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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story
Polymyalgia Rheumatica (PMR) | Last Active: Jun 8 11:23pm | Replies (2096)Comment receiving replies
@tyl411
Thanks for the encouragement. I'm studying herbal/plant medicine and have been using Turmeric for about a year. I am not any good at FB, Instagram or any social platform. I would like to know what and how people are using alternative therapies for PMR or RA. I'll keep searching. Since I am one of those sero -negative types my science based brain wonders if this is EORA vs. PMR. Whatever, it's not fun and I'll keep searching for answers.
dd
Replies to "@tyl411 Thanks for the encouragement. I'm studying herbal/plant medicine and have been using Turmeric for about..."
@dd74
Not fun, so true, I am not that good at FB either. A friend lets me come by to look up anti-inflammatory news without interacting at all 🙂
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@dd74
Since you are a nurse and one of those seronegative types ... have you ever tried a biologic? I'm both of those two things too,
I took prednisone for 30 years for a variety of problems. My first 15-20 years were not because of PMR . I took prednisone intermittently in high doses but I tapered off quickly. I was doing "reasonably well" until I started taking prednisone every day for PMR over the last 12 years. When I took prednisone every day for 12 years to treat PMR ... my overall health and well-being declined precipitously.
I tapered off prednisone about 6 years ago after a biologic called Actemra (tocilizumab) was started. It was still very difficult to taper off prednisone but now I have enjoyed a "prednisone free remission" for the last 6 years. My quality of life has vastly improved since I tapered off prednisone.
Mentally, a therapist I saw once said I had elements of medical PTSD. I told her that was from being a nurse!