Psoriatic Arthritis

Posted by lemdjm @lemdjm, Feb 27, 2017

I am a 74 year old female who has had psoriasis for over 40 years. The psoriasis was present on my scalp and ears in flares from time to time. I never experienced joint swelling and joint pain until recently. About one month ago I experienced an abrupt onset of severe joint swelling in my hands wrists, feet, and neck with severe pain. At first I suspected that it might have been related to my oncology medication, Arimedex that I began taking approximately 4 months before my sudden joint problems began. Testing ruled out Rheumatoid Arthritis and Lupus. My oncologist did not think that the joint issues could be related to the Arimedex, however, he recommended that I suspend taking the cancer medication for 4 weeks while I was given oral Prednisone for 23 days (referred to as Pulse and taper). I am on day 22 of the Prednisone and the joint swelling and pain is no longer present. My oncologist wants me to resume the Arimedex, however, I am afraid that the severe joint pain will return. I am hopeful that additional diagnostic testing will determine the underlying cause of my joint swelling. If anyone reading this has had similar problems or any information related to my situation I would be interested in your comments. Thank you.
lemdjm

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@fransav

Hi! I’ve had PsA for many years, I am now 70. Been on Methotrexate, Azulfadine, & then finally Enbrel. Developed BOOP (lung disease), then MAI, so I needed to come off biologics. Went on Otezla that worked for a little over 2 years, then it stopped working! I’m in tremendous pain, and using prescription strength Advil. Ive been placed on meds for the MAI ( 3 antibiotics, 3X a week for 12 to 18 months) & hopefully, after 3 months, I can go back in n the biologics. Does anyone else have a similar situation? Thank you.

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to reply to you will just continue your vendetta. you should not hurt others to make yourself feel better. think i am wasting my time but i think everybody is worth another try.. don’t you think so?

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@fransav

Hi! I’ve had PsA for many years, I am now 70. Been on Methotrexate, Azulfadine, & then finally Enbrel. Developed BOOP (lung disease), then MAI, so I needed to come off biologics. Went on Otezla that worked for a little over 2 years, then it stopped working! I’m in tremendous pain, and using prescription strength Advil. Ive been placed on meds for the MAI ( 3 antibiotics, 3X a week for 12 to 18 months) & hopefully, after 3 months, I can go back in n the biologics. Does anyone else have a similar situation? Thank you.

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Give it up, you are not helping anyone with anything you posted. Others that seem to know what they are talking about , do help as they know what is going on.

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I was diagnosed with Psoriatic Arthritis almost 4 years ago now and I’m about to turn 55. I was also diagnosed with Fibromaylgia and a plethora of auto immune diseases AND structural issues. I have been in pain since I was very small but didn’t know anything. I only saw the right type of doctor 4 years ago. I must admit, I have wonderful doctors. I call them “Team Andrea” and you better be good if you wanna be on “The Team.” The only bad dr. experiences I’ve had is with pain mgmt dr’s. I’ve burned thru 4 practices and finally found the right human being for me. I just want too say, we are one of the strongest groups of human beings I’ve ever encountered. I love us but I hate the disease. <3

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@fransav

Hi! I’ve had PsA for many years, I am now 70. Been on Methotrexate, Azulfadine, & then finally Enbrel. Developed BOOP (lung disease), then MAI, so I needed to come off biologics. Went on Otezla that worked for a little over 2 years, then it stopped working! I’m in tremendous pain, and using prescription strength Advil. Ive been placed on meds for the MAI ( 3 antibiotics, 3X a week for 12 to 18 months) & hopefully, after 3 months, I can go back in n the biologics. Does anyone else have a similar situation? Thank you.

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Good morning @peach414144 and @djfd,
It looks like this discussion is going a bit off the rails. Connect is built on respect and support. Please exercise tolerance and respect toward other participants whose views may differ from your own. Disagreements are fine, but mutual respect is a must.

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@asf1234

I was diagnosed with Psoriatic Arthritis almost 4 years ago now and I’m about to turn 55. I was also diagnosed with Fibromaylgia and a plethora of auto immune diseases AND structural issues. I have been in pain since I was very small but didn’t know anything. I only saw the right type of doctor 4 years ago. I must admit, I have wonderful doctors. I call them “Team Andrea” and you better be good if you wanna be on “The Team.” The only bad dr. experiences I’ve had is with pain mgmt dr’s. I’ve burned thru 4 practices and finally found the right human being for me. I just want too say, we are one of the strongest groups of human beings I’ve ever encountered. I love us but I hate the disease. <3

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Pain management doctors can be a joke. I am on fourth referral, first three called day of appointment, cancelled and said they don’t treat my condition. No one seems to know anything about psoriatic arthritis, nor do they seem interested in finding out. They just let us suffer

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Mine won’t let me suffer…I’m just so tired of trying things that don’t work via injection. The back injections didn’t work but I did have about 10 neck injections on Tuesday and it’s REALLY helping. I’m in NYC so I have an endless supply of doctors here. I wish you did too! @djfd

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@asf1234

Mine won’t let me suffer…I’m just so tired of trying things that don’t work via injection. The back injections didn’t work but I did have about 10 neck injections on Tuesday and it’s REALLY helping. I’m in NYC so I have an endless supply of doctors here. I wish you did too! @djfd

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thank you for sharing. on another note, it’s not the quantity of doctors, it is the QUALITY. it is easy to give up. every time i do i am right back up again. what else is new? try, try again. don’t let the doctors treat you as a ginie (can’t spell) pig. they make good money that way. i thank the fact that there are still the “good” doctors out there. rambling on and on. for what it’s worth, enjoy, turn on a movie. just watched “deep water horizon” WOW!.

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i forgot to add. yes, the pain and swelling will return again and again. and then stay away for years. who knows? maybe for good. try to enjoy it when you can. i had my miracle for the day. watching a hummingbird fly from one flower to another.

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@peach414144

i forgot to add. yes, the pain and swelling will return again and again. and then stay away for years. who knows? maybe for good. try to enjoy it when you can. i had my miracle for the day. watching a hummingbird fly from one flower to another.

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and on another note. while seeing a pain management doctor for more than a year i was dismissed. she did me a favor. do not get hooked on the controlled medications. why do i think this way? perhaps because of the 80 years of experience? just one word WAIT!

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@peach414144 I am like you, Peach. I stay away from the pain medications. It seems that the more you take, the more you need. And when you try to stop taking them, the pain is even more excruciating. I understand some people need it. I, however, have only taken them for a day or two after surgery. Then I stop. Not to be gross, but they also constipate me and that is just an awful feeling. I have enough to deal with! I swim two to three times a week, I try to walk, I listen to up-beat music, I count at least 5 blessings every day, I sleep on a Thermapedic mattress, I take warm jetted baths, I go to physical therapy when I need it, and I pray. I am by no means all sunshine and smiles every day! Some days I get extremely mad and frustrated at the pain and my circumstances. I allow myself a day in bed or some time to vent and be angry. Then I start putting one foot in front of the other again and try to fight the good fight. The answers to pain are different for all of us. I, personally, would be so willing to try medical marijuana, but it is illegal in my state. If it does become available, that is one pain remedy I would try.

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@fransav

Hi! I’ve had PsA for many years, I am now 70. Been on Methotrexate, Azulfadine, & then finally Enbrel. Developed BOOP (lung disease), then MAI, so I needed to come off biologics. Went on Otezla that worked for a little over 2 years, then it stopped working! I’m in tremendous pain, and using prescription strength Advil. Ive been placed on meds for the MAI ( 3 antibiotics, 3X a week for 12 to 18 months) & hopefully, after 3 months, I can go back in n the biologics. Does anyone else have a similar situation? Thank you.

Jump to this post

@peach414144 Sometimes people in pain lash out. And, yes, people who apologize should be given a second chance. I know I have at times been unkind when I am in pain; especially when I feel frustrated by my husband asking “well, why do you think you hurt today?” Don’t get me wrong, he is very supportive but sometimes not so bright when it comes to verbalizing! LOL! At any rate, I always try my best not to take things too personally. We are each on our own journey. Some of us agree one way and some agree another and some don’t agree with any of us. That’s okay. People being different is what makes life challenging but also fun! Hang in there!

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My joints so bad they are replacing my knuckles on one hand, only take meds when needed, been on for over ten years no problems

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