Mayo Clinic Connect
Is there anyone else that has been diagnosed with this?
Liked by Teresa, Volunteer Mentor
David, I saw Dr Amir Lerman Rochester. I was unable to have bypass surgery so Dr recommended a Spinal Cord Stimulator for the pain. It's helped a lot. We go to church with a couple that goes there. I was so frantic I called Mayo Cardio Dept, told them what I was diagnosed with, she actually didn't ask "what's that". She helped me set up an appointment and get set up in the system
Liked by Kanaaz Pereira, Connect Moderator
I was recently diagnosed with Prinzmetal Angina and my cardiologist wants me to go to a specialist to try to control my symptoms. Stress and physical activity initiate my chest pains and soon after, I am taking my nitro. After that, I am in bed for the balance of the day and maybe the next day. I have had two heart attacks and four cardiac catheterizations with the placement of three stents. I am hoping to find a specialist here at the Mayo Clinic to allow my condition to be better controlled. David
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@davidwilliamson1954– Which Mayo are you considering? I only ask because I recently went to the Scottsdale, AZ. Mayo and I was seen by Dr. J. J. Lynch who I would highly recommend. All the best to you in getting the help and solutions you are looking for. @thankful.
Good afternoon.. I have been living with prinzmetals for many years. As most of you with the issue may know, the first episode sure felt like I was having a heart attack, then one week later it happened again, back to the ER, and then admitted for multi-testing, again. There were no blockages, and everything actually tested out quite normal. It was suggested that I had spasms, known as prinzmetals, and I continue to have them regularly today. I also have it "managed" as when an event occurs, I pop in a Nitro under the tongue, and away she goes. The reason I am writing now, is that I would like to find a specialist in Northern Illinois (near Antioch), or heck, I would travel anywhere really, that has good experience with prinzmetals. I'm hoping there's more of a proactive approach then my reactive pill popping. I'm no spring chicken here (56), and I play early morning Ice Hockey, and would like to continue playing, but without having to leave the ice to take a nitro.. sounds petty I'm sure, but if anyone knows a good specialist, I would be most grateful. Steve
Hi there. I was diagnosed yesterday with this condition after months of increasing chest pain and basically all of the symptoms of a heart attack. However, I am 42 years old and do not fit most of the health categories such as hypertension, high cholesterol, overweight, etc etc. Basically, the issue is due to genetics as my father died in his early 50s after having stents. However, I can no longer ask him about his issues and apparently this must have been passed down.
I am a little shocked when reading the information here and the fact so many people have had heart attacks due to the condition as well as other issues. This is different than what my cardiologist called it… "an annoying" disorder that would not "kill me". So now I am wondering if I should look further into the long term aspect of the condition and see what exactly I am up against because other than this, the only real health problem I have had so far is GAD… which, by the way, I thought this was for months because of being in denial about having a problem.
Any input or thoughts as to where to go in search of information would be great. I don't want to go overboard if this is something that will get better with diet and lifestyle modifications; however, I want to be realistic about what the future holds and also find out as much information as possible to pass to my children since this is apparently something that could greatly affect them later in life as well.
I was on April-13-2018
I am taking Isobride and amoldomine daily
The medication is working with a lot of prAyer
I babied my heart for years and continue to do so. Rare condition so not much know about it
It is annoying and scary
Would not wish this even on my enemies
It is a thorn in my flesh but manageable
Thank God for his help
I would likeore information also
Confusing and annoying and at times scary
does the Mayo clinic have any information on this rare condition
What did he say about it
Special diet exercise change in life style. Yoga and massage for stress management
What did the Dr recommend to manage condition
@angiemama1, it is brief, but there is some info on prinzmetal angina in women on here, https://www.mayoclinic.org/diseases-conditions/angina/symptoms-causes/syc-20369373.
In addition to the information that Justin provided, here's an article that has more details; Prinzmetal's angina is also known as variant angina or coronary vessel spasm/coronary artery vasospasm:
I was diagnosed with it about 10 years ago. I saw Dr Amir Lerman at Mayo Clinic in Minnesota. Absolutely wonderful and knows a lot about Prinzmetal. My case was severe and they put in a Spinal Cord Stimulator bc I couldn't have bypass. I realize the cost in traveling we had to refinance our home but it's so rare all you hear is WHATS THAT? The earlier you get to a Dr that knows about it the better. If you have a Facebook there is a Prinzmetal Support Group. Members from all over the world. If you have any questions please don't hesitate to contact me.
Hello, I was diagnosed with Prinzmetal in Jan 2018 and am now having symptoms from inflammation – sever rashes on hands and legs, blisters in top of mouth, exhaustion, moving pain in hip joint, ankle, knee and foot (all on the right side). Last year I had paralysis of right foot after having a tick bite with a bullseye on that same right foot. I went from being a competitive rower to not being able to walk my dog for more than 15 mins without severe pain. I am receiving PT, have seen a rheumatologist (he says no arthritis), and a neuropsychologists says I'm OK. My GP seems to have given up on me. My cardiologist prescribed Nitro for spasms. I have had many mild to moderate cardiac spasms in the last 6 months and one that took 2 doses of Nitro before subsiding. I'm not sure where to turn for help.
@tullah Has your cardiologist done any testing like Stress test,Echocardiogram or heart catheterization? The reason I ask my by pass surgery was done after all these test where done I was on the nitro patches before surgery triple by pass with 85%,90%95% blockage You are your own advocate so be proactive is my suggestion
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