Possible Lupus and Getting An Appointment
For the past several years I have had fevers on and off and joint pain. However, I brushed off these (minor symptoms then) as a part of my job since I work as a Paramedic and my job is physically demanding. I recently had surgery for endometriosis, that turned out not to be endometriosis, but they only found a lot of petechiae in my pelvic and abdominal cavity. Since the surgery my joint pain as worsened, fevers have become an almost every day thing. Mind you I’ve also had rashes, hives, petechiae to my lower extremities, blood in my urine for over a year now, worsening fatigue, brain fog, muscle pain and flank pain, I also very recently developed the butterfly redness on my face. My old PCP didn’t believe it was an autoimmune disorder solely based off of one negative ANA. I’m referred to an internal medicine doctor for infectious disease work up. She does the work up and everything is negative, she believe it’s autoimmune as well but I’ve been on steroid very recently to help my symptoms which was actually working. I’m in this weird limbo now of multiple people thinking it’s either some sort of autoimmune disease or lupus specifically because I now meet 6/11 criteria. I called Mayo not long ago and was told I could not be seen without a diagnosis, this was before my symptoms got worse and I now have cardiac involvement that is causing my heart rate to be 150-180 while resting and is not caused by any electrical abnormalities. As anyone else had difficulties seeing a rheumatologist at Mayo without a firm diagnosis? I’m at my wits end, working in healthcare myself I can communicate what is wrong with me however I can make anyone diagnose me and this is beginning to effect my ability to work which is really apart of who I am as a person and how I provide for my son as a single parent. I already know my insurance accepts Mayo and doesn’t require a referral. Anyone with answers?