Psoriatic Arthritis

Posted by lemdjm @lemdjm, Feb 27, 2017

I am a 74 year old female who has had psoriasis for over 40 years. The psoriasis was present on my scalp and ears in flares from time to time. I never experienced joint swelling and joint pain until recently. About one month ago I experienced an abrupt onset of severe joint swelling in my hands wrists, feet, and neck with severe pain. At first I suspected that it might have been related to my oncology medication, Arimedex that I began taking approximately 4 months before my sudden joint problems began. Testing ruled out Rheumatoid Arthritis and Lupus. My oncologist did not think that the joint issues could be related to the Arimedex, however, he recommended that I suspend taking the cancer medication for 4 weeks while I was given oral Prednisone for 23 days (referred to as Pulse and taper). I am on day 22 of the Prednisone and the joint swelling and pain is no longer present. My oncologist wants me to resume the Arimedex, however, I am afraid that the severe joint pain will return. I am hopeful that additional diagnostic testing will determine the underlying cause of my joint swelling. If anyone reading this has had similar problems or any information related to my situation I would be interested in your comments. Thank you.
lemdjm

I am 51 and just since May have had broken ankle, foot, and elbow that I had to go into emergency surgery. I will be having two knuckles replaced very soon, if they still can since one has dropped close to thumb. I also have to use cane, it was supposed to help me stop falling, doesn’t seem to be working. I to have a lot of allergies including aspirin and Motrin. My new rhemotologist is sending me to an allergist to de-sentisize me from those so that I can take an anti-inflammatory.

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you are correct. one thing opposes another. and distraction is the key word. i watch a huge amount of tv including many movies on tv (will not go to a movie house so as not to contract anything,) this is to get lost in the story and then to put myself into the character i put myself to be. sounds like to much, but it does me good. i am glad i was a swimmer. think it helped saved the ligaments and tendons. swimming is a safer exercise than most. just a few helpful hints from an old lady.

Liked by blindeyepug

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@djfd

I am 51 and just since May have had broken ankle, foot, and elbow that I had to go into emergency surgery. I will be having two knuckles replaced very soon, if they still can since one has dropped close to thumb. I also have to use cane, it was supposed to help me stop falling, doesn’t seem to be working. I to have a lot of allergies including aspirin and Motrin. My new rhemotologist is sending me to an allergist to de-sentisize me from those so that I can take an anti-inflammatory.

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@djfd You are so young to have so much going on! Instead if a cane, have you tried a walker? I use one when I am really bad and my mom has one. They both have seats and make walking so much easier and safer. I am keeping you in my prayers.

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@peach414144

you are correct. one thing opposes another. and distraction is the key word. i watch a huge amount of tv including many movies on tv (will not go to a movie house so as not to contract anything,) this is to get lost in the story and then to put myself into the character i put myself to be. sounds like to much, but it does me good. i am glad i was a swimmer. think it helped saved the ligaments and tendons. swimming is a safer exercise than most. just a few helpful hints from an old lady.

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Marylou8 here.  I'm an old lady too!

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@colleenyoung

Welcome @lemdjm.
Please allow me to introduce you to fellow Connect members @marylou705 @jewel8888 @jerseygirl926 @julz @boxermomma and @slbeall, all of who have spoken about psoriatic arthritis. Hopefully they will have some thoughts about managing joint pain.

Joint pain and stiffness are known side effects of Arimidex (anastrozole) an aromatase inhibitor used for treating some types of breast cancer. You can read side effects in this drug info from Mayo Clinic http://mayocl.in/2m5bKo9. You may also wish to post a message in the Connect Breast Cancer group to this discussion about anastrozole:
– Concerned about the side effects of anastrozole http://mayocl.in/2d4tiKL

I can imagine that you’re concerned about starting anastrozole again. Anastrozole is one of 3 aromatase inhibitors. Each has a different set of side effects. Perhaps a different drug would be better for you. Have you talked to your oncologist about taking exemestane (Aromasin) or letrozole (Femara)?

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I have had PsA for many years. I think it started while I was in South America and I got strep throat. I’ve been bopping along since then with various biologicals and Tramadol. But in the last couple of months or so, I’ve been floored by widespread pain and exhaustion. My Rheumatologist is great and he is trying me on Humira as of last Wednesday. He gave me a short Rx for Norco, but I don’t think I can take it. It sends me to sleep but then I’m awake with nightmares! Last night I dreamt I became a shoplifter!! I’m wondering if I am having a flare of PsA. It’s being so joyful as keeps us going, in the Scottish idiom of my late Mother!

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@fransav

Hi! I’ve had PsA for many years, I am now 70. Been on Methotrexate, Azulfadine, & then finally Enbrel. Developed BOOP (lung disease), then MAI, so I needed to come off biologics. Went on Otezla that worked for a little over 2 years, then it stopped working! I’m in tremendous pain, and using prescription strength Advil. Ive been placed on meds for the MAI ( 3 antibiotics, 3X a week for 12 to 18 months) & hopefully, after 3 months, I can go back in n the biologics. Does anyone else have a similar situation? Thank you.

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I feel for you! I’m 69 and have tried Enbrel, Remicade, Cimzia and have just now started on Humira. I’m waiting for the axe to fall as to the copay. I liked Enbrel a lot, but we are both retired now and can’t afford the copay.

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@fransav

Hi! I’ve had PsA for many years, I am now 70. Been on Methotrexate, Azulfadine, & then finally Enbrel. Developed BOOP (lung disease), then MAI, so I needed to come off biologics. Went on Otezla that worked for a little over 2 years, then it stopped working! I’m in tremendous pain, and using prescription strength Advil. Ive been placed on meds for the MAI ( 3 antibiotics, 3X a week for 12 to 18 months) & hopefully, after 3 months, I can go back in n the biologics. Does anyone else have a similar situation? Thank you.

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I am 51 and can not take embrel or humara because of cancer. I have been put on otezla, hopefully that will do something. I was on tremedol for years, then had to be upped to norco for about five years then to morphine and percocet. Sucks having this because alot of doctors don’t seem to know much about it except for the rhemotologist.

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Hello all, I'm new. I have Psoriatic Arthritis. I look foward to getting to know you!

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@joanelle77

Hello all, I'm new. I have Psoriatic Arthritis. I look foward to getting to know you!

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@jpenner68 I agree there just had inj.in back 5days I was miserable and still 3weeks later still hurting .

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@joanelle77

Hello all, I'm new. I have Psoriatic Arthritis. I look foward to getting to know you!

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Hi, @joanelle77 — I've merged your
discussion on psoriatic arthritis with this one @johnbishop suggested, in hopes you can meet some of the members here like @marylou70 @lemdjm @peach414144 @oldkarl @kozlo52 and others. Hoping they might have some insights on dealing with this condition while being unable to take either opioids or steroids. Wondering if you could tell us more about your intolerance of steroids and what's happened with them, @joanelle77?

@jpenner68 — I notice that you were typing in ALL CAPS in a couple posts. Just wanted to mention that we advise against using all caps in the community guidelines https://connect.mayoclinic.org/page/about-connect/tab/community-guidelines/. The reason is that all caps are considered shouting in online communications. However, a few members on Connect have to or prefer to use all caps due to typing difficulties (sore hands) or other medical issues. Is that why you use all caps sometimes?

It sounds like you've had a bad time with side effects from steroids, @jpenner68. Will you share a bit about your experiences with them?

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@joanelle77

Hello all, I'm new. I have Psoriatic Arthritis. I look foward to getting to know you!

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Sorry if sometimes I write with capital letters. There are times I do want to emphathise and then there are times I do not realize I an writing with capital letters. I am slowly going blind as I have mentioned before in some of my posts. This has been mentioned to me at least three times. I am sorry but sometimes I cannot help this. I feel as though I am being hurt. Deliberatly or unknowingly it still hurts me. If you want me to stop being a part of the group then say it directly to me. And then shame on you. I am sorry if I hurt any one's feelings. (Notice I have not mentioned the persons name as I do not want to hurt anyone.) Sorry for this post and love to all. Peach

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I certainly do not care if you write in CAPS

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@joanelle77

Hello all, I'm new. I have Psoriatic Arthritis. I look foward to getting to know you!

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No worries, @peach414144 — I was just letting some new members know about our request about all caps, since they may not know about that yet. It was not directed to you, and apologies if this caused any hurt. It was not meant to be hurtful to anyone, and we ask about use of all caps as sometimes members have a medical reason for doing so, which we honor. You are a long-time member, and we value your participation and really want you to continue to be a part of the community. Thanks for all the help you offer, @peach414144, to members with psoriatic arthritis and many other health conditions.

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@joanelle77

Hello all, I'm new. I have Psoriatic Arthritis. I look foward to getting to know you!

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Hello @joanelle77 and @jpenner68

I am glad that you joined this discussion on psoriatic arthritis. By reading these posts, you will meet lots of folks who are also dealing with this disorder. @peach414144 is one of our faithful members who posts quite frequently and she is very open to helping others on Connect!

I look forward to getting to know you both better and understanding what your concerns and questions might be regarding this type of arthritis.

If you care to share, what is the most difficult symptom that you deal with?

Teresa

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@joanelle77

Hello all, I'm new. I have Psoriatic Arthritis. I look foward to getting to know you!

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Hello, dealing with the most difficult symptoms of psoriatic arthritis is a hard one to answer because: even though one of the symptoms might be considered a small one: It is not because of the many degrees of each small or large attack. And when the one attack is over another one comes into being even before the original one might still be going on. It has a mind of it's own. When the rash is leaving you smile but all of a sudden one of the joints, ankle, knee, shoulder knee or even the neck starts to hurt, then swells and here we go again. Sometimes there are no episodes for years. With me, I think a lot of it is from anguish, fear, ptsd, bad dreams and other conditions of the same nature. I usually say to myself "thank you god it is not cancer." If any one needs to know more I most certainly do like to help so please ask me whatever you would like to know. Love to all Peach

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