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tinadish
@tinadish

Posts: 5
Joined: Dec 03, 2018

Prognosis What does chronic mean?

Posted by @tinadish, Mon, Dec 3 8:47am

@lisalucier Do you know what the word chronic means with a diagnosis of chronic cerebral small vessel ischemic disease? I thought I was a young 59-year-old, but this year I feel like I have aged a lot. Problems with balance, memory, spelling, strange body sensations etc. My neurologist doesn’t seem to explain things very well to me. Or maybe it’s just me. I also have PTSD, major recovery and depressive disorder, and anxiety. All seem to be getting worse. I need some answers and advice. Please help

REPLY

I thought I would reply since you have not gotten an answer. Chronic simply means ongoing. It is not something that comes and then disappears.

@johnhans

I thought I would reply since you have not gotten an answer. Chronic simply means ongoing. It is not something that comes and then disappears.

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Thank you for the reply @johnhans

@tinadish

Thank you for the reply @johnhans

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You are welcome Tina.

Hi, @tinadish – welcome to Mayo Clinic Connect. That is tough to feel that you have aged a lot from your condition.

I wanted to recommend a couple Connect groups in addition to the Brain & Nervous system one in which you posted, based on your mention of PTSD, major recovery and depressive disorder, and anxiety:

– Mental Health group https://connect.mayoclinic.org/group/mental-health/

– Depression & Anxiety group https://connect.mayoclinic.org/group/depression-anxiety/ (these topics were large enough that we created a group just on these two mental health topics)

If you go to the group pages here, you might scroll down through the discussions and see if there are any that might interest you for reading or posting.

Are you now taking medication for the symptoms you mentioned, like problems with balance, memory, spelling, strange body sensations?

@lisalucier

Hi, @tinadish – welcome to Mayo Clinic Connect. That is tough to feel that you have aged a lot from your condition.

I wanted to recommend a couple Connect groups in addition to the Brain & Nervous system one in which you posted, based on your mention of PTSD, major recovery and depressive disorder, and anxiety:

– Mental Health group https://connect.mayoclinic.org/group/mental-health/

– Depression & Anxiety group https://connect.mayoclinic.org/group/depression-anxiety/ (these topics were large enough that we created a group just on these two mental health topics)

If you go to the group pages here, you might scroll down through the discussions and see if there are any that might interest you for reading or posting.

Are you now taking medication for the symptoms you mentioned, like problems with balance, memory, spelling, strange body sensations?

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@lisalucier I was advised by my neurologist to take an 81 mg aspirin every day, take blood pressure med., eat healthy and exercise everyday for 30 minutes. I am also going to physical therapy for left side weakness. Is this all I can do?? Doesn’t help with memory, weird body sensations or driving or for finding my words or confusion. Will this lead to demitasse? She didn’t address that. Thanks for any info.

@tinadish

@lisalucier I was advised by my neurologist to take an 81 mg aspirin every day, take blood pressure med., eat healthy and exercise everyday for 30 minutes. I am also going to physical therapy for left side weakness. Is this all I can do?? Doesn’t help with memory, weird body sensations or driving or for finding my words or confusion. Will this lead to demitasse? She didn’t address that. Thanks for any info.

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@lisalucier I meant Demetis…..

@tinadish

@lisalucier I meant Demetis…..

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Hi, @tinadish – I'm understanding that your doctor has you taking 81 mg aspirin and blood pressure meds as well as exercise daily, plus do PT and eat healthy for your chronic cerebral small vessel ischemic disease. Yet, you are still noting memory issues, weird body sensations, issues finding words and confusion. Is this correct?

While I am not a medical professional and cannot offer medical advice, I can connect you to some others who may have some input for you, like @hopeful33250 @jenniferhunter and @johnbishop.

Have you had the opportunity to talk to the nursing staff or send an electronic portal message to your doctor/his office about your concerns about these remaining symptoms and how they will be addressed, and any possibilities of where they may lead?

Hello @tinadish, I was not familiar chronic cerebral small vessel ischemic disease but I did a search and found an article that I hope may be helpful.

Cerebral Small Vessel Disease: What to Know & What to Do
https://betterhealthwhileaging.net/cerebral-small-vessel-disease/

I agree with @lisalucier that I would talk with your nursing staff to see if they can help.

John

@lisalucier

Hi, @tinadish – I'm understanding that your doctor has you taking 81 mg aspirin and blood pressure meds as well as exercise daily, plus do PT and eat healthy for your chronic cerebral small vessel ischemic disease. Yet, you are still noting memory issues, weird body sensations, issues finding words and confusion. Is this correct?

While I am not a medical professional and cannot offer medical advice, I can connect you to some others who may have some input for you, like @hopeful33250 @jenniferhunter and @johnbishop.

Have you had the opportunity to talk to the nursing staff or send an electronic portal message to your doctor/his office about your concerns about these remaining symptoms and how they will be addressed, and any possibilities of where they may lead?

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@lisalucier Thank you for your reply.

Hi @tinadish

Here is the Webster definition for the word, "chronic": "continuing or occurring again and again for a long time." So a chronic condition is something that will be with you for a longer time than an "acute disorder" like appendicitis where surgery will cure you from the appendicitis. Therefore, chronic disorders need time to adjust to and the realization that this will be with you for an extended period of time.

@tinadish, It sounds like you are doing some wonderful things: the meds, the PT, the daily exercise, the healthy eating are all just great! Remember it may take some time to notice improvements, if they are going to occur. Until then, you may have to adapt to a poorer memory by making "to-do" lists, posting reminders on your phone, your calendar or on post-it-notes. Continue to work on PT exercises to strengthen the left side of your body. If need be, use assistive devices (walkers, canes, etc.) to help you not fall when you have balance problems and you are in areas where falling might occur.

In addition, ALWAYS remember that it is your right to get a second opinion if you have concerns that your current medical team are not addressing to your satisfaction.

@tinadish Hi Tina. You've mentioned anxiety and trouble remembering things. I see you're 59 and those might be menopause symptoms. It affects women differently, but some experience a lot of anxiety. Every cell in a woman's body has estrogen receptors (even the brain) and when those levels drop, it just doesn't work as well. Sometimes there are multiple reasons for symptoms, and this could just be a part of it. Hot flashes and difficulty sleeping also go along with this. If you do bio-identical hormone replacement for this, estrogen needs to be balanced against progesterone, and your doctor needs to check to see how your body breaks down the hormones. If you don't break it down well, that is the trouble that can increase chances of hormone related cancers. The solution is simple in just taking a supplement from the doctor that aids in the detox. According to my doctor, the doses should be as low as possible that help with hot flashes because you don't want to cause the lining of the uterine wall to grow as it did during childbearing years. There are compounding pharmacies (also mail order ones) that make these hormones from soy derivatives. A functional medicine doctor or environmental allergy doctor (like mine) work with hormone replacement. Anxiety can also come from an overactive thyroid or if you are taking thyroid hormones, if the dose is too high. PTSD is treatable and there are therapists who specialize in that. I don't know if that stems from adult or childhood, but a good book about overcoming childhood trauma is this one https://donnajacksonnakazawa.com/childhood-disrupted/ I myself have experienced some long term anxiety and it's an awful feeling. I was able to figure out just why that happened to me and deprogram it. I was in need of spine surgery and this is what I was doing in the few years prior to that because I feared surgery. I also had trouble finding a surgeon willing to help me which is why I came to Mayo after 5 of them turned me down. I had spinal cord compression and it affected my arms. I'm an artist and I didn't want to loose that ability altogether. I can tell you that it worked. I overcame my fears after I figured out where they had come from in my past and how the present situation was triggering the memories of the fears. If you make friends with you fear, you can come to terms with it. My spine was fixed at Mayo, and my life was changed by all the things I did to help myself get through the experience. I no longer have these fears and I have a new confidence that was missing before. I started just by using music and deep breathing and learning to lower my blood pressure and I was measuring it before and after. I hope this gives you some hope that you can change your destiny. I'm glad you are exercising as that will help reduce stress and do wonders for your health. You may also want to read books by a Mayo doctor, Amit Sood https://marketplace.mayoclinic.com/shop/healthy-lifestyle/book/mayo-clinic-stress-management-combo_752700 The Guide to Stress Free Living gives you different ways to think about things and how to build resilience. I have them both and they are excellent. I didn't have these before I went through surgery, but reading them explained why my strategies to overcome my fears worked for me. Our brains are wired to pay extra attention to stressful events as a survival mechanism. Realizing that helps you recognize why it happens and opens the door to gain understanding.

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