I have been diagnosed with a rare Autoimmune Disorder by the name of Pemphigus Foliaceus. Does anyone have any experience with this disorder and have any tips for me medically or nutritionally and/or want to share your experience with me?
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Sorry I am not familiar with it.
@mylan Welcome to Mayo Clinic Connect. I’m glad you found us. I, too, have not heard of this autoimmune disease before so i included what Mayo Clinic says about it.
Let’s hope some members are familiar with this and will join the conversation.
Are you currently under treatment for this pemphigus foliaceus?
This autoimmune disorder is so rare that only 1-5 of one million people acquire it….. it’s the kind of special you don’t want to be.
Yes…. I was diagnosed and treated by a small town dermatologist for close to a year. My condition has gotten progressively worse so they referred me to a Dermatologist represented by KU Medical Center of Olathe KS. I am sitting in the waiting room waiting to be seen as we speak.
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@mylan I’m so glad that you were sent to a specialist! Will you let me know everything you learn?
Wow – not the lottery you want to win! Autoimmune conditions are mysterious and frustrating –
Not to mention illusive and painful. But academically I look forward to learning what you learned.
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