← Return to Permanent SIBO due to removal of ileocecal valve

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pknw (@pknw)

Permanent SIBO due to removal of ileocecal valve

Digestive Health | Last Active: Aug 8 6:44pm | Replies (159)

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@azdon

I think it was partially gradual onset and partially suddenly worse. I had increasing gas over the years and sometimes had a reaction to certain foods where it would be significantly worse, but I always viewed those as one off. When it became bad on a daily basis I started tracking everything I ate. I found that it was always worse after taking probiotics. For a time they were in a protein drink that I took and then I had one with multiple bacteria that I would take occasionally, especially if I was having stomache issues, until I realized they were making things worse. I took generic Rifaximin 550 mg 2/day for 14 days, and I had absolutely no response, I noticed no difference at all.

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Replies to "I think it was partially gradual onset and partially suddenly worse. I had increasing gas over..."

Yeah maybe your progression mirrors my experience in that I would have a "bad" reaction to a food and it was like "guess I cannot eat x anymore" until I basically ran out of foods I could eat.

Are you currently being seen by a GI for this? If you go to a GI or the Mayo clinic they will probably have you do a series of tests to rule out something more serious and then also provide evidence for a "SIBO" diagnosis … again since your symptoms respond to antibiotics and you're missing your ICV, SIBO seems to make sense. You can try going down the herbal route but sad to say, they do not seem to always work, but it's worth a shot since you don't have to get a doctor involved. Again, since you managed to have 8 years of "remission", it seems you may just have to hit your gut with the right antibiotic every so often to get back to normal. Rif and neomycin are popular since they are not absorbed systemically, but of course it has to be right for your "infection". What do you plan to do next?

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