Permanent SIBO due to removal of ileocecal valve

Posted by pknw @pknw, Jul 16, 2017

Is there anyone who has no cure options for SIBO due to the removal of the ileocecal valve? If so, how do you minimize possible long term damage to your intestinal tract? Do you find that digestive enzymes, L-Glutamine, Enteragam or any natural supplements aid in a healthier immune system? if so,
please pass along your best advice. Thanks.

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@tiss

I have not heard of Nascobal but will ask my dr about it next time I see him. Would be nice to find a b12 med I don't have to go to Drs office once a month for injections.
As far as my GI prescribing long term, daily xifaxan, I guess I just lucked out. He gets it that this SIBO will only be controlled by meds, not cured. I fired my old GI about a year after surgery because he had NO CLUE about SIBO and didn't really believe it exists. I am on Medicare so it costs 800.00 a month. Not what we had expected during retirement. Xifaxan won't be going generic until 2028. I hope I live long enough to pay zip for it!

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I’ve failed a few breath tests and they did aspirates as well. I’m a case of permanent SIBO unless someone invents a valve replacement (and this has been the case since the colectomy to rid me of cancer in late 30s…ugh).

If your GI was on east coast I would prob go there. Lol. I’ve been taking 4 antibiotics on a rotating basis for a few years. We test every now and then for C diff. and always come back to more antibiotic fun.

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My GI suggested trying some different antibiotics due to cost but I felt terrible on them plus they are systemic unlike xifaxan and you can't take them for long. If you can make it to Tulsa I'll give you my GI's name!

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@tiss

I have not heard of Nascobal but will ask my dr about it next time I see him. Would be nice to find a b12 med I don't have to go to Drs office once a month for injections.
As far as my GI prescribing long term, daily xifaxan, I guess I just lucked out. He gets it that this SIBO will only be controlled by meds, not cured. I fired my old GI about a year after surgery because he had NO CLUE about SIBO and didn't really believe it exists. I am on Medicare so it costs 800.00 a month. Not what we had expected during retirement. Xifaxan won't be going generic until 2028. I hope I live long enough to pay zip for it!

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Search:
‘Herbal Therapy Is Equivalent to Rifaximin for the treatment of small intestinal bacterial Overgrowth’.

A 2014 study from Johns Hopkins, Dr GE Mullin

For B12, an Rx from your MD for Cyanocobalamin and you can easily self administer. Cost is inconsequential with GoodRx.

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@tiss

My GI suggested trying some different antibiotics due to cost but I felt terrible on them plus they are systemic unlike xifaxan and you can't take them for long. If you can make it to Tulsa I'll give you my GI's name!

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I would be interested in knowing who your GI MD in Tulsa is.

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@david2022

Search:
‘Herbal Therapy Is Equivalent to Rifaximin for the treatment of small intestinal bacterial Overgrowth’.

A 2014 study from Johns Hopkins, Dr GE Mullin

For B12, an Rx from your MD for Cyanocobalamin and you can easily self administer. Cost is inconsequential with GoodRx.

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My dr prescribes the b12 and syringes but I'm too chicken to give them to myself. I had a nurse friend who was giving them to me monthly then Covid came along. So I just go to my Drs monthly.

I'll read the article Re herbal therapy. That would be fantastic to find another solution to help keep SIBO away. The cost is ridiculous. The industry is crazy and upside down. Terrible for consumers!

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@david2022

I would be interested in knowing who your GI MD in Tulsa is.

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Dr Michael martin. We tried several rounds of xifaxan and other antibiotics and SIBO kept coming back. I don't think he wanted to keep me on it but finally concluded this was the only way for me to stay well as far as SIBO. My guess is that all of us on this thread are unusual cases and require unconventional therapies sometimes. I'm very grateful to that man.

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@david2022

Search:
‘Herbal Therapy Is Equivalent to Rifaximin for the treatment of small intestinal bacterial Overgrowth’.

A 2014 study from Johns Hopkins, Dr GE Mullin

For B12, an Rx from your MD for Cyanocobalamin and you can easily self administer. Cost is inconsequential with GoodRx.

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I just read that abstract but it doesn't give info on what herbs, dosages, etc.

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@tiss

I just read that abstract but it doesn't give info on what herbs, dosages, etc.

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The abstract should have a link to the full article.

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@tiss

Dr Michael martin. We tried several rounds of xifaxan and other antibiotics and SIBO kept coming back. I don't think he wanted to keep me on it but finally concluded this was the only way for me to stay well as far as SIBO. My guess is that all of us on this thread are unusual cases and require unconventional therapies sometimes. I'm very grateful to that man.

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A current book:
Super Gut by William Davis MD. Huge amount of information about SIBO and very reasonable action steps to help.

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@david2022

A current book:
Super Gut by William Davis MD. Huge amount of information about SIBO and very reasonable action steps to help.

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I wish there would be a specific book written for those of us who dont have much of our guts left! I did find read the article and am ordering the metagenics supplements for sibo. For 100.00 it’s worth a try. Thx for the link.

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@tiss

I wish there would be a specific book written for those of us who dont have much of our guts left! I did find read the article and am ordering the metagenics supplements for sibo. For 100.00 it’s worth a try. Thx for the link.

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The book, Super Gut by Dr Davis. It’s an incredible resource. I’m not certain what article referenced the supplements for SIBO you mentioned. I guess I missed something.

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@tiss

My dr prescribes the b12 and syringes but I'm too chicken to give them to myself. I had a nurse friend who was giving them to me monthly then Covid came along. So I just go to my Drs monthly.

I'll read the article Re herbal therapy. That would be fantastic to find another solution to help keep SIBO away. The cost is ridiculous. The industry is crazy and upside down. Terrible for consumers!

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If they teach you how to give yourself injection, it is virtuously painless. The anticipation is worse than the shot. I take the shots weekly due to b12 defic due to removal of valve and surrounding bowel
Your nurse friend can show you how

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