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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Posted by Ethan McConkey, Moderator @ethanmcconkey, Dec 18, 2019

Welcome to the Polymyalgia Rheumatica (PMR) group on Mayo Clinic Connect.

Meet other members who are dealing with PMR. Let’s learn from each other and share stories about living well with PMR, coping with the challenges and offering tips.We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Grab a cup of coffee or beverage of choice and let’s chat. Why not start by introducing yourself? What's your experience with PMR? How are you doing today?

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

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bkearbey1 | @bkearbey1 | 9 hours ago
In reply to @caroljeand "@eltje Fatigue and increased thirst are symptoms of blood sugar issues. Make sure to keep tabs..." + (show)
Profile picture for caroljeand @caroljeand

@eltje
Fatigue and increased thirst are symptoms of blood sugar issues. Make sure to keep tabs on your numbers.

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@caroljeand agreed weight loss and dehydration definitely blood sugar related. As we know prednisone causes high blood sugars also. I am a type 1 diabetic. Having PMR causes me to really have to give myself more insulin to control.

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pmrnew | @pmrnew | 8 hours ago
In reply to @texastechguy "@pmr100 Hello, I just found this forum and started reading the newest part of this megathread..." + (show)
Profile picture for texastechguy @texastechguy

@pmr100 Hello, I just found this forum and started reading the newest part of this megathread and yes. I had the flu and Covid booster vaccines in October of 2025, and within two weeks or so had my first PMR symptoms but wasn't diagnosed until January of this year as we were living in Europe for a few months (US resident), and I didn't really have regular medical care access, so the diagnosis was delayed.

Most doctors I have spoken to disagree that it could be causally related, but as someone else said here, the immune system trigger may well be all it took.

Good luck.

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@texastechguy Mmmm, this was my experience. We had 6 doctors state they have seen increased cases of PMR after booster. I had covid booster and flu shot 17 November 2025 and yes, I am a strong vaccine believer. Early December started symptoms and wrote them off to workouts. By early January could not dress/get out of bed without help. As a US resident I had no accessible local doc care. I emailed/zoom contacted both my doctor in Europe and a fasting clinic in California. BOTH said they had seen cases of PMR after booster shots. Then I did go see a doc in Canada (reasonable $$ when paying out of pocket) and she told she had seen several cases of PMR within 2 weeks of booster shots, including her own sister. Then my husband (ALL of this 3rd and 4th hand info) went to see his own GP (USA) and she also said she has seen an increase in PMR cases after booster shots. Mind you, we had ALL vaccines in the 1960s and 1970s both childhood vaccines as well as all required to travel to tropical lands, then a different technology. Covid vaccines in 2020/2021 forward were based on the mRNA, which technology was about 10 years old when they used it to bring the COVID vaccines. Frankly I have no idea and do not understand enough of it. I do know that in January PMR had changed my life so drastically that I did not want to live with this. That said, my Canadian doc March 19 told me to start Prednisone at 30MG and taper 5MG each week. Within a month I was at 10MG, now 1.25MG. Seems that since the Pred duration was shorter both the side effects and the tapering have been pretty easy. PMR is really quite challenging for so many and I am sorry to see anyone go through this. And not knowing when it might be over.

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