Prolia treatment for osteoporosis

Posted by Veruska @veriska, Mar 7, 2017

I received the results from my bone test and they have recommended I start Prolia. I have read the side effects and I am concerned. Has anyone use this drug and if so what side effects have you experienced. Thank you

@tikigod18

@marib: Interestingly enough I watched a Prolia commercial this weekend and examined what it said. The side effects took longer to list than anything positive, but what I looked at was what many of us should think about; what REALLY is our risk of a fall leading to a broken bone? If you don't climb stairs or hold a banister when you do, if you don't have small children or dogs with toys to trip over, if you don't live around or walk on ice, if you hold on to a shopping cart in a grocery store to avoid wet floors and slippery conditions, if you do exercise as much as possible…..then what really IS your risk of fracture, compared to risking the side effects of these drugs? I don't know the answer, but I find that MOST pharmaceuticals have known and hidden side effects, and natural treatments often work as well if not better.

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Two months before I turned 50 I tripped and fell and broke my left wrist. Becuse I had read an article in NPR, I inisisted on a Bone Density Scan. I live in Switzerland and my doctor here was not in agreement but I insisted. I was diagnosed with Osteoporosis and took Bonviva injections for two years. It got worse and I switched to Prolia. I just had my DEXA scan last week after two years on Prolia and there is improvement in my bone density… still Osteoporosis though. I am 54 now and in trying to get to the root cause have discovered Normocalcemic Hyperparathyroidism. In September I had to have my thyroid removed and one parathyroid. Now my parathyroid hormone is through the roof again am scheduled for a scan at the beginning of January hoping to find the troublesome parathyroid and have it removed. Hyperparathyroidism contributes to Osteoporosis. This was a long winded reply to say… so far, Prolia has worked for me and I have no side effects that I know of. At my age and the level of my Osteoporosis, I am trusting my specialist. It does worry me though that I can never go off of this sort of medication.

@tikigod18

@marib: Interestingly enough I watched a Prolia commercial this weekend and examined what it said. The side effects took longer to list than anything positive, but what I looked at was what many of us should think about; what REALLY is our risk of a fall leading to a broken bone? If you don't climb stairs or hold a banister when you do, if you don't have small children or dogs with toys to trip over, if you don't live around or walk on ice, if you hold on to a shopping cart in a grocery store to avoid wet floors and slippery conditions, if you do exercise as much as possible…..then what really IS your risk of fracture, compared to risking the side effects of these drugs? I don't know the answer, but I find that MOST pharmaceuticals have known and hidden side effects, and natural treatments often work as well if not better.

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Absolutely agree with you on all accounts! Great points in weighing the benefits of taking these drugs or not taking them. Vitally important to consider that the side effects can be long-time or "life-long" even if you stop taking them!

Liked by lioness

@tikigod18

@marib: Interestingly enough I watched a Prolia commercial this weekend and examined what it said. The side effects took longer to list than anything positive, but what I looked at was what many of us should think about; what REALLY is our risk of a fall leading to a broken bone? If you don't climb stairs or hold a banister when you do, if you don't have small children or dogs with toys to trip over, if you don't live around or walk on ice, if you hold on to a shopping cart in a grocery store to avoid wet floors and slippery conditions, if you do exercise as much as possible…..then what really IS your risk of fracture, compared to risking the side effects of these drugs? I don't know the answer, but I find that MOST pharmaceuticals have known and hidden side effects, and natural treatments often work as well if not better.

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I recently found out that I have Osteopenia, -2.2, and my doctor had recommended Prolia. My insurance would not pay for it so she then prescribed Boniva, orally. I took one dose and the next day had the worst back pain I have ever had. I will not take it again and after reading about Prolia I don't want to take it either. I am 61 and outside of living in Nebraska where we have ice quite often, I am going to take my chances and try eating more calcium rich foods and doing some weight excercises. I used to think that if a med could fix things I should go for it but I have experienced side effects more often lately and I am done with them!.

@ladonnae

I recently found out that I have Osteopenia, -2.2, and my doctor had recommended Prolia. My insurance would not pay for it so she then prescribed Boniva, orally. I took one dose and the next day had the worst back pain I have ever had. I will not take it again and after reading about Prolia I don't want to take it either. I am 61 and outside of living in Nebraska where we have ice quite often, I am going to take my chances and try eating more calcium rich foods and doing some weight excercises. I used to think that if a med could fix things I should go for it but I have experienced side effects more often lately and I am done with them!.

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I am 75 and have had three Prolia shots, which I regret. Like Fosamax, which I took for years, I just don't feel that enough is known about long-term results, and have postponed my 4th which was scheduled next week. My specialist readily admitted to me that there simply are no good pharmaceutical options available right now. If you haven't already, I suggest joining the Facebook support groups for osteoporosis – there are several. In addition to exercising and diet, I would suggest looking into supplements and how they are best absorbed by your bones. I have added K2 and boron to the calcium citrate, magnesium and D I was already taking. Additionally, I switched from magnesium oxide to magesium citrate. I just wish at your age I had been more diligent about all of the above. I am not into social media at all, but my son helped me join in such a way that my exposure is limited, but I still have access to things like the support groups..

Liked by lioness

@ladonnae

I recently found out that I have Osteopenia, -2.2, and my doctor had recommended Prolia. My insurance would not pay for it so she then prescribed Boniva, orally. I took one dose and the next day had the worst back pain I have ever had. I will not take it again and after reading about Prolia I don't want to take it either. I am 61 and outside of living in Nebraska where we have ice quite often, I am going to take my chances and try eating more calcium rich foods and doing some weight excercises. I used to think that if a med could fix things I should go for it but I have experienced side effects more often lately and I am done with them!.

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@ladonnae I also have had Osteopenia for at least 8 yrs but I started weight lifting every day ,yes eating more calcium but along with calcium you need Vitamin D3 have your lab work done before I was put on D3 mine was very low.Buy it from a good company not drugstore kind also Magnesium all 3complement each other Im a retired nurse and like you know what side effects there are from meds be your own advocate you know your body wish more people like you would do this Blessings to you

@ladonnae

I recently found out that I have Osteopenia, -2.2, and my doctor had recommended Prolia. My insurance would not pay for it so she then prescribed Boniva, orally. I took one dose and the next day had the worst back pain I have ever had. I will not take it again and after reading about Prolia I don't want to take it either. I am 61 and outside of living in Nebraska where we have ice quite often, I am going to take my chances and try eating more calcium rich foods and doing some weight excercises. I used to think that if a med could fix things I should go for it but I have experienced side effects more often lately and I am done with them!.

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@ladonnae has anyone ever mentioned Reclast to you? It’s a one time a year infusion for osteoporosis. I’ve had this infusion done for six years. Now I’ve been on a “vacation” from the Reclast for two years; so, I’ve not had the infusion or anything else for two years. It remains in your system for that time span. I’m fortunate in that I have no side effects. I’ve had no further bone loss and some small bone growth.
I’m 66 and live in MN with lots of snow and ice. This last year I’ve fallen twice where I was sure I’d broken my foot bones because of lots of pain. No breaks or even small cracks at all.
Maybe something worth checking into for yourself.

I had one shot of Prolia and do not recommend it. I could not get up off the sofa and had a hard time walking. I could only walk for a short distance and had to stop and sit down. My body ached for weeks after that shot and I think it is a dangerous drug.

Liked by tikigod18, oneof6

@ladonnae

I recently found out that I have Osteopenia, -2.2, and my doctor had recommended Prolia. My insurance would not pay for it so she then prescribed Boniva, orally. I took one dose and the next day had the worst back pain I have ever had. I will not take it again and after reading about Prolia I don't want to take it either. I am 61 and outside of living in Nebraska where we have ice quite often, I am going to take my chances and try eating more calcium rich foods and doing some weight excercises. I used to think that if a med could fix things I should go for it but I have experienced side effects more often lately and I am done with them!.

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You are smart to avoid Prolia and focus on weights and walking.

Liked by tikigod18

Bravo to you for being brave and sharing your feeling about Prolia being a dangerous drug! Together "We" can hopefully save others from the pain!

@cherriann

Absolutely agree with you on all accounts! Great points in weighing the benefits of taking these drugs or not taking them. Vitally important to consider that the side effects can be long-time or "life-long" even if you stop taking them!

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Great insights. Can you share "life long" information even if you stop taking them? I have asked doctors, "If there is an antidote?" They say, "No!"

@crenhov

Two months before I turned 50 I tripped and fell and broke my left wrist. Becuse I had read an article in NPR, I inisisted on a Bone Density Scan. I live in Switzerland and my doctor here was not in agreement but I insisted. I was diagnosed with Osteoporosis and took Bonviva injections for two years. It got worse and I switched to Prolia. I just had my DEXA scan last week after two years on Prolia and there is improvement in my bone density… still Osteoporosis though. I am 54 now and in trying to get to the root cause have discovered Normocalcemic Hyperparathyroidism. In September I had to have my thyroid removed and one parathyroid. Now my parathyroid hormone is through the roof again am scheduled for a scan at the beginning of January hoping to find the troublesome parathyroid and have it removed. Hyperparathyroidism contributes to Osteoporosis. This was a long winded reply to say… so far, Prolia has worked for me and I have no side effects that I know of. At my age and the level of my Osteoporosis, I am trusting my specialist. It does worry me though that I can never go off of this sort of medication.

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Do you know what the side effects are 18 months after you stop taking this medication? Have you read the latest European report?

@llwortman

Great insights. Can you share "life long" information even if you stop taking them? I have asked doctors, "If there is an antidote?" They say, "No!"

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It has been about 4 years since I took the one Prolia shot and I still cannot walk as far as I used to and sometimes have to stop and rest.

Liked by lioness

I have not read the latest European report.

Can anyone post this report or direct people to a site?

I had 3 Prolia injections, one each year for three years. I had muscle aches and pains and with each injection I had an infection within that 6 month period that required antibiotic treatment. The doctor wants me to take these injections every six months now since the drug company has found out that 9 women experienced multiple spinal fractures when they stopped the Prolia. I am afraid to take any more of this medication because it seems to affect my immune system and now I am worried that I will have spinal fractures if I don't take it.

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