@rubyjane

To date I have had 3 Prolia injections. I have had no negative effects. Since it is expensive it is best if you check with your insurance people to verify that they will cover the cost.

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I HAD A PROLIA INJECTION TODAY I FEEL FINE NO SIDE AFFECTS

I was first diagnosed with osteoporosis in about 2001. I tried Fosamax. I tried another similar drug from the same family which left my kidney disease worse. My nephrologist suggested I stop and I did. I am -4.5 in my hip and -4 in my spine. Prolia was suggested numerous times by my endocrinologist but I have refused. I am highly sensitive to drugs. 3 drugs have sent me to cardiac ER care for a week each. All with life-threatening BP numbers – 260/130. One was Livalo, a cholesterol drug! My endocrinologist approved physical therapy for resistance training. I have been doing it for over 2 years. Last year when I had my bone density scan, it had stopped the bone loss in my spine. Not my hip. I am headed to Mayo to try and determine how my body metabolizes certain drugs. I will let you know what I find out. End of May.

@loiscapecod

Hi All. I have been on Prolia for almost 2 years and have severe osteoporosis. I fell and fractured my left hip in April of 2016 and recovered from that. Last August I started experiencing intermittent pain in my left femur which has gotten progressively worse. I am now taking Gabapentin and am going to see a pain specialist. Has anyone else experienced severe pain like this from prolia? I have scoliosis and spinal stenosis and the pain in my lower back has gotten a lot worse since being on prolia.

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I don't know if its coincidental but my chronic back pain has worsened over the last year. In addition, my arthritis in my hips is also worse. I started Prolia injections one year ago, May 2018. Returning to osteo clinic for f/u bone density and third injection. Will discuss with endocrinologist. Will also see if Prolia has increased my bone density.

@sue225

I don't know if its coincidental but my chronic back pain has worsened over the last year. In addition, my arthritis in my hips is also worse. I started Prolia injections one year ago, May 2018. Returning to osteo clinic for f/u bone density and third injection. Will discuss with endocrinologist. Will also see if Prolia has increased my bone density.

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I hope it works for you! Did nothing for me in 5 years. Encronoigist has me on Tymolos shots. I hope they work.

@user_chf56161a

I hope it works for you! Did nothing for me in 5 years. Encronoigist has me on Tymolos shots. I hope they work.

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Thanks. Will have the results on May 15th.

@hilsy

I'll definitely update on my mom after every shot… 6 weeks now and no side effects to date:) Good luck with your decision. It is hard.

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I'm not sure if I'm posting in the right place. I posted about a year ago to do with my mom and Prolia. She has had another two shots with no side effects! She may be due for a bone density scan – I have to ask.

Does anyone know about the new drug from Amgen? I asked my mom's dr. about it today as it was approved by the FDA a couple of months ago but they don't have it yet. It sounds like it's far above the other bone-building drugs in terms of effectiveness. However, who knows how long it will be until it's widely used? I think it's called Evenity.

@hilsy

I'm not sure if I'm posting in the right place. I posted about a year ago to do with my mom and Prolia. She has had another two shots with no side effects! She may be due for a bone density scan – I have to ask.

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Like a positive outcome.

@hilsy

Does anyone know about the new drug from Amgen? I asked my mom's dr. about it today as it was approved by the FDA a couple of months ago but they don't have it yet. It sounds like it's far above the other bone-building drugs in terms of effectiveness. However, who knows how long it will be until it's widely used? I think it's called Evenity.

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Hello @hilsy,

I appreciate your sharing about the new drug, Evenity. All of us with bone-thinning problems look forward to hearing of new drugs to treat this problem.

As I had not heard about Evenity previously, I researched a little bit and found this information on drugs.com. Here is the link, https://www.drugs.com/nda/evenity_190121.html. The manufacturer also has information available but often that is harder for a lay-person to understand.

Here is a link, however, to a press release regarding the drug, https://www.amgen.com/media/news-releases/2019/04/fda-approves-evenity-romosozumabaqqg-for-the-treatment-of-osteoporosis-in-postmenopausal-women-at-high-risk-for-fracture/.

@hilsy, are you asking about this drug for yourself or for a family member?

@hilsy

I'm not sure if I'm posting in the right place. I posted about a year ago to do with my mom and Prolia. She has had another two shots with no side effects! She may be due for a bone density scan – I have to ask.

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I had to wait a year for bone density scan.

@user_chf56161a

I had to wait a year for bone density scan.

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Are you in Canada or the U.S.? Why the wait? After starting Prolia, it is normal to wait one year. Takes that long to know if the drug is effective. Or is the wait for another reason?

@hopeful33250

Hello @hilsy,

I appreciate your sharing about the new drug, Evenity. All of us with bone-thinning problems look forward to hearing of new drugs to treat this problem.

As I had not heard about Evenity previously, I researched a little bit and found this information on drugs.com. Here is the link, https://www.drugs.com/nda/evenity_190121.html. The manufacturer also has information available but often that is harder for a lay-person to understand.

Here is a link, however, to a press release regarding the drug, https://www.amgen.com/media/news-releases/2019/04/fda-approves-evenity-romosozumabaqqg-for-the-treatment-of-osteoporosis-in-postmenopausal-women-at-high-risk-for-fracture/.

@hilsy, are you asking about this drug for yourself or for a family member?

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I also read some of this. I think that the increased risk of heart attack and stroke means that this will be reserved for a select number of patients. I was able to use Forteo (the one where you give yourself a daily injection using a pen). It can only be used for two years. It is the drug that gave me the most dramatic increase in bone density.

@ritafarmer

I also read some of this. I think that the increased risk of heart attack and stroke means that this will be reserved for a select number of patients. I was able to use Forteo (the one where you give yourself a daily injection using a pen). It can only be used for two years. It is the drug that gave me the most dramatic increase in bone density.

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My endocrinologist 's advice was to prescribe Forteo for the allotted time to be then followed by Prolia. I chose to just start with Prolia (understanding that the increase in bone density would not be as rapid). The "side effect" of osteosarcoma worried me as there is so much cancer in my family. (grandparents, mother, sister, brother, first cousins). Also, I have that ventricular tachycardia arrythmia and I had read that some patients experienced a racing heart after the injection. So, that's why for me, (and who knows if it was the right choice) I opted for Prolia. Now I'll shortly discover if there has been any improvement.
This new biologic Evenity seems to have both the bone-building feature of Forteo and the slowing of the breakdown of bone properties of Prolia. (Notice it has a warning related to cardiovascular issues). There never is the perfect
no side effect drug! (On the otherhand the long term side effects of a broken hip are horrible).

Positive Prolia results! Bone Density test revealed 11.4% improvement in the spine and 6.5% in the hip. My endocrinologist was very pleased with the results. If only I had taken her advice and started Prolia four years ago. I see things differently now. For those who may be worrying about the side effects of the drug, I now believe the side effects from a fractured hip would be ever so much worse. Calling the nurse in the osteoporosis clinic tomorrow to book my third injection. (And so far, no side effects).

@sue225

Positive Prolia results! Bone Density test revealed 11.4% improvement in the spine and 6.5% in the hip. My endocrinologist was very pleased with the results. If only I had taken her advice and started Prolia four years ago. I see things differently now. For those who may be worrying about the side effects of the drug, I now believe the side effects from a fractured hip would be ever so much worse. Calling the nurse in the osteoporosis clinic tomorrow to book my third injection. (And so far, no side effects).

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I agree! My mother and her four siblings all had broken hips. I do NOT want to join them.