Post-Intensive Care Syndrome (PICS) - Let's talk

Have you heard of Post-Intensive Care Syndrome? Sometimes it’s called post ICU syndrome or PICS. PICS is defined as new or worse health problems after critical illness. These problems can affect your mind, body, thoughts, and/or feelings.

On Connect we would like to bring together people who have been affected by critical illness, and hopefully lighten the burden you bear. Patients and family members welcome.

Grab a cup of tea, or beverage of your choice, and let’s chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Intensive Care (ICU) Support Group.

I burst out in tears like of and on for 7 months after my surgery and care at John Hopkins, it was so morbid. It took 7 months for me to stop
and the crying didn’t start immediately after leaving the hospital. I wonder if it is a combination of the drugs and trauma

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@elizabethbryant, Thank you for entering this discussion. The situation that I talked about was 8 years ago. I think that I, too, cried afterward, for no apparent reason. Then I would get my husband crying, because we had been through such an emotional event. I had always heard, from other people, that the drugs and trauma were part of it, but I really don’t know. Liz, how long ago was your surgery? Do you still have crying spells?
Sending you a hug, Rosemary

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Sending you a big hug. My surgery was in April and I cried for no reason, the drama of it all and more surgery the doc said to come.
Then two weeks before Christmas my husband abandoned He wasn’t up for the situation
as he became confused and we think he had a stroke during my surgery days he won’t eat or drink. I turned to my faith in desperation. By the grace of God I was able not be moved emotionally when I had lunch with him and my grandchildren during Christmas. When you walk through this with the
ones you love, we are blessed. Sharing on this site. “We light each others candle” with hope and helpful medical information.

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@rosemarya

@elizabethbryant, Thank you for entering this discussion. The situation that I talked about was 8 years ago. I think that I, too, cried afterward, for no apparent reason. Then I would get my husband crying, because we had been through such an emotional event. I had always heard, from other people, that the drugs and trauma were part of it, but I really don’t know. Liz, how long ago was your surgery? Do you still have crying spells?
Sending you a hug, Rosemary

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I spent 33 days in the ICU in 2006. I had some more stats during the last ten years too. I still have a hard time when I sit and think about it or when other people talk about theirs or family experiences. I too am very emotional and will cry out of nowhere. I feel like no one understands and. Ow people do not even ask

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@elizabethbryant

Sending you a big hug. My surgery was in April and I cried for no reason, the drama of it all and more surgery the doc said to come.
Then two weeks before Christmas my husband abandoned He wasn’t up for the situation
as he became confused and we think he had a stroke during my surgery days he won’t eat or drink. I turned to my faith in desperation. By the grace of God I was able not be moved emotionally when I had lunch with him and my grandchildren during Christmas. When you walk through this with the
ones you love, we are blessed. Sharing on this site. “We light each others candle” with hope and helpful medical information.

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@elizabethbryant, Thank you for the big hug that you send to all of us who read this message. And I send you a sincere thank you for sharing your powerful testimony of your faith and the strength that it has provided for you during your difficult journey.
I especially love what you said: ” Sharing on this site. “We light each others candle” with hope and helpful medical information.” That is our goal for our Connect conversations. We can share with others freely, without judgment. I am happy that you are part of our discussion. Rosemary

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@rosemarya

@elizabethbryant, Thank you for entering this discussion. The situation that I talked about was 8 years ago. I think that I, too, cried afterward, for no apparent reason. Then I would get my husband crying, because we had been through such an emotional event. I had always heard, from other people, that the drugs and trauma were part of it, but I really don’t know. Liz, how long ago was your surgery? Do you still have crying spells?
Sending you a hug, Rosemary

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@rsinger22, Yes it can be extremely difficult to be in those situations. I believe that it is okay to cry! In light of what you have endured, you have my permission to let the tears flow.
We, who are participating in the discussions on Connect do understand! Most of us have endured similar experiences, although the place, the time, the diagnosis might be different. We are here to share without judgment and to both receive and to offer support to others. I have learned a couple of things since I have been participating in these discussions: I am not alone in my struggles: it helps to talk (or write) about it; there is support for me; and I have found that I can support others and that feels good!
Remember that we do understand! we look forward to hearing from you if you would like to share.
Rosemary

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@rosemarya

@elizabethbryant, Thank you for entering this discussion. The situation that I talked about was 8 years ago. I think that I, too, cried afterward, for no apparent reason. Then I would get my husband crying, because we had been through such an emotional event. I had always heard, from other people, that the drugs and trauma were part of it, but I really don’t know. Liz, how long ago was your surgery? Do you still have crying spells?
Sending you a hug, Rosemary

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Thank you for joining us here @rsinger22. You are among people who understand. I hope that sharing in this conversation can help and heal. Welcome.

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@elizabethbryant

Sending you a big hug. My surgery was in April and I cried for no reason, the drama of it all and more surgery the doc said to come.
Then two weeks before Christmas my husband abandoned He wasn’t up for the situation
as he became confused and we think he had a stroke during my surgery days he won’t eat or drink. I turned to my faith in desperation. By the grace of God I was able not be moved emotionally when I had lunch with him and my grandchildren during Christmas. When you walk through this with the
ones you love, we are blessed. Sharing on this site. “We light each others candle” with hope and helpful medical information.

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@elizabethbryant Liz: What a great attitude you display in spite of your losses. i love the phase “We light each others candle” with hope and helpful medical information. So true of Mayo Connect! Thanks for that blessing! Teresa

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Hello, this is aechiku. I have been a nurse for 28 years, worked in Trauma ICU, Er Radiology and other critical care situations. And caring for critical patients, especially if it is very long term is very hard on the patient as well as the family and staff. I was not familiar with name of the condition mentioned before. However, The condition was there all the time. It is so stressful for the patient and family but also the staff caring for patients with life threatening or severe illness or conditions. I am glad it is being recognized and understood. God bless all who are suffering in this wa, Anita

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@milindohope83

Hello, this is aechiku. I have been a nurse for 28 years, worked in Trauma ICU, Er Radiology and other critical care situations. And caring for critical patients, especially if it is very long term is very hard on the patient as well as the family and staff. I was not familiar with name of the condition mentioned before. However, The condition was there all the time. It is so stressful for the patient and family but also the staff caring for patients with life threatening or severe illness or conditions. I am glad it is being recognized and understood. God bless all who are suffering in this wa, Anita

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Welcome Anita! We forget that ICU is hard on staff too. Grateful to have your perspective.

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