Prolia treatment for osteoporosis

Posted by Veruska @veriska, Mar 7, 2017

I received the results from my bone test and they have recommended I start Prolia. I have read the side effects and I am concerned. Has anyone use this drug and if so what side effects have you experienced. Thank you

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@smtamt

@ritafarmer How long you have been with Prolia? Did your see any noticeable improvement in bone density in your spine and hips? is prolia effective in reducing hip fracture?

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I just got the copy of my none density. I have been on Prolia for 3-1/2 years. For the spine, my T-score increased from -2.8 to -2.3. The femoral neck and total femur did not change. I am now 59. I was diagnosed with severe osteoporosis at the age of 41. At that time, my spine was -3.7, my femoral neck was -2.6, and my mean femur was -2.5. It has taken 17 years for me to see this type of increase. I have been on Fosomax, Forteo, Reclast, and Prolia. I saw the greatest increase during the two years that I was on Forteo. The problem with it for people on Medicare is that it's going to be covered on the prescription drug plan, and it's expensive. I don't know if the manufacturer has made any special deal for Medicare recipients. @smtant

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there are alot of posts with different information and we know Prolia is different for every person. I have posted here on the same issue. I have been working out for over 1 1/2 years. At the one year mark, I had my bone density done. It is a -2.5. My workouts have halted the progression of osteoporosis in my spine! No, it will not rebuild bone but no one can tell me how sturdy that rebuilt bone is. Some people have rebound fractures. I will take my chances with exercise, adding vitamin K2, magnesium to my diet.

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how many years do you take prolia i have been taking it for four years have a lot of balance and knee and foot problems

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@veriska

I want to thank everyone for your reply. It helps with my decision. I am at -2.9. Has anyone started Prolia at or above that degree?

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I am at a negative 3.8 and will start Prolia next week. I have done much research and hope for a good return on this medication. I am nervous about starting the medication.

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Good luck and let us know how it goes

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I am new to this feed, I hope it’s ok to post/ask. I had a treatment of Reclast last year due to multiple compression fractures and scores of -1.9, I’m 44. This year I’m at -2.4 which is an almost 8% decrease with reclast. I honestly don’t have much faith in my endocrinologist. She’s very overworked and very short tempered. Unless I fly somewhere she’s my only option. I’m also currently dealing with cancer in my nasal cavity. My last conversation with her was basically short and left me crying. She said she didn’t think either drug Forteo or Prolia would be a problem with what’s happening in my nose, and she didn’t care which one I choose I just had to pick. Now I will say when I had the reclast I ended up in the hospital for two days on fluids and pain meds as it was terrible and very scary. She said it must be something else causing it because reclast doesn’t do that. I’m sorry for such a long post. I just feel lost. I really want a second opinion, I’m just don’t know where to go. I had to edit, as I realized I didn’t really ask a question. So basically has anyone had cancer and used either medication? Thank you in advance!

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@mauikg

I am new to this feed, I hope it’s ok to post/ask. I had a treatment of Reclast last year due to multiple compression fractures and scores of -1.9, I’m 44. This year I’m at -2.4 which is an almost 8% decrease with reclast. I honestly don’t have much faith in my endocrinologist. She’s very overworked and very short tempered. Unless I fly somewhere she’s my only option. I’m also currently dealing with cancer in my nasal cavity. My last conversation with her was basically short and left me crying. She said she didn’t think either drug Forteo or Prolia would be a problem with what’s happening in my nose, and she didn’t care which one I choose I just had to pick. Now I will say when I had the reclast I ended up in the hospital for two days on fluids and pain meds as it was terrible and very scary. She said it must be something else causing it because reclast doesn’t do that. I’m sorry for such a long post. I just feel lost. I really want a second opinion, I’m just don’t know where to go. I had to edit, as I realized I didn’t really ask a question. So basically has anyone had cancer and used either medication? Thank you in advance!

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There has got to be a better endocrinologist for you! I live in CT and just found out that Yale has a bone center so I’m setting up a consult. Maybe look at the good hospitals in your area and get a referral. You shouldn’t be reduced to tears. You should be hopeful after a visit. Best of luck

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@mauikg

I am new to this feed, I hope it’s ok to post/ask. I had a treatment of Reclast last year due to multiple compression fractures and scores of -1.9, I’m 44. This year I’m at -2.4 which is an almost 8% decrease with reclast. I honestly don’t have much faith in my endocrinologist. She’s very overworked and very short tempered. Unless I fly somewhere she’s my only option. I’m also currently dealing with cancer in my nasal cavity. My last conversation with her was basically short and left me crying. She said she didn’t think either drug Forteo or Prolia would be a problem with what’s happening in my nose, and she didn’t care which one I choose I just had to pick. Now I will say when I had the reclast I ended up in the hospital for two days on fluids and pain meds as it was terrible and very scary. She said it must be something else causing it because reclast doesn’t do that. I’m sorry for such a long post. I just feel lost. I really want a second opinion, I’m just don’t know where to go. I had to edit, as I realized I didn’t really ask a question. So basically has anyone had cancer and used either medication? Thank you in advance!

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You definitely need a second opinion. If a endocrinologist is not easily available, I would make an appointment with another type of medical doctor and get their opinion. It sounds like you have lost confidence in your endocrinologist and it is important that one can trust and talk to whoever is managing your healthcare. I have had osteoporosis for many years and I see a doctor of internal medicine. I took oral medicine for over five years with little improvement in my numbers, and some disturbing side-effects. It has now been over five years since I made decision to stop taking osteoporosis drugs and I might add, I refuse tests to even check my numbers as I have no intention at this time of taking them again! I've felt much better the last five years since going off the meds. I eat a diet for good bone health, exercise, and watchful that I don't do activities that might compromise my bones. My bone health may or may not have improved, but I absolutely will not go back on meds again until there are "proven" better drugs on the market. I don't know how much pain or disability you have due to your osteoporosis, but if it isn't a huge problem, maybe stepping back from the osteoporosis meds for awhile and concentrating only on the treatment for your cancer would be something you could consider. Wishing you the very best, and also my prayers.

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@cherriann

You definitely need a second opinion. If a endocrinologist is not easily available, I would make an appointment with another type of medical doctor and get their opinion. It sounds like you have lost confidence in your endocrinologist and it is important that one can trust and talk to whoever is managing your healthcare. I have had osteoporosis for many years and I see a doctor of internal medicine. I took oral medicine for over five years with little improvement in my numbers, and some disturbing side-effects. It has now been over five years since I made decision to stop taking osteoporosis drugs and I might add, I refuse tests to even check my numbers as I have no intention at this time of taking them again! I've felt much better the last five years since going off the meds. I eat a diet for good bone health, exercise, and watchful that I don't do activities that might compromise my bones. My bone health may or may not have improved, but I absolutely will not go back on meds again until there are "proven" better drugs on the market. I don't know how much pain or disability you have due to your osteoporosis, but if it isn't a huge problem, maybe stepping back from the osteoporosis meds for awhile and concentrating only on the treatment for your cancer would be something you could consider. Wishing you the very best, and also my prayers.

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@mauikg I agree with others about getting a new Dr. Never should a Dr do this to anyone she needs to be reported to the AMA I would suggest you concentrate on the nasal ca are you with a ENT Dr? He can guide you future My girlfriend took reclast 1time had severe side effects she stopped did exercises with weights to strength the bones do water aerobics even push of from wall will built strength you need

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@suze317

There has got to be a better endocrinologist for you! I live in CT and just found out that Yale has a bone center so I’m setting up a consult. Maybe look at the good hospitals in your area and get a referral. You shouldn’t be reduced to tears. You should be hopeful after a visit. Best of luck

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I live in Hawaii and have Kaiser healthcare. I am happy to pay out of pocket, but not sure I could realistically get all the way to Yale. I will check it out thank you!! I am leaning towards letting my nose heal than address this, but with my back its hard to ignore.

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@cherriann

You definitely need a second opinion. If a endocrinologist is not easily available, I would make an appointment with another type of medical doctor and get their opinion. It sounds like you have lost confidence in your endocrinologist and it is important that one can trust and talk to whoever is managing your healthcare. I have had osteoporosis for many years and I see a doctor of internal medicine. I took oral medicine for over five years with little improvement in my numbers, and some disturbing side-effects. It has now been over five years since I made decision to stop taking osteoporosis drugs and I might add, I refuse tests to even check my numbers as I have no intention at this time of taking them again! I've felt much better the last five years since going off the meds. I eat a diet for good bone health, exercise, and watchful that I don't do activities that might compromise my bones. My bone health may or may not have improved, but I absolutely will not go back on meds again until there are "proven" better drugs on the market. I don't know how much pain or disability you have due to your osteoporosis, but if it isn't a huge problem, maybe stepping back from the osteoporosis meds for awhile and concentrating only on the treatment for your cancer would be something you could consider. Wishing you the very best, and also my prayers.

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Thank you!! I agree and am finally feeling more confident to stand up for myself. My Dr, is I believe just way overworked, and can't handle the case load. Its unfortunate.

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@mauikg

Thank you!! I agree and am finally feeling more confident to stand up for myself. My Dr, is I believe just way overworked, and can't handle the case load. Its unfortunate.

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I agree that you should stand up for yourself. I see a rheumatologist for my osteoporosis treatment. Maybe you can continue to look for potential doctors while completing your cancer treatment.

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