Prolia treatment for osteoporosis

Posted by Veruska @veriska, Mar 7, 2017

I received the results from my bone test and they have recommended I start Prolia. I have read the side effects and I am concerned. Has anyone use this drug and if so what side effects have you experienced. Thank you

@sue225

How lucky you are to still have your parents! Maybe you have inherited the longevity gene.

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Just realized, maybe just your mum but that's wonderful.

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@contentandwell

@cireland I love mushrooms, but shitake mushrooms have an odd taste to me and I don't care for them much.

@sue225 I actually already do eat many of the things mentioned. I guess I will try to cut out egg yolks. I generally have about three eggs a week. The last time I tried to eat whites without yolks, or with a low proportion of yolks to whites, it upset my stomach and then I read that egg whites are more apt to cause a reaction then egg yolks! When that happens if I don't eat any eggs for a while I can then return to eating them.

I've been using the vegan version of "I can't believe it's not butter" because that has no dairy in it, and I have recently come to realize that some problems I have been having are from lactose intolerance.
JK

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Recently I started having fantasies about eating a soft-boiled egg on toast (glutenfree). After not eating an egg for six years, I fell off the wagon. It was wonderful. As I am now on cholesterol medication, I allow myself one egg every three weeks. Its the small pleasures in life.

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@lippemouse

Well, my father had four things wrong and I only got one – so I am OK. I am able to tolerate the statin and Fosimax also. My Mother is turning 100 next month and her brother is 98. I am very active and involved in LOTS of things so I hope that I can be around for a long time. I still work – making jewelry.

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@lippemouse My cholesterol is high also Mine is hereditary from my Dad but Creator brought it down earlier so started it again We use to do gemstone jewelry is this what you do?or glass my friend here does this some pretty pieces .

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@sue225

Recently I started having fantasies about eating a soft-boiled egg on toast (glutenfree). After not eating an egg for six years, I fell off the wagon. It was wonderful. As I am now on cholesterol medication, I allow myself one egg every three weeks. Its the small pleasures in life.

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@sue225 Was your cholesterol very high? My PCP said I could have up to three egg yolks a week so maybe mine is not too, too bad.
JK

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@contentandwell

@sue225 Was your cholesterol very high? My PCP said I could have up to three egg yolks a week so maybe mine is not too, too bad.
JK

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We measure cholesterol differently in Canada. So a normal level of total CHO is 5.2. Havevl to multiple by 39 to convert to your system. So, before starting Repatha, my LDL # all by itself was 6.18!!! Which is 241 in your system. Anyway on the Repatha it dropped by 50% to about 127 or cdn 3.26. I didnt ask the doctor about eggs this time. I just think its better for me to avoid them.

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@sue225

These foods I mentioned are part of the "Portfolio Diet". It is a plant-based diet designed to lower cholesterol by as much as 30%. It was developed by a number of researchers at St.Michael's hospital in Toronto. Google Dr. David Jenkins who is a Professor of Nutritional Sciences at the University of Toronto and head of a clinic at St. Michael's Hospital. He developed the concept of the glycemic index.
The diet works. I did follow it for about 2 years with the exclusion of barley and whole wheat grains as I am a celiac. Dr. Jenkins practices what he preaches: he is a vegan. I still make a delicious baked tofu dish on a regular basis.

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I bought TOFU & have no idea what to do with it. If you are sharing, please give the recipe for your 'delicious baked tofu dish' . THX so Very Much ! from Susan V

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@susan30

I bought TOFU & have no idea what to do with it. If you are sharing, please give the recipe for your 'delicious baked tofu dish' . THX so Very Much ! from Susan V

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Buy a block of extra firm tofu. All tofu should be drained of excess water for 15min. Extra firm has the least amount of water and the most protein so for a beginner its the easiest to deal with. To drain it, wrap paper towelling around the block and place something heavy on top. I place a plastic lid on top of the tofu and on top of that a heavy stone rabbit that sits on my window ledge.
Get a baking dish. Place thinly sliced onion on the bottom of the dish. (Medium onion). Slice the tofu into slabs. Place on top of the onions.
In a bowl, mix:
2 tbsp soy sauce
4 tbsp water (if you have leftover chicken broth in a carton in the frig that works too)
1 to 2 tbsp canola oil
2 tbsp of grated ginger
Sugar (1/2 tbsp or less)
Sometimes I add a tbsp or more of ketchup or a tbsp of thai chili sauce. Not in the original recipe but adds something.
Pour sauce over tofu. Turn the slices so both sides are coated.
I like to do this the night before or in the morning to let the tofu absorb the flavors.
Bake at 350 for about 20 minutes. My husband likes the tofu chewier so sometimes I let it bake a little longer.
Serve with brown rice.
I hope you like it.

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@susan30

I bought TOFU & have no idea what to do with it. If you are sharing, please give the recipe for your 'delicious baked tofu dish' . THX so Very Much ! from Susan V

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The tofu slices should lay flat, next to each other, not overlapping.

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@sue225

Buy a block of extra firm tofu. All tofu should be drained of excess water for 15min. Extra firm has the least amount of water and the most protein so for a beginner its the easiest to deal with. To drain it, wrap paper towelling around the block and place something heavy on top. I place a plastic lid on top of the tofu and on top of that a heavy stone rabbit that sits on my window ledge.
Get a baking dish. Place thinly sliced onion on the bottom of the dish. (Medium onion). Slice the tofu into slabs. Place on top of the onions.
In a bowl, mix:
2 tbsp soy sauce
4 tbsp water (if you have leftover chicken broth in a carton in the frig that works too)
1 to 2 tbsp canola oil
2 tbsp of grated ginger
Sugar (1/2 tbsp or less)
Sometimes I add a tbsp or more of ketchup or a tbsp of thai chili sauce. Not in the original recipe but adds something.
Pour sauce over tofu. Turn the slices so both sides are coated.
I like to do this the night before or in the morning to let the tofu absorb the flavors.
Bake at 350 for about 20 minutes. My husband likes the tofu chewier so sometimes I let it bake a little longer.
Serve with brown rice.
I hope you like it.

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@sue225 I have only had tofu one time and did not care for it, but this recipe sounds like it might be good. One of these days I may try it. Thanks for the directions.
JK

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Sorry folks but I am going to bow out of this chat room. Take care, Micki

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@contentandwell

@sue225 I have only had tofu one time and did not care for it, but this recipe sounds like it might be good. One of these days I may try it. Thanks for the directions.
JK

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You're welcome. My friend's daughter, who is a vegetarian, loves it.

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@contentandwell

@sue225 Was your cholesterol very high? My PCP said I could have up to three egg yolks a week so maybe mine is not too, too bad.
JK

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@contentandwell THIS IS WHAT THE DR TOLD MY BROTHER IT ISNT EGG YOLK,S it was hereditary

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@ritafarmer

I also read some of this. I think that the increased risk of heart attack and stroke means that this will be reserved for a select number of patients. I was able to use Forteo (the one where you give yourself a daily injection using a pen). It can only be used for two years. It is the drug that gave me the most dramatic increase in bone density.

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Since I posted this, I have had a chance to look at cardiovascular concerns. I fell very hard on my back in a parking lot at the end of February (we'd had a lot of ice and snow,). In a freakish event, I landed so hard on my back that everything bounced up against my chest and broke my sternum. If you ever fall on your back and immediately have the most awful pain in your chest, you've probably broken your sternum. Good knews is that I didn't break a hip or vertebra, possibly due to 20 years of treatment for what was then severe osteoporosis (I was only 40). After almost 3 months, x-rsy showed no change in the fracture. I dutifully called my rheumatologist to report this. Her nurse called me back and said that Evenity was a possibility.

I immediately did more research. When I read the full prescribing information, I noted that increased incidence was also noted with women with no history of cardiovascular issues. I then found a free peer-reviewed article (https://www.ncbi.nlm.nih.gov/m/pubmed/30775535/?i=13&from=romosozumab) that answered my other question. The increased incidence of cardiovascular events continued AFTER the 12 months during which the drug can be taken.

I discussed this with my primary care provider. A previous chest x-ray taken to rule out pneumonia had noted that I have a "tortuous thoracic artery." He said this means "that I am 60" and that in spite of very low history of cardiovascular issues in ancestors who lived into their 90's, I have a little bit of calcification in this artery. It probably won't cause any issues, but he recommended that I NOT take Evenity–at least not until there is more research into the cardiovascular risk. I don't want to be the first person in my family to die of a heart attack or stroke. Just my view on this issue.

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@veriska

I want to thank everyone for your reply. It helps with my decision. I am at -2.9. Has anyone started Prolia at or above that degree?

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Yes, started at about the same and a bit lower in the spine. Just had 3rd injection. After one year, up 11.6% for the spine and almost 7% in the hip.

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@jaleen

I appreciate your response and that of others in the group about the efficacy of Forteo and Prolia, but I am disappointed that no one mention how much improvement (% according to a dexa-scan) they have made. I have 3 friends who had the 2-year treatment with Forteo. Results were 0%, 2% and 5% improvement. I don't happen to think that small amount of improvement is worth the risks involved with Forteo and the user reviews I've read are not at all reassuring as some reported horrendous pain and disability after starting the treatment. About Prolia, same thing – small improvement (2 %) that hardly compensates for the risks involved. A doctor in Canada even told a traveling companion of mine  - "Don't you DARE go on Prolia – it's very hard on the system."

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Got my bone density results in May after one year (2 injections) on Prolia. Spine: up 11. 6%, hip almost 7%. Endocrinologist very pleased with results. Had 3rd injection.

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