1. < Neuropathy
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How do you manage neuropathy and loss of balance and walking ability?

Posted by rachel44 @rachel44, May 18 2:02pm

How do you manage the situation when periferal neuropathy affects your balance and walking ability?

Interested in more discussions like this? Go to the Neuropathy Support Group.

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wenner | @wenner | Oct 8 11:54pm

@cmyrule ... think I was supposed to put that in front of my comment. Sorry.

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wenner | @wenner | Oct 8 11:59pm
In reply to @suetex "This seems like a good place to post this as it is related to balance. I..." + (show)
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This seems like a good place to post this as it is related to balance. I saw one of my neurologists today and had her go over the MRI that was done on my lumbar spine. (If you have balance problems start there.) She pointed out where the ganglions were being pinched on exiting the spinal cord as a likely start of my balance problem. She did not offer any treatment for this. Any thoughts?

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@suetex Yes they have some very good exercises to help balance. Go to your local hospital they often run programs for the public (hopefully they do the USA) @wenner

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suetex | @suetex | Oct 9 10:13am
In reply to @wenner "@suetex Yes they have some very good exercises to help balance. Go to your local hospital..." + (show)
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@suetex Yes they have some very good exercises to help balance. Go to your local hospital they often run programs for the public (hopefully they do the USA) @wenner

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@wenner Thank you for the suggestion. This Saturday I am going to my first Myofasia Release (The John Barns method) I am going to give that a go.

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jamessaxo | @jamessaxo | Oct 9 2:33pm
In reply to @foundryrat743 "It has been my experience, after years of dealing with peripheral neuropathy, that it may not..." + (show)
Profile picture for foundryrat743 @foundryrat743

It has been my experience, after years of dealing with peripheral neuropathy, that it may not be easily treatable! My Neutologist, my family Doctor, and my Orthopedic Doctor have not been forthcoming in giving me any viable treatments, that help, the pain, numbness, sensations of voltage (buzzing), going down one or more of my limbs. So, after years of questioning the Docs, I don’t even bring it up anymore! I’m at the age where the Docs have backed off treatments, for various ailments. Instead, I get a placating, wellness check - nothing thoroughly investigated or treated, anymore! Having shooting, buzzing like discomfort, especially in my arms and legs, and no answers, or help, or even understanding from medical providers, can be, and is most disheartening, so I empathize with the plight, of many, who suffer from peripheral neuropathy!

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@foundryrat743
In my search for cause of my trygeminal neuralgia I learned that alcohol reduces absorbtion of B12 thru intestine. B12 makes blood cells AND MYELIN. Myelin is a fat that costs out nerves. When it has been lost, nerves are being touch or rubbed by adjacent tissue like muscle. I suspect u have and still drink alcohol. My Dr has written in my file just last week NON DRINKER. So try taking B12 supplement. Worked for me an 83 yr old.

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foundryrat743 | @foundryrat743 | Oct 10 4:18am
In reply to @jamessaxo "@foundryrat743 In my search for cause of my trygeminal neuralgia I learned that alcohol reduces absorbtion..." + (show)
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@foundryrat743
In my search for cause of my trygeminal neuralgia I learned that alcohol reduces absorbtion of B12 thru intestine. B12 makes blood cells AND MYELIN. Myelin is a fat that costs out nerves. When it has been lost, nerves are being touch or rubbed by adjacent tissue like muscle. I suspect u have and still drink alcohol. My Dr has written in my file just last week NON DRINKER. So try taking B12 supplement. Worked for me an 83 yr old.

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@jamessaxo Thanks! I so appreciate your supportive commentary! I have been taking B-12 Vitamin supplements now, for a few weeks, and I do believe it helps, in regards to a lessening of peripheral neuropathy symptoms! Thanks again!

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sopphie32 | @sopphie32 | Oct 10 4:25am

I focus on balance exercises, physical therapy, and supportive footwear. Regular stretching and using a cane or walker when needed also help a lot. Managing blood sugar and checking in with a neurologist make a big difference too.

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Okay Now What | @okaynowwhat | Oct 10 1:22pm

I wear very thin footwear that allows me to “feel” the ground. I have figured out for me that the nerve connection still exists if I pay attention to the “shock” signals that the soles of my feet send up my leg. The knee & upper leg nerves can pick up that signal from my feet.

The rest is just concentrating & learning how different surfaces now feel to me. Gravel vs pavement vs asphalt vs carpet grass, etc. For me, carpet grass poses some of the weirdest sensations. How far did I really sink into this? Is the ground finally solid? Is my left foot level with my right?

God help me if the carpet grass is on a sloping lawn also.

Mikey V

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jamessaxo | @jamessaxo | Oct 10 7:52pm
In reply to @foundryrat743 "@jamessaxo Thanks! I so appreciate your supportive commentary! I have been taking B-12 Vitamin supplements now,..." + (show)
Profile picture for foundryrat743 @foundryrat743

@jamessaxo Thanks! I so appreciate your supportive commentary! I have been taking B-12 Vitamin supplements now, for a few weeks, and I do believe it helps, in regards to a lessening of peripheral neuropathy symptoms! Thanks again!

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Good. As we age, more B12 needed. Surplus is urine atef out.

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artemis1886 | @artemis1886 | Oct 10 11:18pm

I am taking ivig Panzyga and it helps with balance , dizziness and motor neuropathy.

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tn38549 | @tn38549 | Oct 11 9:51am
In reply to @artemis1886 "I am taking ivig Panzyga and it helps with balance , dizziness and motor neuropathy." + (show)
Profile picture for artemis1886 @artemis1886

I am taking ivig Panzyga and it helps with balance , dizziness and motor neuropathy.

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@artemis1886
What is the product you mentioned as maybe more than myself haven’t heard of it. Thanks.

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