Learn how to use Mayo Clinic Connect
Request an Appointment
I received the results from my bone test and they have recommended I start Prolia. I have read the side effects and I am concerned. Has anyone use this drug and if so what side effects have you experienced. Thank you
Interested in more discussions like this? Go to the Bones, Joints & Muscles group.
smtamt: I am too new a member to be allowed to post a link. I tried, but no go. If you go to Facebook and search osteoporosis you will see all the different groups listed. You can choose one or all to join. I joined them all wanting to be as prepared and informed as possible! They are "closed" groups, so in theory your posts are not public.
Jump to this post
At least give the website.
Yes, I have had three Prolia injections, the most recent this past June. I am not sure what you mean by backdated, but I have continued Evista (raloxifene) for breast cancer risk at the recommendation on my oncologist due to having had breast cancer in the past.
in reply to @mabel343 Generally Evista is not given to normal patients because it increases the risk of blood clot in the lung and legs and also induces stroke and deep vein thrombosis. Did your bone density in spine and hips improve after giving three prolia injections? Is it true that stopping prolia induces rebound fracture?
@smtamt sorry I don’t know the numbers/details
Did you ask your mother's doctor that prolia induces rebound fracture and one will be addicted to it.
rebound fractures oh so true!!!
you have to ask your doctor for this.
Please see some of my posts. @veriska can you help with that? It is my understanding that most posts I have read don't guarantee new bone growth. If it does, it is only while you are taking Prolia. BUT you cannot be on it long term. Then you have to switch to something like Boniva, etc. (which I cannot take because it makes my kidney disease worse. So in my estimation, Prolia only buys you some time. If you stop it, some people have noticed a rebound in the disease.
I have not been told that there is a time limit for being on Prolia. I think that you can be on it indefinitely. The only drug I have seen with a time limit is Fortea (2 years). There is continual research going on in this area, and there will probably be new drugs coming along.
Hope that the new drug will magically improve the bone density of not just the spine but also the hips.
So far as I know, all of the drugs increase bone density in the spine faster than the hip, but the spine is also important. Compression fractures of the spine are very painful and can put a person in a wheel chair. Any increase on none density of the hip is protective against hip fractures, but as you get older, it's important to work on your balance and do whatever you can to prevent falls, even if it means using a cane or walker.
Hip fracture also makes one bed-ridden and ultimately bed-sores which is very painful in old age. So can you tell me one drug which increases bone density in the hips (i.e., femur neck left and femur neck right)?
Tjis is a question that you need to ask your doctor or pharmacist.
the website IS Facebook. Facebook.com. You go to the upper left where they have a search space. Search the word osteoporosis. There will be about 4-5 groups. You DO I think need to "join" Facebook, but there is not charge.
Connect with thousands of patients and caregivers for support and answers.
Already have an account? Sign In