Probably not ever going to be officially diagnosed

This is ME. I could have written this. I need some “me time” but he worries. Looks for me in the house if I’m in another room for 20 minutes…He still does all the things you mention to help around house, still drives to familiar places, and drives well…but has had trouble navigating to places that are not so familiar, even though his car has GPS and all he has to do is talk to it for directions. The advice I am given includes “continue to do things for yourself”, but that is looking less and less possible, going forward. Take care of yourself.

@pamela78 My father’s endless repetitions and loss of words also drives my brother around the bend when he flies in occasionally to see Dad on his way overseas. Despite it being several years now. When it first started happening I felt anger - and realised it came from fear. Fear of what it meant. Fear of the future. Now I know it’s Dad’s new normal and I accept that. It’s not helpful to remind him he has already told us that story or that he asked the same question a few minutes ago. I now always respond as if it was the 1st time he’d said it. He’ll say the same thing numerous times when we’re together. That’s ok. Dad takes comfort from speaking what he’s thinking. He can’t help it and it’s now a normal part of our communication ❤️‍🩹

I do the same. The schedule for the week. It helps reinforce what we are doing daily.

Sounds like our husbands are on the same path at this time. The thing I miss the most is meaningful conversation; sharing our day, the needs to be done around the house, planning trips, our discussions never include any future planning. His mind just doesn’t move forward with planning and I so miss that with him. We have been married 44 years and talking and sharing has always been an important part of our relationship.

Yes, exactly. I just got off the phone with my best friend. We talked for over two hours about everything under the sun. My husband's conversations, such as they are, take about five minutes, then get repeated. It's so sad as I know he wants to connect with me but so much is just gone. He says we're not as connected as we used to be and we're not. Both of us are sad.

I so understand. Our bucket list after we retired was traveling to Israel, out west…cowboy country 😊, and an Alaskan cruise. The first two were met with great enthusiasm and planning between us. Last Summer, three years after our trip out west, our daughter planned the cruise and though hubby was glad to go he had no interest in the planning or the details. He enjoyed the trip as it was happening, but he hasn’t really mentioned it since we returned. That is the hardest thing for me. Sharing life’s daily adventures through communication. He still drives although I usually help direct if it’s out of his regular routine. He goes with me to the grandkids events (although he has a difficult time recalling their names). He is great at household chores…almost to a fault, takes care of our 8 acre patch, but I have to handle any communicating of appointments, telephone calls, repairs, and all finances or anything having to do with running the household. He doesn’t have much interest in the TV, but does enjoy watching You Tube videos on his phone. He has on going conversations with those people all along believing they communicate with him as well. Have you experienced any of that? Thank you for sharing with me. This site helps me tremendously. Friends and family really don’t have any idea. We go through the motions when we go to church or anywhere else, and just to see us out you would never know what we are dealing with unless you have a one on one conversation with him and see his struggle to find the words and create the sentences needed to make sense. Reading other folks experiences here on the chat helps me to deal with mine. We are about four years into this journey.

We have a shared calendar on our phones…until recently, I was just going along thinking that was adequate. Now I realize he doesn't bother to check the phone calendar…so it is time for a whiteboard.

I learn a lot from the folks on here, and I thank you.

I keep everything on my phone calendar too, but he is not able to maneuver around much on his phone anymore. Just can’t remember how. He can answer it…when he will, he usually ignores it because he doesn’t want try to have a conversation on it. He can call me or his brothers and can open some apps he enjoys like You Tube. I am continuously showing him how to search for topics that might interest him. It’s just so hard for him to be living in a tech world and not able to maneuver about in it. .

I am a Care Giver for my wife; 3 months of depression - i assumed ... 6 more months of NO motivation ... we used to go to 3 different places to eat out during the month.

There WAS no real Summer. Things we did special for Fall; nothing!

Winter? i purchased a tree with lights the 2nd week of December...never got decorated.

Yes....there ARE no
meaningful conversations. I need a female to talk to - asking for trouble!

She used to constantly criticize. Now she is a Type B and soft spoken. ?????
Her brain scan (after waiting 5 months) came back as MILD !!!!

Frequent UTIs indicates something else... the Immune System has weakened. Not enough white blood cells to fight the infection - NEXT UP TO BAT

i feel like Linda's General Contractor with an array of doctors to "network" with each other!!!! Why IS that?

Anyone experience this in trying to have a true diagnosis of all the parts that make up Linda.

Keith

What topics on You Tube interest him?