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Anyone familiar with pleomorphic hyalinizing angiectatic tumor (PHAT)?

Posted by kneenee @kneenee, Feb 7 10:34am

No search found. I may have this on left shin after 10 years ago biopsy done revealing negative for melanoma, DX="Lentigo" which is not serious and my dermatologistsaid another word for like a freckle. Lately the spot grew so another biopsy showed may be a hemangioma but cannot rule out PHAT. Pathologist recommends correlation with clinical findings and imaging studies. I want to find doctor with experience in this realm.

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Susan, Volunteer Mentor | @grammato3 | Feb 8 1:13pm

@kneenee; you’re correct that a finding of PHAT is different from melanoma or a lipoma. Once an actual diagnosis is made, the most appropriate medical provider to remove this would likely be an orthopedic oncologist. Do you know if your treating provider can provide a referral?

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kneenee | @kneenee | Feb 17 6:26pm
In reply to @grammato3 "@kneenee; you’re correct that a finding of PHAT is different from melanoma or a lipoma. Once..." + (show)
Profile picture for Susan, Volunteer Mentor @grammato3

@kneenee; you’re correct that a finding of PHAT is different from melanoma or a lipoma. Once an actual diagnosis is made, the most appropriate medical provider to remove this would likely be an orthopedic oncologist. Do you know if your treating provider can provide a referral?

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@grammato3 ... yes seeing Oncology surgeon Portland ME mid March. If he's not familiar enough I may go to Dana-Farber Boston. My dermatologist wanted to do "punch biopsy," but pathology report suggested imaging and I'm hoping that can tell if I need to be cut again or not! It is rare condition. This type of tumor can grow quickly I've read. Pathologist also stated it could be hemangioma which I think is not serious ...?

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Susan, Volunteer Mentor | @grammato3 | Feb 17 7:47pm
In reply to @kneenee "@grammato3 ... yes seeing Oncology surgeon Portland ME mid March. If he's not familiar enough I..." + (show)
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@grammato3 ... yes seeing Oncology surgeon Portland ME mid March. If he's not familiar enough I may go to Dana-Farber Boston. My dermatologist wanted to do "punch biopsy," but pathology report suggested imaging and I'm hoping that can tell if I need to be cut again or not! It is rare condition. This type of tumor can grow quickly I've read. Pathologist also stated it could be hemangioma which I think is not serious ...?

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@kneenee: It sounds like you're taking the necessary and proactive steps. From what I understand, the two conditions are very difficult to differentiate and while neither tends to metastasize it's important to clearly identify as treatment - such as excision to prevent recurrence - depends on the pathology which imaging such as MRI may assist.

You'll undoubtedly have a lot of appointments coming up but if you could keep me posted on the final results, I'd appreciate it. Many people check on Connect and your experience could help others. Best of luck to you!

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