I was very excited as you would expect with level 4 COPD end of life. My wife and I entertained the triage appointment. And this gave me a little bit of Hope that things could maybe be better. As I had done some research on this zephyr valve. I was later giving a response of not being a likely candidate for a zephyr valve. To be honest I was somewhat crushed. So I inquired as far as the reasoning why I was not eligible. To this date I have never received a reason why I was not eligible.
So I guess all the more reason to put my trust fa ith and Hope into a mighty God that we serve. Wishing you all the best

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I'd actually gotten a list of requirements for the Zephyr from my Pulmonologist, but I never proceeded with the application. I'd need another PFT, and I remember the walk test needed to be at a specific number. I wish I'd saved the information. There were some co-conditions, maybe some heart problems, that could rule you out. I'd suggest you ask your doctor for a copy of the guidelines. You can go down the list and figure out what the denial revolved around.

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@ronap

I was very interested in the zephyr valve. I was given a triage appointment. I was very excited as you would expect with level 4 COPD end of life. My wife and I entertained the triage appointment. And this gave me a little bit of Hope that things could maybe be better. As I had done some research on this zephyr valve. I was later giving a response of not being a likely candidate for a zephyr valve. To be honest I was somewhat crushed. So I inquired as far as the reasoning why I was not eligible. To this date I have never received a reason why I was not eligible.
So I guess all the more reason to put my trust fa ith and Hope into a mighty God that we serve. Wishing you all the best

Jump to this post

Have you looked into COPD trials to see if there are any new medications that would suit you better? There are several COPD organizations that might lead you to more answers.
https://www.copdfoundation.org/COPD360social/Community/Get-Involved.aspx
Let's keep trying to find answers for you and not settle on one answer. If you google Zephyr procedures in the US there are many sites that might help you find what you are looking for. What do you think?

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