Psoriatic Arthritis

Posted by lemdjm @lemdjm, Feb 27, 2017

I am a 74 year old female who has had psoriasis for over 40 years. The psoriasis was present on my scalp and ears in flares from time to time. I never experienced joint swelling and joint pain until recently. About one month ago I experienced an abrupt onset of severe joint swelling in my hands wrists, feet, and neck with severe pain. At first I suspected that it might have been related to my oncology medication, Arimedex that I began taking approximately 4 months before my sudden joint problems began. Testing ruled out Rheumatoid Arthritis and Lupus. My oncologist did not think that the joint issues could be related to the Arimedex, however, he recommended that I suspend taking the cancer medication for 4 weeks while I was given oral Prednisone for 23 days (referred to as Pulse and taper). I am on day 22 of the Prednisone and the joint swelling and pain is no longer present. My oncologist wants me to resume the Arimedex, however, I am afraid that the severe joint pain will return. I am hopeful that additional diagnostic testing will determine the underlying cause of my joint swelling. If anyone reading this has had similar problems or any information related to my situation I would be interested in your comments. Thank you.
lemdjm

@joanelle77

Hello all, I'm new. I have Psoriatic Arthritis. I look foward to getting to know you!

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Thank you Peach

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@oregongirl

I certainly do not care if you write in CAPS

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Thank you Peach

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@joanelle77

Hello all, I'm new. I have Psoriatic Arthritis. I look foward to getting to know you!

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@peach414144 — YOU ARE A REAL PEACH! I love your value add when you post. I especially like how you post from the heart a lot and are so encouraging to new members here on Connect (old ones like me too!). I sometimes use all caps for emphasis or in titles but I try not to write everything in caps mostly because I think it's a little harder to read since most writing is lower case with the first letter in caps and I think we are used to it. So, YES you are a valuable and important part of Connect. We all are. Every member adds value and brings a unique experience. Thank you for being here on Connect.

John

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@joanelle77

Hello all, I'm new. I have Psoriatic Arthritis. I look foward to getting to know you!

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Thank you John and everyone.

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@peach414144 I certainly an not offended with caps I enjoy hearing from you

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I have Psoriatic Arthritis and am having a problem getting the correct meds for this. I have tried Methotrexate, caused hail loss,also side effects are terrible! Now trying Leflunomide, same thing terrible side effects. Isn’t there simpler meds for this?

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@10071923

I have Psoriatic Arthritis and am having a problem getting the correct meds for this. I have tried Methotrexate, caused hail loss,also side effects are terrible! Now trying Leflunomide, same thing terrible side effects. Isn’t there simpler meds for this?

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@10071923 I just saw an add about Enbrel for Psoriatic arthritis have you tried this?

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@lioness

@10071923 I just saw an add about Enbrel for Psoriatic arthritis have you tried this?

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Hi Lioness, No I have not. I took Methotrexate for about two years, it helped a lot for me, only it made my hair start thinning. I stopped taking this, because I thought I was smarter than my doctor. The only thing that helped my itchy scalp was two or three drops of tea tree oil (really strong smell) in Any shampoo. Needless to say I went back to the doctors and she put me on Leflunomide (generic) I just started this. I have drug insurance. Take my advice Costco has cheap prices, cheaper than Walmart! Sandra

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@10071923

Hi Lioness, No I have not. I took Methotrexate for about two years, it helped a lot for me, only it made my hair start thinning. I stopped taking this, because I thought I was smarter than my doctor. The only thing that helped my itchy scalp was two or three drops of tea tree oil (really strong smell) in Any shampoo. Needless to say I went back to the doctors and she put me on Leflunomide (generic) I just started this. I have drug insurance. Take my advice Costco has cheap prices, cheaper than Walmart! Sandra

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@sandra I hope this helps if not ask the Dr about Enbrel its been on the market 15+ years.

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My psoriasis and psoriatic arthritis disappeared almost completely when I became gluten free. Try it for a month or two. If it's going to work you should see some results by then and it can't hurt to be gluten free. Love & blessings.

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@pamelathree

I will be moving to the Jacksonville area and need to find a specialist to treat psoriasis of the toe. Anyone else have this?

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Hello @pamelathree, welcome to Connect. Have you thought about going to Mayo Clinic Jacksonville? They would have specialists for treating psoriasis of the toe. If you would like to seek help from Mayo Clinic, contact one of the appointment offices. The contact information for Minnesota, Arizona and Florida can be found here http://mayocl.in/1mtmR63.

Mayo Clinic does have some information on diagnosis and treatment that may be helpful:
https://www.mayoclinic.org/diseases-conditions/psoriatic-arthritis/diagnosis-treatment/drc-20354081

I'm tagging our moderator @ethanmcconkey to see if we should move your post to the following discussion so it will have more visibility and you can meet other members discussing similar symptoms and learn what they are doing for treatments.

> Groups > Autoimmune Diseases > Psoriatic Arthritis
https://connect.mayoclinic.org/discussion/psoriatic-arthritis-257d5c/

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I will be moving to the Jacksonville area and need to find a specialist to treat psoriasis of the toe. Anyone else have this?

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Hi @pamelathree you may have noticed I moved your post to this existing discussion about psoriatic arthritis as @johnbishop suggested. I did this so that you can meet other members with this condition who may be able to offer you support. Simply click VIEW & REPLY in your email notification to see your post.

As we wait for others to join in on the conversation, are you comfortable telling us more about you? How long ago were you diagnosed? How are your symptoms? How are you currently being treated?

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@cpwg

My rheumatologist has prescribed Cosentyx for my Psoriatic arthritis, wondering if any of you use Cosentyx and how long before you noticed any improvement.

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Hello @cpwg, Welcome to Connect. There is another discussion for psoriatic arthritis where your post will receive more visibility and you can meet other members with discussing treatments and sharing what helps them. I'm tagging our moderator @ethanmcconkey to see if we should move your post to the following discussion.

> Groups > Autoimmune Diseases > Psoriatic Arthritis
https://connect.mayoclinic.org/discussion/psoriatic-arthritis-257d5c/

It sounds like you have not noticed any improvement yet. May I ask how long you have been on Cosentyx?

I did find some user reviews on Drugs.com that may be helpful — User Reviews for Cosentyx to treat Psoriatic Arthritis: https://www.drugs.com/comments/secukinumab/cosentyx-for-psoriatic-arthritis.html

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My rheumatologist has prescribed Cosentyx for my Psoriatic arthritis, wondering if any of you use Cosentyx and how long before you noticed any improvement.

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