How do you manage neuropathy and loss of balance and walking ability?

Posted by rachel44 @rachel44, May 18 2:02pm

How do you manage the situation when periferal neuropathy affects your balance and walking ability?

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Profile picture for quincy007 @quincy007

Hello James !..Well this sounds quite interesting to me.
What do you know, or what can you tell me about frequent alcohol related headaches ?..👀

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Sorry , never had head aches. Our brains "white matter" is myelin. Perhaps
alcohol dissolved some of it. Have not drank in last 3 months.
Bye.

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Profile picture for jamessaxo @jamessaxo

Sorry , never had head aches. Our brains "white matter" is myelin. Perhaps
alcohol dissolved some of it. Have not drank in last 3 months.
Bye.

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Thanx for your reply friend,..have a fantastic day.👋😎

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trying hyperbaric oxygen therapy, I can feel my big toe now

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Profile picture for mikeissimo @mikeissimo

Respect it, be careful, keep pushing, don’t overdo, use whatever aids you need. Pride is misplaced; if you need to use a cane or walker or some such, do. Even if walking has gotten to be a real chore, use your muscles in other ways like floor exercisers, chair yoga. It’s regrettable and a real drag but doesn’t need to ruin your life. You can still stay healthy. This how I now see it after being balance-challenged for 10 years.

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@mikeissimo Exactly!! Couldn't have said it better. I'm done trying to do anything but get done what I want/need to get done or do what I want/need to do! Someone's going to what?... see me? Tough!! I found what works for me and couldn't care less, what anyone thinks about it.
I use crutches every day, in place of a cane or a walker. I have done this for the last 10 of my 85 years and I have never fallen, not once. For me, (and I am just speaking for me!) this method works better than a cane or walker because I can put some weight on the crutches...it helps my mobility. I can maneuver around things and in tight areas, much better than with a walker. My base is a firm four points; with a cane it is 3! I feel very secure and have learned little by little how to handle the crutches and to keep them out of the way as much as I can when I'm not using them.
So, do what YOU have to do for YOU. Life is still good and worth while. There is STILL a lot to be thankful for.

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I don't know how to manage balance issues other than constantly reaching for something to hold on to, i.e.
point of balance...If there is nothing to touch that is stable, I put both hands out above my waist and keep
myself steady, like some kind of bird making a more direct path for myself. Otherwise I tend to veer to
either the Right or the Left, depending on where the pain is on any given day.
I sometimes stop dead in my tracks on the street to get myself stabilized, it works, but the students
who are always in a rush have learned to walk around me. Noone has knocked me down YET.
I find that when there is no pain, I can walk faster and then the balance becomes less of an issue.
Standing in one position is asking for a fall. I have to keep in motion.
Has anyone had similar balance issues?
I continually ask my doctor for help, but he sends me to Neurologists and specialists, none of whom have
offered anything but drugs like Gabapentin which I wasted $100.00 buying when my insurance did not cover it.
That should have been an immediate Red Flag!

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Profile picture for amberamberette @amberamberette

I don't know how to manage balance issues other than constantly reaching for something to hold on to, i.e.
point of balance...If there is nothing to touch that is stable, I put both hands out above my waist and keep
myself steady, like some kind of bird making a more direct path for myself. Otherwise I tend to veer to
either the Right or the Left, depending on where the pain is on any given day.
I sometimes stop dead in my tracks on the street to get myself stabilized, it works, but the students
who are always in a rush have learned to walk around me. Noone has knocked me down YET.
I find that when there is no pain, I can walk faster and then the balance becomes less of an issue.
Standing in one position is asking for a fall. I have to keep in motion.
Has anyone had similar balance issues?
I continually ask my doctor for help, but he sends me to Neurologists and specialists, none of whom have
offered anything but drugs like Gabapentin which I wasted $100.00 buying when my insurance did not cover it.
That should have been an immediate Red Flag!

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@amberamberette Have you had a Lumbar MRI? I am wondering about your autonomic nervous system.

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Profile picture for suetex @suetex

@amberamberette Have you had a Lumbar MRI? I am wondering about your autonomic nervous system.

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suetexThank you for this, I think I've had every test BUT!
I have been diagnosed with MET and see a Neurologist several times a year whenflare up pain happens, usually after overstraining and not taking necessary time to rest.But it can happen out of the Blue when I awaken and realize something is off and so it begins.I will ask my PC next week when I see him.I will also discuss with my Neurologist.
WHO would have thought...
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Profile picture for amberamberette @amberamberette

suetexThank you for this, I think I've had every test BUT!
I have been diagnosed with MET and see a Neurologist several times a year whenflare up pain happens, usually after overstraining and not taking necessary time to rest.But it can happen out of the Blue when I awaken and realize something is off and so it begins.I will ask my PC next week when I see him.I will also discuss with my Neurologist.
WHO would have thought...
On Sunday, October 19, 2025 at 06:05:04 PM EDT, Mayo Clinic Connect < nf+570c4963+79768527@n1.hubapplication.com> wrote:

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Mayo Clinic Connect
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| @suetex mentioned you in comment on Sun, Oct 19.

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@amberamberette Have you had a Lumbar MRI? I am wondering about your autonomic nervous system.
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@amberamberette I don't know anything about this diagnosis of "MET". Of course the number of things I don't know about is hugh! Since I have balance problems, I do know a little about the Autonomic Nervous System. It exits the spine in the Lumbar region, hence the search there. MRI to look at soft tissue that might be putting pressure on a nerve. It wouldn't necessarily hurt so you wouldn't know about it. In my case, I have been thrown from a horse enough to do anything. There isn't usually pain with it but there might be something else going on too. So the insurance is likely to ok it, but check first.

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