1. < Osteoporosis & Bone Health

Prolia treatment for osteoporosis: What is your experience?

Posted by Veruska @veriska, Mar 7, 2017

I received the results from my bone test and they have recommended I start Prolia. I have read the side effects and I am concerned. Has anyone use this drug and if so what side effects have you experienced. Thank you

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user_chf56161a | @user_chf56161a | Sep 19, 2018

I have been getting prolia shots twice a year for years. I have not had any side effects from injection s.

REPLY
3 replies
tikigod18 | @tikigod18 | Sep 19, 2018
In reply to @user_chf56161a "I have been getting prolia shots twice a year for years. I have not had any..." + (show)
@user_chf56161a

I have been getting prolia shots twice a year for years. I have not had any side effects from injection s.

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user_chf56161a: Have you seen any positive changes in bone density scores?

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harborside24 | @harborside24 | Sep 19, 2018
In reply to @ritafarmer "My rheumatologist is very knowledgeable about drugs as she was a pharmacist before becoming a doctor...." + (show)
@ritafarmer

My rheumatologist is very knowledgeable about drugs as she was a pharmacist before becoming a doctor. I was on teriparatide for two years and saw a large increase in bone density--i believe it usually increases the BMD in the spine more than the hip. I was on reclast for 3-4 years. My doctor then recommended prolia. She said that what she liked was that BMD continued to increase after stopping prolia.

I was diagnosed with severe osteoporosis at the age of 40--most likely due to use of steroid inhalers for my asthma. After 18 years of treatment with fosomax, teriparatide, reclast, and now prolia, I have finally progressed from severe osteoporosis to osteopenia. I am now 58. I am going to continue treatment as I do not want to have a broken hip at the age of 87 as my mother did. This is not a 2-3 year treatment that will fix everything. It's a long journey, and one that I'm willing to take to prevent spine compression fractures.

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Thank you for sharing this. So wonderful that you are doing well.

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smtamt | @smtamt | Sep 19, 2018
In reply to @ritafarmer "My rheumatologist is very knowledgeable about drugs as she was a pharmacist before becoming a doctor...." + (show)
@ritafarmer

My rheumatologist is very knowledgeable about drugs as she was a pharmacist before becoming a doctor. I was on teriparatide for two years and saw a large increase in bone density--i believe it usually increases the BMD in the spine more than the hip. I was on reclast for 3-4 years. My doctor then recommended prolia. She said that what she liked was that BMD continued to increase after stopping prolia.

I was diagnosed with severe osteoporosis at the age of 40--most likely due to use of steroid inhalers for my asthma. After 18 years of treatment with fosomax, teriparatide, reclast, and now prolia, I have finally progressed from severe osteoporosis to osteopenia. I am now 58. I am going to continue treatment as I do not want to have a broken hip at the age of 87 as my mother did. This is not a 2-3 year treatment that will fix everything. It's a long journey, and one that I'm willing to take to prevent spine compression fractures.

Jump to this post

Does Prolia leads to rebound fracture in the long run? Can one stop prolia after 5 years or stopping Prolia will again enhance breaking of bones in hips and spine?

REPLY
smtamt | @smtamt | Sep 19, 2018
In reply to @user_chf56161a "I have been getting prolia shots twice a year for years. I have not had any..." + (show)
@user_chf56161a

I have been getting prolia shots twice a year for years. I have not had any side effects from injection s.

Jump to this post

Has it improved bone density in your hips? What is the T-score of femur neck right and femur neck left ?

REPLY
mabel343 | @mabel343 | Sep 19, 2018
In reply to @user_chf56161a "I have been getting prolia shots twice a year for years. I have not had any..." + (show)
@user_chf56161a

I have been getting prolia shots twice a year for years. I have not had any side effects from injection s.

Jump to this post

I have had three injections, the first in June of 2017 and the third in June of 2018. During the past 14 months, I have experienced debilitating fatigue, joint pain, persistent cough, acid reflux, and now, shockingly, hair loss. And while the dexa scan at one year showed there was an increase in bone density in my hips, there was a significant loss in the spine. Has anyone else experienced any of this? I feel this drug has destroyed my quality of life, and am inclined to stop.

REPLY
1 reply
smtamt | @smtamt | Sep 19, 2018
In reply to @mabel343 "I have had three injections, the first in June of 2017 and the third in June..." + (show)
@mabel343

I have had three injections, the first in June of 2017 and the third in June of 2018. During the past 14 months, I have experienced debilitating fatigue, joint pain, persistent cough, acid reflux, and now, shockingly, hair loss. And while the dexa scan at one year showed there was an increase in bone density in my hips, there was a significant loss in the spine. Has anyone else experienced any of this? I feel this drug has destroyed my quality of life, and am inclined to stop.

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Are you talking about Prolia? How old are you? what is the T-score of your A P spine and hips?

REPLY
1 reply
tikigod18 | @tikigod18 | Sep 20, 2018

mabel343: Not sure you CAN stop. am reading from others that once you start, to stop causes a lot of problems. Facebook has a great group about osteoporosis with some good info on the different medications.

REPLY
1 reply
smtamt | @smtamt | Sep 20, 2018
In reply to @tikigod18 "mabel343: Not sure you CAN stop. am reading from others that once you start, to stop..." + (show)
@tikigod18

mabel343: Not sure you CAN stop. am reading from others that once you start, to stop causes a lot of problems. Facebook has a great group about osteoporosis with some good info on the different medications.

Jump to this post

is stopping of Prolia induces rebound fracture? Can you provide the link of the Facebook where problems on osteoporosis are discussed?

REPLY
1 reply
smtamt | @smtamt | Sep 20, 2018

Is stopping of Prolia induces rebound fracture of hips and spine? Kindly confirm.

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